Hi Tina well done and Good Luck girl

Love and Hugs

Tom "Onwards and Upwards" xxxx

Thanks for that Stuart, but I aint noticed any? (unless its mine lol)

Cheers Tom "Onwards and upwards"

Hi Chris

Well done to you and your team for getting the funding, and as for the hair I lost mine in bits and bobs so decided to shave it all off and keep it off til it felt like it was gonna grow? but it still misssed the middle when it grew back lol.

Enjoy Marriage I do (just daren't ask the young bride if she is lol)

Tom "Onwards and…[Read more]

hi Chris

fingers crossed for you for the second attempt i really hope this drug works for you so you can get your SCT so glad the wedding was a success
keep us in touch with how you get on
GOOD LUCK:-P
LOVE Jo x

David
What great news!! i am so glad that treatment is lined up for you as well.Thats made my day:-)
cheers Paul

Hi Tina
Good to hear its all underway,keep us all posted.
cheers Paul

Tina I wish you all the luck in the world. Hope it all goes well. 🙂

Live jean xx

Hi Peter

I love your specialist (b)

Its great no have no bone damage when first told you have MM, I still have none but have the ache's and pain's but am told not mm related (just older age)

BUPA is good my young bride (Elaine) was in a private wing at our local hospital (Scunthorpe General) after an op due to no beds in rough end :-/…[Read more]

Well Thats great News David and a well done to you (red wine works on all lol)
I bet you take those pills with a little smile knowing thats its on the outside (bad enough though) 35 doses of R/T is a lot (my young bride had 25) but it will be well worth it 😎
Having Prostrate problems has also checked your bones so you got a two for one…[Read more]

Brilliant brilliant news David. Well done. Keep,up the good news

Love Jean x

Good Evening Pat

And my vote is of course you can stay 😀 you opened the Group door you made yourself known an I for one Like that 😎 so pull up your comfy chair and let me and folk like me what "Just AL" is all about.

I wish you a trouble free journey with AL (note to self go check it out)

Tom "Onwards and Upwards" xx

Hi Vicki and Colin

Am pleased for you both that it was An "OK" Day 😀 I bet you did have those extra Q's to throw at them and well done yopu for doing so 😎
Fingers and anything else that I can cross will be crossed.

Love
Tom "Onwards and Upwards" xx

Hi Peter

Yes 3l min of fluid i add vodka red and beer to mine and so far it aint done me too bad Lol.

I was told I had a bruised rib or a pulled muscle ? which turned out to be MM am pleased I asked for a 2nd Opinion and got that same day both Dr's said same and I said I didn't thin k I did so Xray/bloods and as they say the rest is…[Read more]

Hello,

MM is very different for each person so it is hard to say what it will be like for your relative. My husband, Phil, needed a lot of help at the start when he was diagnosed but he had the added complication of operations on both legs to recover from. Since he has recovered from the operations and has been able to stop using the crutches…[Read more]

Hi Jacqui

Good Luck with the trial and I think same its a treatment that they aint sure about ?
Good Luck for your start on thursday.

Tom "Onwards and Upwards"

Hi jacqui
I to have Lightchain Myeloma and have been told a similar things to you,I to would go for the clinical trial.I am due for a "allo-graph" in December and also been offered a clinical trial for that.
take care Paul

Hi Scott

I cant praise My Company hard or long enough, started my treatment in Feb 2009 (CTD leading up to SCT Dec 09) went on sick May 09 till May 2010 decided I wanted to go back to work (I work on a docks forklift tug driving ((hard graft)) and that) seen our MD and he said he found me (made a job for me??) and that was as a "Gateman" yep…[Read more]

Hi Vicki and Colin

Well am sorry its a none starter again 🙁 I do feel for you both and wish I could get hold of some one and give them a good shake for them to get a move on.

I like you two have sat back and let it all take its course but it has worked for me so far BUT I would be up in arms if I was same as Colin camping out in the…[Read more]

Hi Vickie
Sorry to hear that things are no better. I know it can be difficult with some consultants, they seem to be "the all powerful" but they are human. So as you say be assertive Vickie, have a written list of questions so there is nothing left out. When we visit consultant I take a little recorder to record the consult, as I have the worse…[Read more]

Wendy I understand where you are coming from, there has been some bad news from our friends. But I agree it is very uplifting for people like me to read stories like yours and Eve's, it makes me feel like there is light at the end of the tunnel and not another blo*dy train coming. Thanks for sharing
Love Jean x