KerryDowell

  • Dear Lynne

    I am so sorry for the loss of John to this awful disease. And reading your posts of John's journey, you are so right to be proud of him. Lynne I really don't know what to say but just to let you know that I will be thinking of you in the weeks to come. Tom is right – you had years of good times to remember. My sincerest condolences…[Read more]

  • tom replied to the topic A Final Plea in the forum Side-effects 13 years, 10 months ago

    Hi Keith

    Well you have some good answers so all I can say is Good Luck with it all on monday and hope you get something sorted, for me i had no problems re diabetes then or thankfully now.

    Keep fit and good luck

    Tom "Onwards and Upwards"

  • tom replied to the topic Home after SCT in the forum Treatment 13 years, 10 months ago

    Hi Paul

    And a welcome home 😀 16 days is good same as mine 😎
    Keep germ free and fit (ish) and good Luck in the road to recovery.

    Tom "Onwards and Upwards" x

  • Dear Lynne

    I am so sorry to hear that John has Lost the Battle with Myeloma.

    Over the years you have been a strong Lady in this Group helping others with strong words of wisdon and kind caring ones at all times, and that Strenth you had will help you get through your sad loss.

    I am sure I dont have to say it but feel i want to and that is…[Read more]

  • jmsmyth replied to the topic Recently diagnosed in the forum Newcomers 13 years, 10 months ago

    Hi Alan what a lovely post. I am so glad that you are in remission, your journey with this awful disease is inspiring. My hubby is on 6 cycles of CDT – he is coming to the end of the third – halfway there. If everything goes ok they will start STC.

    You sound as if all your support networks are in place. Good luck and long long long may…[Read more]

  • Hello all
    I am back home after my SCT which took 16 days,I seem to have got through it very well with no real sore throat issues and only a little bowel problem.I did get the obligatory infection/high temp which got upto 39.5 but antibiotics dealt with that.
    I was given 2 bags of platelets to assist when my body count was at its lowest…[Read more]

  • Hi Gill

    So glad for you both,hope Stephens sight comes back,Very tough place to have lesions,they can do wonders these days,and I can say they would not have done it,if there was chance of more damage,
    As for the jag well what can one say,I have looked at those cars and my own personal thoughts are so rude an extension of a personal part8-)…[Read more]

  • Gill absolutely delighted with your news. 🙂 Was feeling a bit down but when I read your post – cheered me up no end. I'm glad the wizard is working magic And Stephens pain eases considerably and quivkly and he can enjoy driving his Jag

    My best wishes to you both

    Love Jean xx

  • eve replied to the topic Starting Padimac trial in the forum Treatment 13 years, 10 months ago

    Hi Helen
    Who has not introduced her self,my name is Eve and I am a carer,have to say MY GOD,33 and pneumonia in itu leg op,and you thought you had a bad knee,you could laugh if it was not so serious.

    One good thing being based in London gives you lots of scope for trials plus the best treatment that is available,
    I have just come on to say…[Read more]

  • eve replied to the topic A Final Plea in the forum Side-effects 13 years, 10 months ago

    Hi Keith

    I wish I could help you but I cannot,I know Dex does not help sugar levels,plus I know since Slim has been on chemo his cravings for sugar are unbelievable, never touched sugar before,do I put him on a fad food diet,!!!,my attitude is what ever he will eat,cannot afford to loose any more weight:-S

    I know all about green tea,green…[Read more]

  • tom replied to the topic My Mums SCT in the forum Treatment 13 years, 10 months ago

    Hi Ali

    Your Mum is doing great so far (dunt look like it but Mum is dong well) its still up hill for your Mum but will get easier as the days,weeks flow by.

    I needed anti sick tabs for weeks after my SCT just couldn't keep anything steady.

    Give your Mum a Hug from me as like most here we have been through it.

    Love and hugs

    Tom…[Read more]

  • Dai My you do sound (and i know its silly to say) better than you have on the other posts 😎 I also am gonna use the "Mystic Jo" if ever i feel ill 😀

    Good Luck with the new Tabs and hope the little beggers are soon Flushed away Lol.
    Am sure we would all love to see your "New" Goatee 😎 so will a photo be posted?

    Keep Flush and…[Read more]

  • tom replied to the topic Waiting and worrying in the forum Newcomers 13 years, 10 months ago

    Hi Pat

    A warm welcome to you.
    First I must say Moan if you need (we alll do at times, cept Eve that is 😛 )

    Its a wait and see am afraid but I was seen fairly fast when Bloods were dodgy so hope yours is soon sorted out.
    and as has been said if it is the MM am sure it will soon be sorted out like mine and many more 😎
    Enjoy your break…[Read more]

  • Pat,try and relax and have a brilliant weekend. Enjoy!
    Love Jean xx

  • Hi Pat
    Welcome to the club no-one wants to join. Sorry you find yourself here but you are in the right place for support and to rant and rave if you want. You are not a wuss and dont apologise, it is a worying time for you. Although my husband has had Myeloma for 6 years he has been smoulding and has just started treatment. I'm still a novice…[Read more]

  • eve replied to the topic My Mums SCT in the forum Treatment 13 years, 10 months ago

    Hi Ali
    This is the hard bit,you mum will sleep a lot,take a book to read,if the clothes are soiled just get the nurses to throw them away,this is were your mum will feel if she is loosing control,very emotional for her,the nurses understand,but expect a few tears,you keep your chin up,tell your mum she is through the worst,the nurses should be…[Read more]

  • tom replied to the topic Hereditary link???? in the forum General 13 years, 10 months ago

    Hi Michele

    Resurect what you need to as am sure some of us Old Hands have forgot about them :-S I asked my Consultant about this as I have three grown up sons, I was told that no hereditary links have been found (at the moment) but I told My Son's if you have symptoms like mine or ones i talked about over the years keep your eye on your Dr as…[Read more]

  • Hi John
    I shoved your link on Face Book am sure you wont mind ?? take a look here its my page http://www.facebook.com/tom.lappin.5 if you aint got a page you realy should open one up as your chip shop ?

    Tom "Onwards and Upwards"

  • Na then John

    Yes I do remember that song Lol and am sat here humming it now he he,well done with the Elvis theme 😎

    I would watch those two Staff that are going to do a Tandem Sky dive as am sure they must be nutters lol (I dont do heights)
    Its great for it all to happen and throw some money into MM and inform lots of people about MM and…[Read more]

  • tom replied to the topic Second opinion result in the forum General 13 years, 10 months ago

    Hi Andy and Steph

    Its Looking good and even a plan if it starts to fail (but we know it wont) I hope its a long way off before you need the SCT.

    Elaine (the young bride) and I are going to Newcastle next thurs (16th) for my Audition for deal or no deal 😎 scarey aint it Lol.

    Good Luck with it Andy.

    Tom "Onwards and Upwards" 😎

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