Hi Tina

Well that surly isnt your bestest moan?? and as for the weakness I went on sick after my second round of CTD and stayed of for a year I still dont feel a 100 % but am happy with that do as much as you can and rest your body has been poisoned with the drugs, still do as your body tells you and rest when needed but we do need exercice to…[Read more]

Hi Ali

Am sure your Mum loved that sneaked in Hug 😉

😀 Your Mum is realy doing great 😀 I bet your fealing better after the chat with the Nurse, those devils do make us poorly but they sure know how to make us better and be "Onwards and Upwards"

Another sneaky Hug for your Mum

Love
Tom "Onwards and Upwards" xxx

Hi Elfriede

A warm welcome to you.

I have been on a plane many times since my SCT and would do again yes my body is weaker and I get tired but hey I was put on this Land to party and Holiday (work is a bit of a bore)

I say if your fit and the Dr says its fine get yourself off and Enjoy it 😎

Tom "Onwards and Upwards" x

Hi Folks Thanks for that I cant wait (spose am gonna av to though 😛 )

Jo you know how to make a man Blush I can tell you he he
Etta its getting control of my nerves for the camera tomorrow 😉
Eliz Elaine and I are going to newcastle to have fun and it just happens I will have an audition for Deal or No Deal 😛 and whilst I am doing that…[Read more]

Good luck Tom

we know you are a star any way even if you dont get on it
Big hugs Jo x

Hello Elfriede
I have travelled a bit since being diagnosed in Jan 2009 I do not have bone damage but my kidneys are only about 15% We have been to Jersey Ibiza
grand Caneria and Skiathos I always get doctors permission to travel and full health insurance from MIA travel and take some anti B's with me I am always careful while on holiday we have…[Read more]

Hi Tom

Thought you were kidding when you said you needed character references,lol:-) fancy that if I had known you were serious I would have given you a glowing reference.

Any way good luck Tom although you do not need it,I hope you have ordered your mm tea shirts,if I am correct the show is based in Bristol lots of mm members around there…[Read more]

Thanks Helen I hope you are right as it has made a real difference to Frank – hope it is not a one off. He actually went out down to Marks and Spencer's. I will let you know what Ellen says.

Ta
Jean x

Thanks for that Tom. I have emailed Ellen to ask her. If I don't hear from her I will try our nurse. The only thing is Frank is so much better today than he's was by taking them early in the morning. Will see what they come backe with.

Thanks Michelle will phone tomorrow

Love jean x

Hi Michele

Am sure we could fill the room from MMUK he he xx

Hi Jean and Frank

Well I have done well I found my spread sheet when i was having my CTD and it has times I should take the tabs on a day as follows :::::

1) Granisetron, 1tab at 8 am and one tab at 8pm every 7 days

2) Cyclophhosphamide, 10 tabs at 8am every 7 days

3) Dexamethasone, 10 tabs at 8am and 10 tabs at 11 am dyas 1to 4 and…[Read more]

Hi Jean and Frank

Cant answer the Q you asked but Frank just might be like me and Loves to sing when first awake He he.

Love one singing "Onwards and Upwards" xx

Well Thanks jean

I have to admite i have two character refrences that to be honest nearly made me weep I did not know who it was He he.

Not be long Hope I get on and spread the word about Myeloma 😀 "Big Telly"

Love
Tom "Onwards and Upwards" xxxx

Hi Deborah
it does sound strange that your mums consultant did not offer an opinion,but I suppose if the trials are on offer at this hospital,it could be seen to either not supporting the trials,against his own believe.So I think your mum has to be very careful here.
If you go to the home page there is MUKS three trials,plus if you type trials…[Read more]

Hi Rachael

Nor I know about PP thingie's av said if my man is happy am happy 😎 and it has worked for me Lol.

Dont know if you use Face Book but a fair few on here use it http://www.myeloma.org.uk/patient-services/discussion-board/general/facebook/ my pickie has changed but am sure you will spot the fat (ish) face lol

Love
Tom…[Read more]

Michele My Young Bride (Elaine) tells me that and she and you are correct Bloody MM plays havoc with your own common sense am afraid to say 😛
Hope the steam soon helps and you are clear to hear again 😎

Tom "Onwards and Upwards" x

Hi Rachael

Thats great news it all sounds like it is falling into place 😀 and great to hear Kidneys are improving.

I think its a case of making do with the side effects if its clearing a big bit of the MM.

I hope your Mum and Dad enjoy the well deserved holiday 😎

Love to you all

Tom "Onwards and Upwards" xxxx

Hi Ali and Mum

See it gets better 😀 I was told that they would make me sick before they made me better and they did on both counts, and your Mum will be the same.

Give Mum a Hug from me

Love and Hugs to you all

Tom "Onwards and Upwards" xxx

Etta Good Luck with your Line Tomorrow and Hugs sent your way also xxx