BADGER replied to the topic My Dad-cycle 2 in the forum General 13 years, 11 months ago
Hello Jen
good news about your dad lets hope this is the start of a better time for him give him my regards
Love JO X
eve replied to the topic Proper fed up… in the forum Side-effects 13 years, 11 months ago
Hi Dai
Well one time I would have just done as I have been told,I have had Slim in to hospital twice since he came out on the first on June,both times raised temp,plus visit to DVT clinic,his nuets and plates are still below normal ,so I think best save than be sorry.:-P
I was told if he is ever sick bring him in:-S ,well if i took him in every…[Read more]
tom replied to the topic Revlimid in the forum Treatment 13 years, 11 months ago
Hi Pennie and Andy
Well 12 years is good am expecting to beat that with my first SCT that I had in 2009 😀
After what you both have been through am sure you will cope pretty good to be fair.
Good Luck to getting Andy back into remission
Love Tom "Onwards and Upwards" xxxx
Dizzyliz replied to the topic Time for a laugh in the forum Off topic 13 years, 11 months ago
Hi min,
Ah Ah that was good! 🙂 🙂 🙂
Liz xx
tom replied to the topic Proper fed up… in the forum Side-effects 13 years, 11 months ago
Hi Dai
Well you sure are fighting this bugger the hard way.
I do hope you soon get the drugs well into your system and they stop beggaring you about.
I think you are correct doing your tem more than the once before going in as am sure it will change through out the day.
Hope the temp is still col and you keep fit My Friend
Tom…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 11 months ago
Hi Mari
Yes just the three hours (or was it 5 hours ?? al aks elaine lol) on the bed and got enough (nearly for two) but the beggers put them into three bags instead of two so I was given the lot and i think that why I have done so well I had more than most of cells shoved back in that the fight was easier for me?? 😎
And Honest I have…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 11 months ago
And a Good Afternoon Etta
Well done you girl its good to rest.
Just remind me Etta when is your transplant due for??
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic How long before I start to feel 'normal' in the forum Side-effects 13 years, 11 months ago
Hi Tina
Well how long is a piece of string?
1) the weakness well am sure that never leaves you fully :-S or that just might be iccle ole me ??
2) Bloating? mine soon went down (cept me belly lol) when I came off the Dex 😀
3) indigestion and 'burps'? well my young bride will tell you that I have burped and trumped all the way through…[Read more]
tom replied to the topic My Dad-cycle 2 in the forum General 13 years, 11 months ago
Hi Jen#
great news on your Pa 😎 and am sure pa will have a lot of the fatigue over the time and to be fair it aint left me for long before its back and tells me to slow down :-S
Hope your Two Boys are soon better also
Love
Tomm "Onwards and Upwards" xxx
jmsmyth replied to the topic Time for a laugh in the forum Off topic 13 years, 11 months ago
Good one Min. Made me laugh but makes
Me think that someone has been in my house making notes!!!
Love Jean x
jmsmyth replied to the topic My Dad-cycle 2 in the forum General 13 years, 11 months ago
Good news on your dad Jen hope he goes from strength to strength. Hope boys start to feel better soon.
Take care
Jean x
jmsmyth replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 11 months ago
Eve so glad your daughter enjoyed Wimbledom and winning a trip to the Bahamas – fantastic. Well done her. When will she be going ? She deserves a good break
Live Jean x
eve replied to the topic Revlimid in the forum Treatment 13 years, 11 months ago
hi Pennie
You do not say how old your are,your husband is entitled to Attendance Allowance ,it is not subject to how much money you have,plus you might be entitled to carers allowance!!!.Worth seeing about .
I cannot help with the REV.but you have coped with other treatments,my husband is retired,but I do get concerned about him driving,so I…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 11 months ago
A Warm Welcome Home Etta, and a well done n ow for the SCT 😎
Love
Tom "Onwards and Upwards" xxx
eve replied to the topic Smouldering myeloma in the forum Newcomers 13 years, 11 months ago
Hi Beverley
This is just a welcome to the site,and hope you keep on smouldering for many moons.
By being diagnosed early,it means they will keep a careful eye on you,learn as Much as you can ask Ellen for books on it.
My husband went full in to MM with a lot of damage,and we do not know how long he had it.
So my advice is learn as much…[Read more]
eve replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 11 months ago
Hi Mari
Amazing we are 70 miles down the road,and had nothing but sunshine all day,a bit windy,I watched my daughter sitting in Wimbledon with just one quick shower,It came down at my other daughters nr.Dover in sheets,but did not rain much 9 miles up the road.:-S
I think they do have different polices on different wards,as Slim was in Davidson…[Read more]
tom replied to the topic Update on kev's treatment in the forum Treatment 13 years, 11 months ago
Hi Liz, well am pleased I make you all smile 😀 and after hearing Kev's reply to you am sure he is like me anyways "anything for a quiet life" Lol
And Andy and all you other MM'ers am sure you dont want to follow my advice?? as you will all need a new Liver? what with all my drinking "Beer,vodka and not forgetiing my Red Wine"8-) but hey ho I…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 11 months ago
Good afternoon Etta
And how did we do today 😀 Hope you got enough for two (not that you will need two 😎 )
Get them all in freezer in small bags.
Love and Hugs
Tom "Onwards and Upwards" xxx
tom replied to the topic Proper fed up… in the forum Side-effects 13 years, 11 months ago
Hey Keith
I am on nothing,zilch at the moment but I tell you M8 I have been that fatigued (my word for fatigue 😉 ) i find it hard work to walk the bloomin Yorkie Lol, but most days I am spot on 😀 , energy levels have dropped a fair bit since getting MM I need more sleep than I did before? I ache more I??? hang on that could just be my…[Read more]
eve replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 11 months ago
Hi Everyone
The procedure working up to a sct differ from hospital to hospital.
Slim was like Steve,s we travelled up from Deal that day and got back at 8pm.
Slim did his own injections,we did stay up in Kemsing for the harvest as it took 2 days,Slim found it tiring he was dosed up with Calcium through a driver,because of feeling sick.
At…[Read more]