tom replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 14 years ago
Hi Judd
A warm welcome to you sorry you had to nip in, now lets hope they can nip your problem's in the bud and get you into remission soon.
Is the road Long? is tit a hard road?? I dont know you seem to have had it bloomin hard already 🙁 Its not a walk in the park but I had my SCT in December 2009 and am now in remission.
Good Luck on…[Read more]
jmsmyth replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 14 years ago
Hi Jo
Hope things go well tomorrow at the clinic, I know what you mean about worrying. No matter what people say to me I get so up tight before we go – lets know hw you get on. Franks back is giving him merry hell. We did mention it to consultant and she said to wait and see how he is when we go on Thursday. It took her 14 months to find out…[Read more]
BADGER replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 14 years ago
Hello Jean
How are you and Frank coping is it getting any better for him and you has it stopped raining in NI we have a fine day today for a change went for a little walk today got the kidney clinic tomorrow always a worry. Hoping to go to the IOW in a couple of weeks if all ok.
Love Jo x
BADGER replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 14 years ago
Dear Judd
Welcome to this site
what an horrendous time you had I know the chemo will be difficult but neccessary can they do anything for your back I think when you feel a bit better there are certain operations you can have thank the Lord someone recognised your symptoms good luck with your treatment
Regards Jo x
eve replied to the topic Channel 4 documentary in the forum Side-effects 14 years ago
I think you would be better putting your posting Off Topic as People on here are living with Cancer,not dying with it!!!!!!:-P
eve replied to the topic New Need to talk in the forum Carers 14 years ago
Hi Teresa
How are you coping ,this must be a very hard time for you,are you managing a little free time for yourself!!!!!
I take it you have told all the family the position now,and you and your girls are coming to terms with what is going to happen,but still looking forward,to the birth of your Grandchild.Also the walk down to the botton of…[Read more]
eve replied to the topic New myeloma suffer – would like to meet other suffers in the forum Under 50s 14 years ago
Hi Judd
This is just a welcome to the site,I have read your posting and cannot help you much,Its my husband with Myeloma and he had the usual treatment of CTD then Velcade with DC which is part of Myeloma X1 trials.
May I suggest you get in touch with Ellen the nurse and she might be able to put you in touch with someone who goes to the same…[Read more]
jmsmyth replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 14 years ago
Judd
What a terrible time you have been through and so young. I'm sorry to have to welcome you to the site but you are in the right place so WELCOME. Although I have been a member of the forum for many years -6 to be exact – hubby diaganosed early – he has just started treatment past two weeks CDT. So I'm not experienced to give a lot of advice…[Read more]
Judd1 started the topic Starting Padimac trial. in the forum Treatment 14 years ago
I am a newly diagnosed myeloma suffer, and I will be starting a Padimac trial as my treatment plan followed by a stem cell transplant.
I am under University College Hospital, MacMillians Cancer Center, London.I would like to know about what I can expect during this treatment, side effects etc from anyone who has done the trial. The treatment…[Read more]
Judd1 started the topic New myeloma suffer – would like to meet other suffers. in the forum Under 50s 14 years ago
I have just been diagnosed with Myeloma, I am 40 years old and feel quite isolated. Apart from coming to terms with my new diagnosis, and life changing events including the inability to walk unaided and having to be taken out via a wheelchair, chronic pain, fractures in my spine etc etc.
I am sure there must be other out there feeling the same…[Read more]
Judd1 started the topic I am newly diagnosed with Myeloma. in the forum Newcomers 14 years ago
I have recently been diagnosed with Myeloma a depilating cancer which attacks your plasma cells and in turn destroys your bone marrow. Within 4 months (since February) this year having just turned the rip young age of 40…. I was just like everyone else without a care in the world, accept for a few bad spells of back pains, tiredness, and aches…[Read more]
eve replied to the topic Hickman Line in the forum Treatment 14 years ago
Thank you all
You have eased my mind,and my daughter tells me they will be able to take it out in Canterbury,so no long journey back to Kings.
I was worried about it coming out,as Slim had such a bad time of it going in,he said no way were they going to replace this one if it became infected,:-( It seems his vein thinned out and they had to…[Read more]
tom replied to the topic Keeping up appearances in the forum General 14 years ago
Wendy as a "mere Male" that is (well so am told) Bald on Top I am not in a position to advise on Curls or waves Lol.
Tom xxx
tom replied to the topic Hickman Line in the forum Treatment 14 years ago
Hi Eve and Slim
Well I had a "Femoral" Line fitted and had it taken out on day 15 the day before I came home and all my bloods were OK, That said I was going to Castle Hill every week till my 100th day and some folk had the Hickman line in most of the 100 days that I attended? never thoght about asking why that thing stuck out the top was doing…[Read more]
eve replied to the topic Hickman Line in the forum Treatment 14 years ago
Hi Wendy
Well this has got me thinking,!!!
Slims was put in on the 24 April,then my |Grandson passed away,so he came out of hospital and was readmitted on the 13 may,and came out on the 1 of June.
Officially he is under Kings for 100 days but having bloods and platelets at local hospital.
We have been back to kings to see consultant,but…[Read more]
eve started the topic Hickman Line. in the forum Treatment 14 years ago
Hi Everyone
One quick question,Slims has had his Hickman Line in since the 24 of April,which I have to say is very handy for taking bloods,It took over 4 hours to get in,and now I am wondering when it will come out!!!!:-S
I noticed on David,s Musing his was taken out before he left hospital,!!!
Can any one tell me when there,s came out.:-P Eve
tom replied to the topic Help please sore abdomen after SCT in the forum Side-effects 14 years ago
Hi Gill
Welcome Home I bet you were fed up
You are correct its better for you when they find something ? anything to put a name to it:-/
I see your eyes have got bad? some times I feel mine aint as good as they were? Youing Bride (elaine) tells me to go and get new glasses but I aint due for an eye test till next year:-0
Keep strong…[Read more]
tom replied to the topic 3 litres a day in the forum General 14 years ago
Morning Dai and all
Well done on the trip a double wammy 😀
But its a shame when you book time away and get or feel ill.
You now know you can do it so am sure its going to be the MM way? "Little and Often" 😎
Tom "Onwards and Upwards" x
tom replied to the topic Keeping up appearances in the forum General 14 years ago
Hi Girls
Eve keep your eye on Slim's facial hair when it grows back, mine sometimes I grew a Pencil tash like in the old movie's (or so am told lol) just a thin neat line grew all on its own, but my hair grew back darker with a lovely wispy curl Lol and gosh was I pleased to get rid of that lol.
Helen I wish you luck with the Blond bit but…[Read more]
eve replied to the topic Keeping up appearances in the forum General 14 years ago
Hi Helen
For your husband it must be great,waking up to a different woman beside him every week:-)Eve
Bald dark grey then blonde LOL
I usually have my hair very short,because I do not like sitting in hair dresses,last time they just were too scared to cut enough off,so now with this wind i look if i have been dragged through a hedge…[Read more]