Hi Ange
I too was recently diagnosed with SMM in June. PP was 30 but has slowly crept to 38, but it was good to hear from my consultant last week (I go every 4 weeks) that they wont start treatment till PP is 50+. Like you I have no symptoms, and I hope the back ache I am getting is down to stress rather than anything else, but I am due to have…[Read more]

Sarah
Great news,its time to let your hair down abit;-)
cheers Paul

Hi Tina,

Well done on the stem cell harvest!! My husband Phil had radiotherapy on both of his legs, five sessions over five days. Side effects are obviously different for everyone but Phil felt tired but didn't suffer from any nausea. The tiredness may have had as much with having to travel into the hospital everyday as with the actual…[Read more]

Sarah,

Thank you so much for sharing your good news, for those of us at the start of the journey it is wonderful to read things like this. Enjoy it and long may it continue!!

Megan

Sarah what brilliant news! It is so heartening to read posts like this. Long may the remission last. He has had a rough road and Henry as they say here in Norn Iron )northern Ireland to people on the mainland ) "good on ye"

Love Jean x

Hey Girls as a mere "male" I can only add I was nearly bald before SCT and went Bald then Back to Nearly Bald was my hair brittle/dry ?? I aint a clue (am a male) but Hope you get it sorted and some better answers than I have gave 🙂

Lots of love Girls xxxx

Lovely Min. Thank you
Jean

Hi Janet

Interested that you have the same problem as me. The annoying part is, I didn't have any problem all the time I was on CDT, but since I finished, nearly two months ago now, my hair has thinned alarmingly and, like yours, is very brittle and dry.

Let's hope someone has a solution for us!!!

Best wishes any way.

Mavis x

Hi Mari

I f I am correct that is a few floors up,turn left out of lift and walk down and it is on your left 2 wards through one door.!!!not very good views from windows,but bigger rooms,and from what I remember they would even do cheese on toast,bigger kitchen.It is roughly half a mile all together from Denmark Hill station.Slim was in there…[Read more]

And am Sure it will help others Thans For sharing.

Love Tom xxx:-D

Hi Pat
AL is similar,it is rarer,I think 600 cases a year,last time I looked and only one hospital Royal Free,there are a few people on here with both Amyloyds plus MM,they usually pop up in related conditions.

It is not knowing that causes sleepless nights,so once you do know you feel you have something to fight,Velcade works for MM.

Its…[Read more]

Hi All

I was quite surprised today at clinic that my pp has fallen from 37.1 to 34.5. Is it common to fluctuate like this? The downside was that my hb is falling each time and is now 10.3. I am still being kept on 4 weekly follow up.

Andrea x

Hi Vicki and Colin

When Colin's Back is not too good then that calls for a lean over and a shoulder charge 🙂 and am sure that will work just as well but it needs plenty of screaming to go with it ha ha.

You two enjoy the week 😎 it aint gonna be warm but it will soon be christmas ha ha

Love Tom "Onwards and upwards" xxx

Hi Mari and Steve

Am wishing all good things for the SCT I hope its a fast recovery and soon out and getting fit.So head up and straight in 😎

Love Tom "Onwards and Upwards" xxx

Hi Etta and Craig

Its No problem Etta and you are Both more than welcome 😀

Etta am plesed you are starting to feel better, when I was getting better (and I could tell) I used to count the days then the months and each day was getting better (still had the odd off day :-/ but then dont we all 🙂 ) stopped counting the "Good Days" after 6…[Read more]

Hi Cathy,
Well Ivan is on his way,it amazing how quickly they recover from what seemed at the time,as will he recover.

Give it time Cathy he will get there,you just make sure you get some rest,when he comes out,it will get harder for you,as cleanliness,washing and cooking will take up you day,so try to have a rest now,if anyone offers help…[Read more]

Hi Judy
It is not unusual to feel this way,after a few months any one will tell you it is part of the grieving process.You want answers and are entitled to ask questions.

I have always made a point of keeping records of blood results as they can tell you a lot about a persons condition.

When you saw the consultant on the Tuesday who told…[Read more]

Dear Judy

So sorry you are having such a hard time although it is very understandable given the circumstances. You are entittled to answers. I do hope someone is helping you to get them. Have you put a complaint in? The Hospital's PALs service should be able to help you if you haven't got anyone else on side.

Have you family to share…[Read more]

Hello Gail
I am so sorry to hear of Howards passing,your not alone we are all here for you…If you need to talk just log on and tell us,someone will respond!
You look after yourself
xxxxPaul

Hi Mari

How are things going???? You must be back at school now.Eve