Hi Vicki

Are they trying again tomorrow? Oh I really hope that it works this time. It really makes me sick with this post code lottery. If someone needs medication it should not make a difference where the h*ll they live. I am like you Vickie I worry if I'm not worried. I questioned the SCT co ordinator if the Belfast trust funded prelixfor.…[Read more]

Hi Lyn and Pete

Your More than welcome, but bare in mind its not a walk in the park but it is "Paine Free" cept having the GCSF Injections and the BMB and I put the rest down to "Just Stuff" its a doable and as I said I would go through it all again 😎

If you need any more info ask away I aint shy 😉

Love Tom "Onwards and Upwards"…

Thanks Lynn will follow your posts with interest. Will have everything crossed for Pete in October. Best wishes to you both
Love Jean x

Hey you two a good row is good it clears the air (think of thunderstorms, how good the air feels after one)

My Young Bride and I have struggled a fair few time of her trying to help me up of the floor many a time.

Good Luck with the Pain relieve hope that is soon sorted out.

Love to you Both

Tom xxxx

Hi Lyn and Pete

Trust me you two the light is at the end of the tunnel I had my SCT in December 09 not a good month even if i did miss Santa ha ha, but it was well worth it.:-D

Would I do it again No problems as it has made me fit (ish) and in remission and drug free in a couple of years still down the line 😎
Just take one day at a time…[Read more]

Hi Jennifer

Mine is just a welcome as I went straight into MM 🙁 dint have chance to smoulder (or I dont think i did)

Stay Strong and Good Luck on Alan's road to remission.

Love Tom "Onwards and Upwards" xx

Hi Gill

I had Zometa for two years after my SCT then it stopped so I think two years was/is the norm and I have never paid for any treatment even before it became free for cancer sufferers. My Dr had a Nurse fetch my stuff up to the clinic and if i needed any thing else my Nurse Heln woulg go and fetch it 🙂

Hope its soon resolved

Love…[Read more]

Gosh Wendy now where has that 12 month gone??

Happy Birthday Stem Cells, you have a great host so behave 😎 Long may it last Wendy.

Love and Hugs to you and those iccle stem's

Love Tom "Onwards and Upwards" xx

Welldone wendy

Keep the good news coming we are all in need of it from time to time long may it last:-)
Love Jo

Hi Andy

You are getting their slowly am afraid but getting their non the less 😀

Keep them going the correct way and Trust me you wont need a brollies as I am told you dont get wet inside a Pub??? well I do but it is the inside 😀

Have a great Time and relax with a pint or two.

Tom "Onwards and Upwards" x

Hi Eve

Well am pleased you will be in contact so you can sort me out if I get Nawtry Lol.

You two have a great time and I promise I will behave (fingers crosssed he he)

Catcha Lata

Iccle ole me xxxx

Hello eve & slim,

What great news! Enjoy your holidays all of them!!

So pleased for you both much love liz & kev xx

Hi andy,

Hope this weather were having follows you to the lakes! Enjoy and keep well!

Thinking about you on the 11th

Love liz & kev xx

Hi Wendy!

Happy first anniversary such good news on this lovely sunny day! So pleased for you Wendy.

Thanx for the link love liz & kev xx

Happy anniversary Wendy and thanks for the link. Frank hopes to start STC in new year. So will read with enthusiasm.
Love Jean x

Hi Wendy
Happy 1st Anniversary Immune system! enjoy the sunshine Wendy.
cheers paul

Hi Vicki

I have not replied to your posts as we are not at your and Colin's stage yet and dont know that much about STC but I have been following posts very closely. I was devastated to hear that it failed. Vickie can Colin's consultant be able to tell you what plan c can be. you must be so worried and hopefully someone else will be able to…[Read more]

Hi Gill

6 years ago my husband had Zometa every month for 2 years. He has just started treatment and is back on Zometa. Hope you get it sorted out.

Jean x

Hi Jennifer

I understand completely how you feel. I am also 51 and just been diagnosed with SMM and will have 4 weekly blood tests to monitor the paraprotein. Mine is around 37 now but luckily I have no symptoms yet. If you are unsure about whether the monotoring is enough I would ask the consultant or nurse at the clinic.

I wish you both…[Read more]

Hi Jenny

Thank you for your message and kind invitation. I would love to come to one of your meetings soon. It would be great to meet up with local people.

Many thanks
Andrea