Hi Deborah

What a dilema, I thought the consultant could/would advise which way to go?.

I wish your Mum good Luck in the difficult decision.

Love
Tom "Onwards and upwards" xxx

Hi Mavis
Yes i read jets blog/post,she is truly an inspiration and provides insight into my next step.
cheers Paul

Hi Lynne

So sorry to hear of John's passing, but you must, at least, be glad, that, at last, all his suffering, so bravely borne. is over. Like others, I am so glad you had a special four weeks at the end.

Do be kind to yourself in these coming weeks. You have been a wonderfully supportive wife and now it is time to let family and friends…[Read more]

Hi Paul

So glad to hear the SCT is over and relitively trouble free. As everyone says, do keep free from other folk's germs and hang on there for that break in October.

All best wishes as you wait for your Alo transplant. I have been interested to hear of Jet's progress since hers. Do you read her posts? You are brave souls.

Mavis x

Hi Andy and Steph

I am glad that the second opinion led to a better feeling. At least you were listened to and have been given some options for the future. I'm really glad you got the reassurance about the pp levels as they can be a bit terrifying can't they.

Very best wishes.

Mavis

Hi Vicki

I have only just finished six rounds of CDT, this week, and am not going on to SCT. I am feeling tired and a bit sicky. but at least food tastes better. I just wish I diidn't have some problems with my teeth which IU am getting sorted out.

I also have some pain in my back – where my myeloma also started. (I had to have a tumour…[Read more]

Hi Pat

Welcome to the forum from me too. Waiting seems to be a regular feature of coping with Myeloma. I do hope that, after this next week, you at least know whether you are coping with myeloma or not. You will then be advised about appropriate treatment. This is when, if it is myeloma, friends on here will really be able to help with…[Read more]

Hi Rach

Welcome from me to the forum. I am 67 yrs ans haven't gone down the route of SCT, but have just finished six rounds of CDT. I was interested in your post because I also had cancer of the uterus, but again, with no conection with the subsequent development of myeloma. I am very impressed by your Mum's resislience and the fact she is…[Read more]

Hi Only me

I have been wondering how things were,take what ever is on offer to get you through your mums death,it is a sad thing to say,but you have a year ahead,of birthdays and lots of things knowing your mum is not there,everyone of us tread this path,and I hope knowing your mum is free from pain makes it a bit easier,it,s your Dad who now…[Read more]

Hi Ali

To me this is were the hard work begins,your mum is going to feel great about coming out,and if she is not careful will over do it.This is were she needs looking after,I found it easy to do a bit of a chart,she will be coming out with lots of tablets to take at different times,plus she needs food and drink put in front of her,does not…[Read more]

Hi Rach

I see you have got some good posts to read 🙂 and am sure it all helps, you wont be able to stop your Mum doing her bit but she will need to rest up and let her body heal.

How long was it before I got fit?? and 10% to be Honest Rach I aint 100% but am good enough 😀 but when I felt Better and knew I was better 😎 would be about…[Read more]

Hi Rach

Sorry to hear about your Mum but a warm welcome to the forum, it will am sure give you and your Mum plenty of advice and help.

My treatment was 5 cycles of CTD then SCT in december 2009 and am pleased to tell you I am in remission and drug free 😀

How is your Mum now? is she at home now??
Ask anything you need to ask and honest…[Read more]

Hello Only Me

I am pleased to read you are getting stronger and your Lovely Mum had the send off that she wanted.

I also has some Counseling just after my Stem Cell Transplant and like you found it a great help. would i do it again? too true i would would i tell people that it worked for me too tue on that also so if you need some more go…[Read more]

Hi Lynne

You are so right re "[u]try not to feel guilty thinking you could have done this or you shouldn't have thought that …. it's a hard road, we can only do our best."[/u] as My Young Bride and I have said that many a time we do the best "At that Moment" and we promised each other we would not say WE/I should not have blas bla as its a…[Read more]

Hi Lynne

I am so sorry for your loss,this Myeloma is a hard road to take,and John,s seems to be harder than most,the last few weeks must have been some of the saddest days tinged with lots of love and memories,my thoughts are with you,and I hope,that as time passes all the good memories will makes you smile.Love Eve

Hi Pennie and Andy
It is nice to hear you are sounding a bit more positive.Do not forget any problems with AA appeal,I hate to say it but things are going to get worse before they get better,sometimes the chemo takes so much out of you.
I had to replace white carpets with laminated flooring,I will let you guess why.:-|

The more chemo and…[Read more]

Hi Vicki and Colin

Well I had CTD then SCT in 09 was feeling weak and tired during and and even when having no treatment, even today I still get tired easy some days and some days I am spot on 🙂 dont get me wrong I cant do a run (dont think I ever could though he he)

Am sure if bloods are OK then Colin might be same as me and just plain…[Read more]

Everything crossed Wendy for Thursday. You are one Gutsy lady. Whatever you decide – enjoy.
Helen I have been to Venice twice I just love it – a beautiful place and would love to go back – enjoy

Love Jean x

Hi Michele
I to am similar about the clothing I have used while being in hospital,even thoe its been through the wash its the associations they have.I am sure that it will wear off in time.Taken the dog out this morning with my wife Rachel and have now spent at least 3hrs snoozing!Where we live is quite rural so there is little public…[Read more]

And you I John got you on Face Book now 😀 And Wow it looks like the place will be awash with MM tee shirts Dai.8-)