eve replied to the topic Starting Padimac trial in the forum Treatment 13 years, 11 months ago
Hi Judd
How are things going,I see you did not get many reply,s I know Andy G went on them,plus another person.
I have bumped this up to the top.so if more people see it you might get some reply,s let us know how you get on .Eve
eve replied to the topic Kyphoplasty in the forum General 13 years, 11 months ago
Hello Myra
Welcome to the site,
You have listened to the doctor,s what do they say!!!!!
My husband is the person with Myeloma,and he has damage to his bones but no compression on the spinal cord which is a good thing.If he was in danger of compression he would not have much choice.As for pain yes he is in pain,and has strong pain relieve,his…[Read more]
eve replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 11 months ago
Hi Jean
Lets hope so,some one on the net said blackmarket asking £45,000 for tickets,but you would have to use a forged passports as they check ticket belongs to person who enters.
2 0f my daughters always put in for tickets and have done well each year.
This is the best though.Eve
jmsmyth replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 11 months ago
That is great Eve she deserves it and I hope she has a brilliant time and that at the end she has something to go wild about!! Murray winning Wimbledom —- WHOW
Love jean x
tom replied to the topic PLATELETS in the forum Treatment 13 years, 11 months ago
Hey well done that Slim (and Eve 😉 )
Its been a long old haul for you both am sure :-/ but you have both done it with grace and am sure the odd cuss word (but thats Ok it helps8-) )
Hope the Pl soon rise and line is whipped out.
Love to you both
Tom "Onwards and upwards" xx
tom replied to the topic Some good news in the forum General 13 years, 11 months ago
More Good News is great news 😀 and lets keep that rolling.
Well done Eliz and Wendy now thats the way to do it 😀
And Eve you know us men come first :-S and lots on us on three month stints now, all you young ladies are going to run faster to keep up with us oldie's Lol 😎
Love
Tom "Onwards and Upwards" xxx
eve started the topic Tickets for Wimblendom. in the forum Off topic 13 years, 11 months ago
Hi Everyone
This is off topic,
My daughter has tickets for the men,s final at Wimbledon, 7 rows from the front,not up in the gods,she is so excited,and its so nice to see a smile on her face with all the sadness that she has had. Eve
eve replied to the topic Some good news in the forum General 13 years, 11 months ago
Hi Ladies
Great to hear all the good news,but as per usual were are all the men!!!!!
jmsmyth replied to the topic Some good news in the forum General 13 years, 12 months ago
Read your good news on face book Wendy. Brilliant news. Long may it continue
Jean x
BADGER replied to the topic Constipation Dex/Rev in the forum General 13 years, 12 months ago
Hello Kieth
When I was on Thalidomide it was awful I took lactolose that worked for me you can get it over the counter from boots Good luck:-P
Love Jo x
eve replied to the topic 50th wedding anniversary in the forum Off topic 13 years, 12 months ago
Hi David
How about renewing your Vows,I should imagine as you got marries 50 years ago,things were hard,Do it in style,a lovely day to remember.Eve
jmsmyth replied to the topic Myeloma changed in the forum General 13 years, 12 months ago
Ha ha. Thanks Eve. My son said he would give me a ream of paper and I can bring it into them. Should put me in credit for some time 😛 will ask for them next time
Jean x
eve replied to the topic PLATELETS in the forum Treatment 13 years, 12 months ago
Hi Helen and Tom
Well he is holding his own,went down to 61.4 now 62.2 so not to bad.
As you can guess from his name ,he has always been Slim,he looks very healthy at 12st 8lb.But 9st 8Lb gives no room for any extra that might come his way.
My thanks to you both,for your support,it does look if he has turned the corner,had bloods taken…[Read more]
eve replied to the topic Myeloma changed in the forum General 13 years, 12 months ago
Hi jean
Just a quick reply.
There should be a notice some were that tells you ,you have every right to see results of test,and bloods are test.Next time get 20 pence out of your purse and give it to them and shame them,how dare they not give you a print out!!!!!!
At the moment I know the results by phone but every week or so I ask for a print out,Eve
BADGER replied to the topic Of Carfilzomib… in the forum General 13 years, 12 months ago
Thanks Tom
A big (((hug)) to yoy too;-)
Love Jox
tom replied to the topic PLATELETS in the forum Treatment 13 years, 12 months ago
Hi Eve
Well I lost lots of weight and it stayed off for MONTHS but it came back and has been slowly climbing to above my pre MM weight 🙂 but I am told by my Dr that it would help if I lost a little bit (and here is him sat with a belly as big as mine lol) (((nearly)))
Small plates and steady as Slim goes no rush it will come back Trust me…[Read more]
jmsmyth replied to the topic Myeloma changed in the forum General 13 years, 12 months ago
Hi Eve
Thanks for that. A couple of months ago I asked for a print out and was told they were not allowed to print the results – saving paper!!! So i just make a note of them in Myeloma diary. They said bloods were ok haemaglobin 13.5. Said light chains had changed a bit. Now that I know a bit more I will be more demanding. I remember one of…[Read more]
tom replied to the topic Kyphoplasty in the forum General 13 years, 12 months ago
Hi Myra
Well I haven't had it nor needed it but from what I gather its fairly straght forward and the benafit outways the risks?? or so I believe, just wanted to wish you luck in your choice and wait to see who has and who didn't and why ?
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Bristol SCT in the forum Treatment 13 years, 12 months ago
Hi Stephen
Sounds are Good and the choice is Good but you will need (soon) "Dont stop me now" when your Dash has started he he, then for a time you will want "Silent Night" as you will be sleepy.
Stay bug free and hope its not long before you are out but the day before you could play "Please release me" ha hx
Tom "onwards and Upwards"…[Read more]
eve replied to the topic Myeloma changed in the forum General 13 years, 12 months ago
Hi Jean
Well you know about Slims bloods plus kappa light chains!!!,the bloods only give an indication of the cells,If you ask for a copy of the bloods every time you go,its states the results if they are out of the band they should be in it will show you.This way you can keep your own watch on them.
Eg haemoglobin 9.2 g/dl (13 to 18 )…[Read more]