Your Welcome Scott

I also hope that your results turn up and say you are Myeloma free 😀 and that Scott is not selfish its self preservation and that is what you need if confirmed with Myeloma.

If confirmed with Myeloma am sure you will kick its Ass and soon be on the road to remission (am sure we ought to get a songwriter to write a song…[Read more]

Hi Teresa

Many Thanks for this post as am sure it must be hard for you, but your strenth has and will carry you on.

I never Met Peter or you am sorry to say but you both have and are in my thoughts.

I also hope and wish A cure is soon found for this dreaded illness.

Thank you for posting.

Love Tom xxxx

Hi Ali

Am pleased you had a great Birthday and am Pleased your Mum is getting better (no rush though) your Mum will still need to rest often to help heal.

As and when Mum checks what she can and cant do I hope she is still able to recieve "Cyber Hugs" as I am sending some more

Love and Cyber Hugs ((hugs)) to you both

Love Tom…[Read more]

Hi Scott
Great Intoduction I may say 😀 Sorry you had to join us but you have dropped in to a great place great set of folks MM folk and carers (well those that look after us 😎 )

No need for the WWW now you are here so just ask away and am sure some one will help, nothing is too scary for us lot now 🙂

Good Luck (if it turns out to be…[Read more]

All the best with GCSF, my pain started on day three I think and lasted just over two days 🙂

Tom "Onwards and Upwards" xx

Hi Keith

Am sorry to hear your having another rough one 🙁

Am not sure if this will help?? and if it upsets people I am extremely Sorry 🙁

But during Mt Treatment I also had the Eff it av had enough, lets get some proper life and do away with the drugs. I told him upstairs (god) three times over the two and a bit years that I have had…[Read more]

Hi Charlotte

I also must say sorry as I also missed your post ????? I dont have anything to say about your plasmacytoma as I am fortunate enough not to have had one? (I tell you MM gets staranger the longer I have it?)

I have to say you done as was aked "I've been instructed to introduce myself" and you have done that well 😎

Dont…[Read more]

Hi Pennie and Andy

Thats a lot of breaks and fractures ?

I am pleased Andy is feeling better but if it was me "I would burn those logs that gave Andy all those problems 😉 )

Thanks for the boost you will have given others going on to that treatment 😎

Tom "Onwards and Upwards" xx

Hi Ted

That is encouraging to know, good luck with your appointment and thank you for the information.

All the best

Andrea

Hi Mavis

Thank you for your message, it is a strange thing to get my head around but yes, hopefully I won't need treatment too soon.

Best wishes

Andrea

Hi Ange

Like everyone else I am sorry you have had to join us. It is very confusing that MM is such an individual disease and it is sometimes particularly confusing if you have high para protein levels but still don't need treatment yet. This will be because you haven't any organ or bone damage. I do hope this situation lasts for a long…[Read more]

Dear Dai

I'm glad you have the emotional energy to take up your complaint this time. So many of us let it go because we can't face the effort needed.

I think some of the weakness inb the system, which allows things to be so dirty, is the division between nursing and cleaning staff, and the division between cleaning staff and staff who…[Read more]

Nor I am afraid to say Tina I could eat all day and half the nite when I was on CDT, still can Lol.

Its not moaning Tina its just an Ask and thats nevet to much trouble for us 🙂
Hope the back pain is soon sorted and you can start that eating lark again 😎

Love and "Gentle" Hugs

Tom "Onwards and Upwards" xxxx

Hi Vicki and Colin

Your both more than welcome, and I bet neither of you can wait for that "Click" to being and feeling better 😀

As for the Painting well that has been always down to my young bride (Elaine) i do the ceilings and leave the rest to Elaine 😎

You ought to get Colin to Video you painting and put it on your tube ha…[Read more]

Hi Ozzy

Nice to hear from someone in South Wales! Yes, I go to the Royal Gwent Hospital. Glad to hear you are doing so well! Thank you for your kind message.

Best wishes

Andrea

Hi Jean

Thank you for your message, I can see that everyone here is so kind and helpful which is very reassuring. Wishing you and your husband all the best.

Love
Andrea

Hi Andrea
Sorry you had to join us but you are in the best place. My husband was diaganosed 6 years ago with smouldering myeloma, he was being checked for something else. He just started CDT in June and has 3 more cycles to go before STC. Andrea I know its difficult not to worry (I'm the best at that) but we had a great 6 years, doing things that…[Read more]

Hi Kevin

Sorry to hear you were diagnosed too. Good luck with your treatment. For me it is a waiting game until I need treatment and I have no idea how long that will be! On the positive side I have some time to prepare and am thankful I was diagnosed so quickly.

All the best
Andrea

Hi Tom

Thank you for your kind message, I am from Newport, South Wales and go to RGH so would be interested if anyone else is from this area.

Best wishes
Andrea