Hi Siobhan

I have only just read the sad news about Bridget. Like others I have already shed some tears and will undouboutably shed more. I owe a great deal to Bridget. She was such an encouragement to me when I was coming to terms with being diagnosed with MM. Her posts, not just to me, but to everyone, were so helpful.

It was obvious…[Read more]

Hi Helen
Are you going to post a picture,I think you will look good as a blond!!

Slim has lost his Denis Healy eye brows,and still has no hair to shave with,he says it,s coming back as bum fluff!!(I think that,s what he said:-P )

I must admit,looking forward to Slims hair coming back,he has always had a good head of straight hair,but I…[Read more]

Hi Well Friday was an easy day,bloods in the morning then waiting for the call to go back in for platelets.It never came,so rang up,Slims platelets have gone up to 26,still boarder line,but they decided platelets not needed.

Have another appointment on Monday,same again bloods,so we will see what results,that brings.

Can anyone tell me when…[Read more]

Hi Onlyme

As Tom said cat nap it does work,It is hard,and your Dad does not sound if he is coping well,The house can wait,i think you need to take your Dad on that walk with you,he is trying to be brave for all of you,you cannot help your mum much but you can help your Dad,come to terms with what is going on.

It is exhausting,but you will be…[Read more]

Happy New Hair Cut Helen, I hope Blondes have more fun you will have to let us all know Lol.

I used Oillatum on my skin and still do 🙂 but what it wants is a good few days of sunshine 😎
Catha Lata Blondie 😀

Love Tom "Onwards and Upwards" xx

Hey Only Me

Keep going Girl I know its hard and I feel harder for the Carer/watcher than us with MM, as while we are confined to bed we can sleep.

I hope the walk done you some good but please look after yourself also, you dont want to find yourself too Ill to visit, am sure its difficult to sleep but the power nap is also good for you half…[Read more]

Hi Vicky and Colin

Well I see as normal you have had some great and honest answers 😀

Just to add a little bit more The treatment I went through from start to this day was for me "Pain Free" except when I was having the growth injections I had pain in my rib cage and that was intermittent for I think four days.

And Like Helen said…[Read more]

Dear Avis
I do admire all these people who go the extra mile,it is so nice the firm you work for is making Myeloma there charity of the year.

I find it takes me all my time just to function and I am just the carer.

I wish you well Avis .Eve

Hi you two
I can only say take the chance you have been given,Slim and I were very unsure,one because his own consultant thought Slim had to much damage to his lungs.So at the end of the day it had to be Slims choice,I would never have forgiven myself if I pushed him,and he died.

He has now had his SCT,and he said it was not as bad as he…[Read more]

Great news Avis

Well done for getting that done – the charity is amazing so I think they deserve every penny we can raise for them!

Take care
Debsx

Hi there

I'm not surprised that you're nervous, but hopefully we can all help to relieve that a bit!

Firstly, my consultant said that the % is more like under 1% and that is the case with most hospital procedures that are of significance.

I had my SCT a year ago, and Tom is right, it isn't nice,but you get over it…it's a bit like…[Read more]

Hi you two

Your more than welcome I and Elaine(the young bride) knows all too well how bad BUT how good its been for me, and as for the "Red Stufff" yep am partial to that its good for the MM 😀 and yes the Vodka is even Better for the MM 😎 drink too much and you forget you have it Lol.

Keep strong and live life with a smile

Love…[Read more]

Hi Vicky and Colin

Wow what a rush now?

Well to answer one of your Q's I had my SCT in dec 2009 yes it was hard but and this I mean if it fails would I do it again Too true I would 😀 yes its hard yes its a long time in the "Getting Better" Dept but well well worth it 😎 because I sit here now two years and six months down the line in…[Read more]

Hi Only Me

I am so sorry to hear your Mum has got more to fight than MM and trust me Girl its Ok to feel down at times like these.

That said I do wish and pray your Mum has longer with you all and is up for the fight, as always we never know what is around the corner.

Keep strong and tell your Dad i am sending prayers for your…[Read more]

hello Scott

hope you had a great holiday in Spain I am sorry that your light chains have gone up fingers crossed its only a blip
keep well
Love Jo x

Please do not worry about feeling down,this is were you should come when you do,as we all understand and lots of us have been in situations that have been very difficult.
A year last Easter Slim was in ITU,we actually got married in ITU so that in its self explains how bad things were,he still tells everyone I married him when he was full of…[Read more]

That is very sad news for you and your family,I would say you have done the right thing in not telling your mum,but if she starts guessing i would tell her as,she might have things to say,that need to be said.

We tend to try to protect the person that is ill,but sometimes its good to talk about it,as you find out what they would like,I know…[Read more]

Hi Scott
Sorry to hear about the lightchain readings going up,but you are right we just need to carry on fighting and getting on with our life.Hope you had a great time in Spain and I will keep my fingers crossed for you.
cheers Paul

Dai
All that sounds like a wonderful heavy day,you must be very proud,as an event like that takes a lot of organisation and lots of hard work.

I wonder how these wonderful people find all the energy to do all these events,my Son in law has just done a support driver for people who cycled to Lands End from Canterbury in aid of Cancer plus…[Read more]

Hi Carol
Thanks for the lovely post,your horse looks huge! you must certainly have got some strength to ride him and the weather looks good to.
lots love Paulxx