ange replied to the topic Diagnosed this week in the forum Newcomers 13 years, 10 months ago
Hi Eva
Thank you for your kind message. It is helpful to know that I can contact you and great to hear how well you are doing.
With best wishes
Ange
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 10 months ago
Well Dai And Janet
What a roller coaster you two have been on.
Am sure you can do "Battle" with them Dai and win (mental note nevet to let them know about my stash lol)
I remember being in Castle Hill during SCT days and I had to remind them to throw me the odd Anti Sck pills my way, I asked if they could not put them in my lock up and I…[Read more]
tom replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 10 months ago
Hi Gill and Stephen
Hows things this week end I hope you have both enjoyed it as best you both can 😀
Hope things have been good I just thought i would look in and see how you both are, thinking about you both
Love and Hugs
Tom "Onwards and Upwards" xx
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 10 months ago
Hi Vicki and Colin (see the shattered bit has gone8-) ) or it will soon
Nice to hear Colin has ate a meal (hope it was a stodgy pudding?)
Tell Colin to stick with it I also had all the above and am sure more? but some time down that blomin long line of I just cant be assed I felt it all click into place and just woke up one morning knowing I…[Read more]
tom replied to the topic Diagnosed this week in the forum Newcomers 13 years, 10 months ago
Hi Andrea
Sorry you had to join our merry band of MM'ers.
Its a scarey world at the moment for you am sure but it will all fall into place as the time/treatment kicks in 😀 any thing you need to know just ask if you want to have a rant and or rave please feel free as it will all help to have the bottle top off and let it flow out.
Where…[Read more]
ange started the topic Diagnosed this week. in the forum Newcomers 13 years, 10 months ago
Hi, I am 51 years old and was diagnosed with asymptomatic myeloma this week after abnormal blood tests for an unrelated GP visit. My paraprotein level is 37.1 and my bone marrrow biopsy showed 12% plasma cells, skeletal survey was fine. I will be having 4 weekly blood tests and clinic appts and was told that I will be started on chemotherapy when…[Read more]
BADGER replied to the topic New to this in the forum Newcomers 13 years, 10 months ago
hello Jacquie
S0 Sorry you have had to join this forum the diagnosis must have been such a shock for you which I dont think anyone truly gets over
the tingling in his hands can happen to a lot of people when having the chemo is he on Dex if so that is what cause the sleeplessness its a very common side effect if it gets too bad he must tell…[Read more]
mhnevill replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 10 months ago
Dear Gill
Like everyone else I am sending good wishes and prayers for you and Stephen. I am so sorry you are having such a difficult and distressing time. I do pray that you find some solution soon. Bless you for your courage.
Lots of love to you both.
Mavis x
mhnevill replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 10 months ago
Hi Dai
Do hope, that at last, you are really beginning to feel you are winning. I am so sorry that you have been fighting the staff as well as the condition. Why does it have to be so difficult. I often think we would be better organinsing our own meds!!
Best wishes and all my love.
Mavis x
mhnevill replied to the topic Next stage in the forum Treatment 13 years, 10 months ago
Hi Tina
Have a lovely holiday – you deserve it. I do hope the weather is kind to you.
Lots of love as you prepare for the next stage of the journey.
Mavis xxx
tom replied to the topic Revlimid exhaustion in the forum Newcomers 13 years, 10 months ago
Hi Dilini
Am sorry to say but I think all the meds and even just the MM makes you weary tired, and the only advice I can give for your Father is rest when his body tells him to rest and not fight that one, do when he can and it will all take its course in your fathers road to remission.
Good Luck on that road.
Tom "Onwards and Upwards" x
tom replied to the topic And the GOOD news is in the forum Off topic 13 years, 10 months ago
Morning David
Sorry your treatment has had a bad start 🙁 am sure it will all fall into place as it rolls on.
Shame you are past that treatment David as it cleared my work mate up and he is now "Cancer Free" and doing great.
Hope you get the advice you need on tues as am sure its worrying when you get two differant stories on your up and…[Read more]
OutdoorsPaul replied to the topic And the GOOD news is in the forum Off topic 13 years, 10 months ago
Hi David
Sorry to hear the recent news,you are such a strong person and have lots of character!;-) .Its time to deep deep again and Vasbyte my friend.
Paul
tom replied to the topic Hello again to all in the forum Treatment 13 years, 10 months ago
Hi Jacqui
As most folk on here will know about me is I dont ask Q I am not sure what type I have am the one that if the Dr is smiling then am Happy 😀 its wrong I kknow but it works for me.
Godd Luck on your trial. and dont worry about how often you log on here its for you to use as and when 😎
Tom "Onwards and Upwards" xx
jmsmyth replied to the topic Next stage in the forum Treatment 13 years, 10 months ago
Hi Tina
Hope you have a lovely break. And good luck for your next step. Kep well
Love Jean
OutdoorsPaul replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 10 months ago
Hi Gill & Stephen
So sorry to hear about Stephens on going problems,just to say that I am sending lots of positive thoughts to the both of you.Take care with all the driving Gill.
love PaulX
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 10 months ago
Hi Vicki and Colin
Long Long Day for you both? it just shows how the bloods run amoke at time then settle down.
are they putting the chemo into Colin too fast?? I think if they slow it down a bit its less side effects?? its worth a ask.
Give him My best when you get up at 5.
Love and Hugs
Tom "Onwards and upwards" xxx
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 10 months ago
Its been a few days My Friend and I am just popping in here to see if they sorted you out? Take Care and get better soon
Tom "Onwards and upwards" x
tom replied to the topic And the GOOD news is in the forum Off topic 13 years, 10 months ago
Hi David
How is your treatment doing early days I know but just wanted to wish you well at the start of it.
Tom "Onwards/Vasbyte and Upwards" x
tom replied to the topic Next stage in the forum Treatment 13 years, 10 months ago
Hi Tina
Get yesen orf Girl you will love it, have a great time and dont bother with rock for me just bring yourself back all rested and full of beans ready for the SCT
Love and Hugs
Tom "Onwards and Upwards" xxx