Hi there,

My husband Sam has Myeloma and was diagnosed 2 years ago aged 35.

Hi dad sadly passed away from Myeloma, either 10 or 11 years ago, I can't remember exactly how long ago as we weren't together at the time.

He was 58 when he died, I haven't asked a lot of questions about his dad to his mum and Sam was in the RAF and away a lot…[Read more]

Thanks for your reply Vicki. We were at hospital today and told all about CDT. The side affects scared the life uut of me. Have to pick up the medication tomorrow and start this journey. Then radio therapy consultant on Wednesday. Didn't realise that it is up to that consultant as to wether Frank gets te radio therapy. I just want the pain to go.…[Read more]

Hello Dai, Thankyou for your post last night as always I love reading your posts and I do relay them to kev.
I have just read this morning posting which makes interesting reading, kevs steroids have kicked in so wide awake at 3 o'clock this morning so now trying to catch up and get ready for velcade injection tomorrow, I thinks he's glad it's a…[Read more]

Hi Vicki

I found your post recradio therapy very infotmative. My hubby Frank, after smouldering for neary 6 years is starting CDT tomorrow for 6 cycles. I am so scared! They also found 2 lesions on the ribs and has appointment for radio therapy consultant next Wednesday but consultant says he would only need 2 blasts max. Frank has very…[Read more]

Hello Mavis, Thankyou for your kind words, I've not posted for a while, when kev went into remission we tried to get some sort of normality back, just after his sct last April he lost his mum and I took I'll so I vowed to get better and both enjoy every single day, even went on holiday to Spain last month, which is where he started feeling…[Read more]

Hi Keith

Keep fighting!!! If you were a nursing mother, they'd say take stout for the red cells – do whatever is the MM equivilent!

Best wishes.

Mavis x

Dear Liz and Kev

So sorry to hear your news, but at least the quick resonse should bring good results from the velcade and dex. I do hope there aren't many side effects and that you are able to have a good summer.

Very best wishes.

Mavis x

Hello Keith, David, Tom, & Mari,
Thankyou all for your kind words as always, we didn't get back from clinic till 6.oclock missing all this lovely sunshine but hey there's tomorrow! They said that the myeloma is presenting in a different way this time round Kappa light chains where as before it was the lot! The reason they've acted quickly is…[Read more]

Hi Liz and Kev

Well am sorry to read about Kev's results, I hope and am sure they will soon sort it out and Kev is back to strenth, am sure you will but I have to say it so "Stay strong" and Fit hope its a short blip in the road of MM

Love
Tom "Onwards and Upwards" xx

Hi KAren,

Welcome to the site. And drop Scotty an email and she will send you an invite to the under 50 site.

We're all here to help you through the early days, which can be really scary. But you will come out the other side.

Take care
Debs x

Hi Deborah

I think Dai has given you the low down on velcade. It worked brilliantly for me, but you must watch out for the Peripheral neuropathy and don't let your mum downplay it. I did and ended up with it for 9 months and needing quite serious painkillers.

It was absolutely worth it for the result, but I was worried at one point that I…[Read more]

Hi Paul….and Andy

I just wanted to say good luck to both of you with your next steps….I am sure that there are a number of treatments still out there so try to keep positive….though I'm sure it's Bl*ody hard at times!!!

Debs x

Hi Antoinette

So sorry that you have had to join us all here, but I would also say that there isn't a better place to be.
Reading your post made me think back to when I was diagnosed in 2009. I was 34 with a 2 year old and a 4 year old and it really does turn your life upside down. I think it is natural to be teary and to feel out of control…[Read more]

Hi Deborah
Welcome to the site,I think Dai has summed Velcade up.
My husband had 6 cycles and found it better than having CTD but he had a few problems with the first line treatment.It does depend on your mothers age how many injection she has in one week,the older patients (80) seem to have one injection.My husband is 67 and he had 2 injections…[Read more]

Dear Carol

I am so sorry for your loss its hard for me to imagine what you are going through at the moment and am sure you will enjoy life again just a new way with new challenges.

Hugs for you

Tom xx

Hi Deborah

I cant add to this one am afraid just wanted to welcome you and your Mum into the group but some one will pop in and sort out your Q.

All the best in the road to remission for your Mum

Tom "Onwards and Upwards" xx

Hi Keith

Well this is another new one for me? aint a clue what it is nor what causes it?

Hope its soon sorted out Keith I bet your well fed up with all this stuff. Keep strong and fight the begger like I know you will

Tom "Onwards and Upwards"

Dear Carol
I am so sorry for your loss,you do not mention if you have children,if you have they will give you the strength you need at this time.

I think you have to ask yourself would you wish him back in such pain,do not grieve for him,but grieve for yourself,he is at peace and now you have to find your own peace.You have not had much time…[Read more]

Hi Antoinette,

My name is Nicki, I am 29 and my husband Sam is now 37.

Sam was diagnosed with Myeloma 2 years ago on the 17th of May 2010 at the grand old age of 35. We had been married for 10 weeks.

Although I am not the one suffering from this terrible disease, I can completely sympathise with how you must be feeling right now, cancer…[Read more]