Morning Vicki and Colin

I hope you both slept well? Four Injections per day sounds good enough.

Hope all goes well stay strong.

Love to you both

Tom "Onwards and Upwards" xxxx

Hi Vicki and Colin

Sorry its still not worked out and I do feel for you and Colin, we all want it to happen yesterday when we try and Mobilize the cells and not drag on longer 🙁

When I had my GCSF's I had two injections every morning is Colin having two injections or just the one??

Sending Love and Hugs for you both.

Love
Tom…[Read more]

Hi Vicky
Sorry things have not gone to plan,at least you know he might be able to try the other injections so do not get to down.
As for the Hickman Line,Slims went in on the 23 April and its still in!!!!! originally they said it will not come out until his platelets are over 75,and they are only 50 odd.Its just the flushing through every week…[Read more]

Hi Charlie

I live not far from Dover and my husband is treated at local hospital,we are lucky that we have the trials in SE Kent.Slim had to go to Kings for his Stem Cell Transplant it is the nearest for us.
I can only tell you the care was excellent,they are very experienced,and have some of the top myeloma specialist it seems to me a good…[Read more]

Hi Tom and Helen

I know people fall into different degree,s of MM and Slim started off in a very bad place,It still took time to get AA plus disabled badge,Which I thought at the time was bad.IT did eventually come through,and helped us in many ways not as an extra perk,but money spent making like a lot easier for Slim.

As a lot of you know…[Read more]

Hi Eve

I get nowt zero zilch I am just pleased my company has gave me a job I can do and that brings in some money 😎 oh got blue badge and a bus pass and am only 57 years young :-0 the bus pass gives me free yep free train fare from Scunthorpe to either Cleethorpes or the other way and that is as far as Doncaster:-D and free bus rides :-D…[Read more]

hi Scott

glad to see you are ok did you have a good holiday in spain, is the golf going well. I chose to go the vein way if i have to (fingers crossed i can hang on) because they said i could be trained to used the machine at home so I though 4 days off was better for me
Keep well:-)
Love Jo x

Hi Tom
Just a quick question do you get DLA.???
Were would we be without your cheerful face,I am sure you are going to be one of the lucky ones and still going down to your club until your 100 years,They might give you free drinks by then .Love Eve

Hi All

Eve I applied for AA in 2009 whilst I was still bald(er) and still having treatment not long after my SCT mine was refused :-S and I thought How Bad do I have to be to get AA if I am diagnosed with a terminal Cancer and they say No Thanks you can walk and cook Etc Ext >:-(

But trust me Folks that Pension Will be mine am not letting…[Read more]

Hi Michele

A warm welcome to your Forum.

And you have been through it all and on your own well done. and you and hubby are correct positivity is best (well it is for me).
Good Luck and may your remission be a long one 🙂

Tom "Onwards and Upwards" xx

Hi Michele

Welcome to the Forum! Your experieinces will be valuable to others. Thank you for being willing to share.

I'm glad that your treatment has been successful. I do hope that this period of remission will be a very long one. As you say, it takes a while to realise, that a diagnosis of Myeloma isn't an instant death threat. I am…[Read more]

Hi David and Charlie
may be i should have said you are entitled to apply for AA,but you have to make sure you fill the square boxes with square pegs not round ones,8-)

Attendance Allowance is what it says if you need someone to attend you because you can not do things for yourself,may be just in the day or during the night.there are 2…[Read more]

Hello Dee

I was admitted to hospital with pnuemonia and renal failure and what turned out to be MM i had cdt from the start and it was touch and go with my kidneys i did not have dialysis it may come in the future but at the moment my kidneys function between 15 and 20% I have been in good partial remmission since april 2009 as long as your…[Read more]

Hi Di
The person I was thinking of goes under Clucky,so if you find the posting it should tell you a bit more about his treatment,its his wife who does the posting Eve

Hi Paul
The smell is enough to put you off sweetcorn for life,the funny thing was Slim could not smell it.
Eat as much as you can as it will not take long for you,to go off food and drink:-(
Lots of under wear you can just through away,its just so much hassle trying to drag you drip to the loo,so if you can get enough fluid inside you,it will…[Read more]

Hi all
Thanks for the kind words of support,well it happened yesterday as planned and the smell of sweet corn followed.
I am unsure if there is a second batch in cold storage at this moment in time ,they used 8 bags so I suspect I got it all back but I will ask.I am struggling with internet connection but will up date when I can:-D
cheers Paul

Hi Tina

Do hope you have a great holiday. All best wishes for your SCT. Do let us know how you get on.

You may remember that I am not going down the SCT route so have had six rounds of CDT. Just 13 days to go and i am finished. The treatment has worked its stuff and my bloods are normal, first time since diagnosis, and PP undetectable.…[Read more]

Hi Kevin

I am just finishing my first, successful CDT (six rounds!) Certainly, I concur with you, leave the bif stuff off for as long as possible, especially as first CDT obviously did good for you.

All best wishes. Let us know how you get on. I think it is so important that we run our treatment regime not our Consultants. Fortuately, I…[Read more]

Hi Paul

I haven't posted for a while either, but I am delighted to hear that, at last, you have made it to SCT. I do hope and pray all goes well and that it leads to a very long and healthy remission. Glad you got a break before the treatment.

All very best wishes.

Mavis x

Hi Gill
Have to reply this way as no E mail address,So glad things are as well as you can expect them to be.
Hope you manage,what you both have planned.
You were just constantly in my thoughts with not posting,and you often see on here people just fade away.
Due up at Kings on the 8th.Not looking forward to the journey.EVE