Thanks Dia
I have just joined their web site its so interesting
Love Jo x

Hi Terry
I would agree with all your thoughts and what a beautiful picture of Scotland.
You have to keep positive,and enjoy every day.Eve

Hi Chris
A belated welcome to the site,one minute you have everyday living and in the next minute you have joined the club as a carer.

In my mind Myeloma is a dreadful thing,your life does get taken over by it,we do hear of some people who sail through treatment,and go on to live as normal as possible,but we all have the knowledge that one day…[Read more]

Hello all
Took the dog out of a walk yesterday and today for 1hr and my legs are starting to feel better.Seem to have put on some Dex weight on again I feel like a budha.
Inst it amazing how the sun and wind on your face just makes things better:-)
cheers Paul

Hi Paul

Pleased your doing better M8

The thing that helped me when I was weak when walking was a "Shooting Stick" ? I was lent it by a Neighbor when he seen how bad i was walking it has a seat on it I just carried the scick and when needed popped open the seat and had a rest it was great, so if you can find one get it works a treat.

Good…[Read more]

This is an article from Cancer Research

http://info.cancerresearchuk.org/news/archive/cancernews/2011-11-27-Scientists-identify-first-genetic-link-to-myeloma

My understanding is that we may have something that genetically means we are more likely to get myeloma than other people. BUT, there is some unusual stimulus (and they still don't know…[Read more]

Hi Jo

Glad that you are having a bit of a break from appointments and doing well. Do you live close to the hospital? We are fortunate that it inly takes about 20 minutes to get there. So if we have a long wait we just come home.

Frank has been on lots of medication, injection and Dex – tomorrow last day for Dex till Friday. Not sure if…[Read more]

Hi Paul
sounds like things have gone ok a little gentle walking should help with the legs I do hope you can get away for a few days
Keep well
Love Jo x

hello Jean
Nice to hear from you I am doing ok at the moment the next breath holding moment is in july when they check my para's the next app in June is just to check Hb levels etc to see if I need any blood. How is Frank doing are they giving him anything for the ribs although I expect the dex will help a bit although it will not help with the…[Read more]

Hello All
Got out of Hospital late Friday night after 5 days in hooked up with 3 IV lines.Side effects wise just the usual Dex hiccups and feeling abit tired first thing in a morning.Taking things a little easy this week as 5 days on the ward have made my legs like jelly.So its fingers crossed ! Feeling positive again about meds and…[Read more]

Hi Andy
I know how hard it is to remain positive,but it has started to go down,very slowly but it is in the right direction.When Slim was on Velcade it was awful waiting,he had to have 4 cycles before they would take a BMB,as bloods and light chains were considered un reliable as they were not showing a true reading,and on top of that the…[Read more]

Hi Eve

So glad that Slim is home and hope every day there is a big improvement. Take care
Jean xx

Hello Michelle,& Shirley, Thankyou for your replies at the moment were taken each day as it comes, I think we're both remembering the rest week off dex with a big groan! Are we ready for this? No but we are both keeping strong.

Love liz& kev xx

Hello Dai, wel what can I say Tuesday 4 hours wait for a 5 sec injection! Friday 2 and half…[Read more]

Hi Chris

Sorry you have had to join us, but there is great bunch of people here. My husband started CDT yesterday after smouldering for nearly 6 years. He has to take Dex for 4 days – this is second day and I,m wondering how long it takes the side effects to take in. Frank has 2 lesions on his ribs and is going to see radio therapy consultant…[Read more]

Hello Chris
sorry you have had to join us here it must be a very difficult time for you and your husband dont be upset if your husband gets really grumpy and depressed this is the DEX talking I found it very difficult to handle I took mine in the mornig with yogurt which made it easier to swallow I took the last dose of Thalidomide before I went…[Read more]

Hello Jane

A warm welcome is extended to you and I wish you good luck for your ongoing trip with MM.

I also was on CDT as my first Line of treatment then had SCT and Zometa Infusion every four weeks for my Bones.

Hope to hear more from you soon

Love
Tom "Onwards and Upwards" xx

A Warm Welcome Home Slim 😀 gosh now then when I got home I at first found it scarey being out of hospital and not having a Nurse with me But I got over that pretty fast.

And Good Luck in your road to recovery Slim, If I remember correctly I was about a good two months before I felt the "Gosh Am Better" feeling and that was one great great…[Read more]

Hi Everyone

Well he is home.Frail and bald with a good weight loss.so the time has come to build him up again,other wise buy a new set of cloths:-P

The journey down took 4 hours with a stop on the way,have to go back up on Thursday,and also have to go to Canterbury Hospital on Sunday and Wednesday.
He is busy writing his board out for all…[Read more]

Hello Dai, really happy for you and Janet it sounds like you got a good informative and understanding medic, what great hospitals we have access to in nottm:

Hope you both have a great bank holiday weekend!

Love liz & kev xx

Dear Happy Chappy 🙂

If your Consultant is Happy and you are Happy and more important if Janet is Happy then am Happy.

Its good to feel comftarble with your Dr and feel he/she is listening to you and your problem

Keep up the good work Dai

Tom "Onwards and Upwards"