Well done Jo 😎 you just might get dai on the straight and narrow again (i can hear Dai saying "not before time")

Good Luck with it all Dai am sure you and yours are well and truly fed up to the back teeth with it:-(
The pain is bad enough but when you are that washed out its bloom harder to cope with but as i have said before you my…[Read more]

Hi John

And what a read, sounds great to me but you are gonna be very busy so good luck on that and a well done to all your staff that are giving the time and wage they would have collected (you must have some good un)

Good Luck John and stay well 😎

Tom "Onwards and Upwards"

Hi Keith

Well we get meds to make us better??? but those in turn make us Ill with something else (strange world this is)
BUT am pleased you have got somthing to help. good luck with the dex 🙂

Tom "Onwards and Upwards"

Hi Dai
I would agree with you about the infection,hope you are taking a sample when you see doctor,you have to find out which one it is.:-P

When Slim was discharged from Kings he was given 200 paracetamol,bit of a shock to be given so many,as you cannot buy more than 30 over the counter,get depressed enough,they might help.:-(, I do not take…[Read more]

Hi Wendy

Good for you that's the way to go;-) Eve

Hi Gill and Stephen

Your man sounds like my man never seems to have a day off ? I know when I was at the start of mine he phoned me way past 8pm and gave me advice and came back to hospitla to take my femoral line out so I could go home.

I hope between him and the wizard soon sorts out the pain, you know we all have fingers crossed and…[Read more]

Hi Mari

Glad you had a lovely holiday,and Steve,s feeling a lot better,just what was needed,when we asked about going away it was a complete no no,but are own personal circumstances would have taken over any way.

So on Wednesday I will look out for a tall man who looks if he has moth eaten hair lol,you tell Steve to look out for Slim the…[Read more]

Hi Dai

How are things going!!!!

At least you have had some good sport to watch,why you are feeling off colour,I just hope it was in your own home and not in hospital with a high temperature.:-(

Slims in today in the day unit,they are taking his line out at last!!!although his platelets are only 50 I think it is a good thing. Eve

Hi Andy

Slim says that why worry about it if you cannot change it,and he sleeps like a baby,it's me up in the middle of the night:-/

It,s the unknown that is worrying,I am sure once you go,you will feel more assured,have you far to travel!!!
Although Slim is on trials ,it was worrying to see no progress and very worrying,watching other…[Read more]

Dear Gill

You know we are all thinking of you in this bad time,so have a go all you like we do understand,you are in a position were no one wants to be in,and we all just feel for you Gill.

I hope the radotherapist can easy Stephens pain,I cannot imagin how you are coping with that,they can do wonders these days,they have machines that can…[Read more]

Dear Gill

You have nothing to apologise for, that's what the forum is for. I know if I didn't rant I would go mad. I hope the 'wizard' can work some magic and help ease Stephen's pain. I know it's hard to watch someone you love in pain but I hope Gill that things get easier for Stephen and that you can take things a bit easier. My thoughts are…[Read more]

Hi Ali
Am pleased to read your Mum is doing Ok as for the sore mouth keep on using the mouth was more than they say (when its empty they will give your mum a new one ) when your mum has a spare min and or nips to the loo get that mouth wash used 😀 Oh and keep taking the anti sickness tabs often :-/ . The water intake I just couldn't do it…[Read more]

Hi Nicola,

Definitely do the skydive….I did one about 18 years ago (!) and absolutely LOVED it! I would do it again, but I'm not sure anyone would sponsor me now as they know I can do it. I didn't stop smiling from the minute I jumped until about an hour after I'd hit the floor (standing 🙂 )

Go for it!

Debs x

Hi Judd,
I don't live in London, but in High Wycombe and have family and friends in London.
I would definitely recommend the Under 50 that Scotty and Phil run, but I'd stay on here too…they both have lots to offer!
Not everything is inevitable so try to keep positive – though I think that is harder when you are first diagnosed, it becomes…[Read more]

Hi Charlie,

I think everyone has pretty much covered things and I even wondered about not replying! But I thought I would say good luck with the Myeloma XI trial and tell you how well it has worked for me.
I got randomised to revlimid and had 4 cycles of that which brought my pp levels from 50 down to 28 – then I plateau'd. I was gutted. I…[Read more]

Good luck with it Nicola!!!

I know how hard it is to organise these things so well done to you for doing it and I hope that you raise loads and have a great time at the same time.

Debs x

Dear Gill,

I am really sorry that you are reaching this difficult time for you and Stephen. Like Tina has said, I hope that you are able to make the most of every minute with him (and that the short temper isn't too horrendous).

Thinking of you
Debs xx

Dear Gill

I can only say again what the others have said (but not as well). I just wanted you to know that you and Stephen are in my thoughts and prayers. I send you love and hugs as well and please know that you have lots of friends here that have you in their hearts

Love Jean x

Lol yes it would help if the details are posted also lol.

all great here Nicola thank You and yet again its sunny in Sunny Scunny 🙂

Tom xx

Hey Gill

Denial is Ok but am pleased the 14 specialist are not in denial and are on it, but what did they say??
As for the temper thing I also am like Stephen I genually dont have one BUT have told The Young Bride (Elaine) that as and if it comes to me losing the plot so to speak I certanly dont mean what I say.

I also cant give you that…[Read more]