Dear Pat

We all know whgat a horrible time it is waiting for diagnosis and, unfortunately, with Myeloma, it seems to go on and on!

Sorry you have had to join our group, but hope you find as much support from it as we all do. It is true, you do have to rely on your friends at this time. Aren't we lucky to have good friends and colleagues…[Read more]

Morning Sandra the only problem I know about is when you are haveing Zometa and you cant have teeth taken out at dentist have to go to the hospital (think fillings are OK but always worth a check with dentist.

Love Tom "Onwards and Upwards" xxx

Morning you two 🙂

Well My young bride (Elaine ) had 25 sessions of RT and towards the end of it she started to burn so the Nurse gave her some cream for the burns its all good just ask for cream.

Have a great week end

Love Tom "Onwards and Upwards" xxx

Hi Vickie and Colin

Well in the nicest possible way I hope Colin gets some pain tomorrow not forgetting we all differ and some dont get the "Pain" for some reason or another.

As for the worry Vicki I worry about worrying about not worrying?? if that sounds sense lol, keep off the paint and try and relax

Love and Hugs
Tom "Onwards and…[Read more]

Hi Maxine

Thats not a problem at least your sister has got some one fighting her corner as am sure the whole family will rally round keep as much pressure off your sister and keep her calm.

Dont forget Ask away nothing is too daft for us to answer.

Love Tom "Onwards and Upwards" xx

Hello Vicki and Colin,

It is life changing and for us the initial shock was quickly followed by two operations for Phil to fix his femurs, we have had one thing after another since the diagnosis but now things feel like they are more under control and we are starting to understand things more. Like you we had never heard of MM but we are…[Read more]

Hello Michele,

This is why I love this forum, hearing the good news from others helps me keep a positive outlook, I know MM is different for everyone but I think a positive attitude helps and knowing that things can get better makes it easier to deal with. Thank you for sharing.

Megan

Hi Keith

I think it is Positive news, I hope the Dex is cut for you am sure that will make your life far better.

The lowest I got with the weight loss was 68 kilos and i was normaly 95 kilos, now back to the 92/95 yep i float from one to the other.

Good Luck Keith

Tom "Onwards and Upwards"

Hi Ted

Excellent news, glad all okay for you and hope the x-ray is alright too.

Best wishes
Andrea

Dear Dia

sorry you are still feeling under the weather I had hoped you would be clear now I was speaking to a lady at my support group about revlimid she has been on it for four years the side effect she used to get an upset tummy she was always on the Loo her consultant gave he a drug similiar to immodium and this has solved the problem hope…[Read more]

Hi Keith
this sounds like good news as soon as you are off DEX the sugars will level out how are you getting on with the insulin did you know once the sugar levels are down and stay down you can come off insulin the diabetic team are always keen for you to stay on it but you will find one or two tablets will do i came off for ages until they…[Read more]

Hi Ted

Well done that Man another three months doing good, keep it up and hope Xray is just put down to "Middle" Age 😉

Tom "Onwards and Upwards"

Hi Ali

Well am pleased your Mum is getting stronger and Hugs all round are OK 😎
Am sure your Mum will feel better with the line out, and less chance of infection:-D .

I came out on the 16th Dec and was driving the following day (not far though) but I had my Line (Femoral) taken out the day before I came home.

I bet those two Kids…[Read more]

Hi Dai

So one part is looking Good am sure it will all fall into place whith rest and as for a healthy diet well for me you can throw that out of my window I have never had one? dont wish to play about with one and am sure your Dr is correct eat what you want when ect ect ect as I have done and Take a look at iccle ole me (touching wood) doing…[Read more]

Hi Maxine

Sorry to hear about your sister getting MM and being so young, i dont think you will know what treatment your Sister will be on at the moment?
Let us know where your Sister will be getting her treatment as we might have some one on here that is being treated at same Hospital.

If you need to ask any Q fire away and we will try to…[Read more]

Thank you all for your replies.

After the initial shock it is nice to know that things can get better.

Phil's paraprotein level started at 34 and after the 2nd round of chemo it was down to 16 so fingers crossed the results will have dropped again after the third round (we will find out next week) and will continue on a downward slide with…[Read more]

Dear Teresa

I can only imagine what you are going through and my heart goes out to you. The love of your life has gone but you have been left with lovely memories. My love and thoughts are with you and thank you for your post.

Love Jean x

Hi Megan and and welcome from me. Michele is right "a trouble shared is a trouble halved". This forum has been a God send to me. I have had help, support and above all friendship. My best wishes go to you Nd Phil – good luck

Love Jean x

Hi Megan and Phil

A warm welcome to your site, ask away and just remember no Q is too silly or daft we have all been through it Like me as a MM or one that is a carer.

Good Luck in Phils road to remissin.

Love
Tom "Onwards and Upwards" xx