mhnevill replied to the topic Morphine Side Effect in the forum Side-effects 10 years, 3 months ago
Hi Jeffery
Well, by default you have had to take things in your own hands. Sometimes though, I feel it is best. Can you tolerate something like Tramadol till you can build up to your original morphine dose?
All best wishes.
Mavis
mhnevill replied to the topic Remission no 1 is over in the forum Treatment 10 years, 3 months ago
Hi Anthony
Sorry you have come out of remission so quickly. A real bumber. I do hope that Velcade does suit you and foes get you into a full remission without PN.
Very best wishes.
Mavis
mhnevill replied to the topic It's lonely, feel like we don't know in the forum General 10 years, 3 months ago
Hi John
Sorry your Dad has been having such a bad time. It sounds as if the chemo is doing the trick. The problem is, following remission, is that improving mobility depend on getting supportive physiotherapy. I have re mobilised twice from MM and four times following hip operations. It isn’t a bed of roses, but you can improve whatever your…[Read more]
mhnevill replied to the topic Following " is it progressing" in the forum Newcomers 10 years, 3 months ago
Hi Susie
So sorry to hear you have progressed to full blown MM. Although you must have known it was a possibility it doesn’t stop it been a body blow.
Sorry to hear you have a plasmacytoma on your spine. How are they going to treat it? Are you to have an operation? I had a plasmacytoma removed from my spine four years ago. It was then I…[Read more]
ange replied to the topic Increasing Thalidomide to 100mg in the forum Newcomers 10 years, 3 months ago
Hi Den
I am on my 6th cycle of CDT and take 100 mg Thalidomide, it was reduced to 50 mg on cycle 5 because of side effects but I wasn’t responding so now back up to 100 mg. I would go along with what the Consultant suggests, your husband will be carefully monitored. Dex makes me rather talkative too! Best of luck with the treatment, hope your…[Read more]
ange replied to the topic Off to hospital today! in the forum Off topic 10 years, 3 months ago
Hi David
Hope all went well for your operation and hope you recover soon in that 70% success group.
Best wishes
Andrea
ange replied to the topic Short break from CDT – now on 5th cycle in the forum Treatment 10 years, 3 months ago
Hi Mavis
Thank you for your message, lovely to hear how well you are doing. I think my treatment is going to take a bit longer now. After completing cycle 5 my paraprotein has now gone up to 20.5, this was on a reduced thalidomide of 50 mg so I am now back on 100 mg for cycle 6. They would like my paraprotein to be in single figures before…[Read more]
eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Dear Helen
What’s ironing lol!!!
Debs started the topic Small things lead to big things! in the forum Off topic 10 years, 3 months ago
Hoping that some of you might think about helping me out? I know my fundraising posts are often passed on here, but I’m not asking for money…just support!
I got diagnosed in 2009 with myeloma and am lucky to be 3 years in remission post SCT.
To celebrate I am using my 40th year to raise awareness and money for Myeloma UK by doing a ’40 C…[Read more]
Debs replied to the topic Is somebody trying to kill me? in the forum Off topic 10 years, 3 months ago
Hi David. THat is not good news. Although Maureen is right that revlimid has been said to have a tiny chance of increasing the risk of secondary cancer, skin cancer being one of the ones that it is more likely to do this with. That said, I have always said that whilst there is a chance of that, I’ll take that chance given the benefits it offers.…[Read more]
eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Hi Helen
Dog is fine just an old man the vet said,not to feed him on are rich food,but he does like smoked salmon and scrambled egg plus bacon butties.
Legs collapse every now and then,will not leave house when Slim is very ill,would not go out yesterday,but today went to beach be it all 15 minutes.
Gammon steak in a cheese sauce tonight!!!!. Lol.
eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Thank you,for all your thoughts.
I very seldom leave Slim now,he has to be good before I think of going even to get a paper,today the district nurse came to change his driver and 2 carers came so I popped out with the dog,he knows he has to do a super fast pooh. Lol.
I have agreed to a hospice nurse for tonight!?, coming at 10 pm going at…[Read more]
eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Hi all
As I am on thought I would let you know what is going on in are lives,hope it’s not to frightening but it does not seem like this to me.
Slim is on palliative care,plus we have two carers coming in 4 times a day,plus district nurse to do driver,I have back up medican and I often have to call the district nurses out any time,they work 24…[Read more]
eve replied to the topic Tom? in the forum Off topic 10 years, 3 months ago
Tom
It’s all that gallivanting and beer drinking lol!!!?
Go for it Tom,make the most of the time ,this is what every one should be doing,a bit of a rest will do you some good. Love Eve.
G&T for me please.
tom replied to the topic Tom? in the forum Off topic 10 years, 3 months ago
Hi David and all you others.
Yep am still here lol, and I wasnt an SCN ha ha.
Hope your doing good David as we are at this sunny end 🙂 yes as Jean says bloods taken last Friday and results today:-)
Bit of an update on me seen as am on the forum.
Myeloma came back December last year (i got four years remission from SCT #1) was put on Velcade…[Read more]
eve replied to the topic Newcomer just diagnosed with multiple myeloma. in the forum Newcomers 10 years, 3 months ago
Hi Dick
I know,I can always remember thinking,I wish I had known that at first,we try to cram all this information in and it is hard,Slims consultant was very good at answering my questions with ” don,t worry about that” hindsight is a wonderful thing! And the best place to come for knowledge is here on this site,there is always someone in front…[Read more]
eve replied to the topic Newcomer just diagnosed with multiple myeloma. in the forum Newcomers 10 years, 3 months ago
Hi Bryn and all the other new comers that have joined this post.
We all approach the news of Myeloma differently ,we were just glad we new what it was!!!!
Then you get all these books and you are having to make choices about things you do not know anything about,you spend time reading a book,but it’s hard to understand at first.
As Dick says…[Read more]
jmsmyth replied to the topic Tom? in the forum Off topic 10 years, 3 months ago
Hi David
Not sure about Tom posting on forum (not on much myself) but he’s been posting on Facebook. I know he had bloods taken last week and sees consultant on Thursday. Will post on Facebook that you are asking for him. Hope things are good for you
Jean x
eve replied to the topic Is somebody trying to kill me? in the forum Off topic 10 years, 3 months ago
Hi David
Yes someone is trying to kill you!?, your body!
When it gets to this stage do you find it’s just something else to add to the list????
Slims was a SNCO Richard so that explains every thing,cannot see him repenting he is to stubborn!!!!
His own doctor came to see him yesterday as his dosage in his driver is very high,plus backup…[Read more]
mhnevill replied to the topic Losing dad after 19 years of MM in the forum End of Life and Grief 10 years, 3 months ago
Hi Hmj
I am so sorry to read of your Dad’d passing, but it is obvious he fought this dreadful Mm to the last.
It was generous of you to post at this sad time, because as Tony says, the story of your Dad’s 19 years will be an encouragement to so many of us.
I am sure that you will have inherited your Dad’s strength and determination to make…[Read more]