nickinoo started the topic Two years tomorrow…… in the forum General 14 years, 1 month ago
Hi guys!
Long time no speak, sorry I haven't posted on here in such a long time, you guys were all so supportive when Sam was sick, I had planned to visit the site regularly in a hope that I could offer some reassurance to others at the time of need, but I haven't and I apologise for that, wrongly, Sam and mine's attitiude towards his illness…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 14 years, 1 month ago
Hi Eve and Slim
Yep the smell is different am pleased Slim is doing good, I was given Anti Sickness pills when i had my transplant and was on them for about two months after.
I hope you get to Matty's Memorial Service and as for the wicked sense of humour I know where that comes from 😀
And Eve dont talk about the "Runs" just yet I…[Read more]
eve started the topic SCT Underway. in the forum Treatment 14 years, 1 month ago
Hi Everyone
Slim had harvest back last night and is doing fine,sick a few times plus hard to keep tablets down,very tired but much better than I expected,nurse has arranged a pump if he continues to be sick,plus having lots of fluids through drip. It,s the smell thar is getting to me I think it,s put me off sweetcorn for life.
I am very…[Read more]
eve replied to the topic Just back from Skiathos in the forum General 14 years, 1 month ago
Hi Jo
Glad to see things are going well for you,sounds if you had a lovely time.
Better get planning another holiday as you have another 2 months clear.Love Eve
BADGER replied to the topic starting treatment in the forum Treatment 14 years, 1 month ago
Hello Jean
sorry Franks results were not good this time but I think deep down you might have been expecting it with all the rib pain he has been having
CDT will probably stop you going abroad but you could probably get short breaks here but he will have to be careful of infections as for gin and tonics I had them all the time only one a day…[Read more]
BADGER replied to the topic Rev Failure Mk II? in the forum Treatment 14 years, 1 month ago
Dia
fight your corner I know you will not give up I have every faith in you
I agree they dont give up at the first hurdle in america they try and get over what they call blips I think in this country to many doctors are tinkering around the edge where in america they are much more focused on myeloma and specialise much more
Big hug Jo xxxx:-)
BADGER replied to the topic Just back from Skiathos in the forum General 14 years, 1 month ago
Thankyou all for the kind thoughts
Yes TOM the heating is on I am used to the injections as i had to go on insulin for my diabeties as i could no longer take the tablets and thats twice a day
David I have got some geraniums in the green house but still not sure wether to plant them out or not we had a light frost yesterday
Jean I will keep…[Read more]
jmsmyth started the topic starting treatment. in the forum Treatment 14 years, 1 month ago
Hi All
We were at the consultant this morning and I was feeling great when doctor told us white cell, Haemoglobin, Neutrofills were up, protein dropped from 28 to 23, Calcium normal, kidney function normal. We asked about CAT scan results. Frank has complained about this pain in his ribs for 14 months and got the scan 4 weeks ago. Doctor told…[Read more]
tom replied to the topic 18months later in the forum End of Life and Grief 14 years, 1 month ago
Hi Roz
Well we have moved on aint we girl 🙂 and thats Good to read 😀 reading about your help do you now have some one working 16 hours and another working 24 ? well done you if you need it and its working keep on with it 🙂
And you are doing wonders 😀 but am sad you thought about suicide 🙁 am sure you are stronger than that and…[Read more]
jmsmyth replied to the topic Revlimid Failed in the forum Treatment 14 years, 1 month ago
Dear Gill
I am so very sorry to read about Stephen and hope that there is something out there that can help him. My love prayers and hugs go to you both.
Love Jean xx
jmsmyth replied to the topic Just back from Skiathos in the forum General 14 years, 1 month ago
Hi Jo
Welcome back from me too. Glad you had a great time and I'm over the moon about your results. Long may it continue. We are off to consultant tomorrow. Dreading it as usual. With a bit of luck we will get the results of the scan that was done 4 weeks ago!!
Take care
Love jean xx
tom replied to the topic Revlimid Failed in the forum Treatment 14 years, 1 month ago
Hi Gill and Stephen
There should be a few swear words in here but i will refrain from them (I hope)
I am sorry to read about it failing its a bloomin nightmare all this MM.
I do hope something can be done to throw the blooming MM into remission or slows it down a bit till something has been brought to the forefront.
Stay Strong and…[Read more]
tom replied to the topic Just back from Skiathos in the forum General 14 years, 1 month ago
Hi Jo
And a warm welcome home (but the weather is not as hot as Skiathos though)
And you are one "Onwards and Upwards" young Lady having good reading's 😎
Enjoy the two months of no hospital its great when you are going longer with no Hospital visit's 😎 but am not sure about giving myself injection's?? but hey ho if I had to am sure i…[Read more]
tom replied to the topic Latest blood test in the forum Treatment 14 years, 1 month ago
Hi Andy
Well only posted once so far Lol.
Great news on your Bloods and if it means you eat more banana well thats great.
Good Luck on your BMB am sure it will be Spot on, and am up for throwing this MM into submission 😎
Keep strong and fit
Tom "Onwards and Upwards" x
BADGER replied to the topic Latest blood test in the forum Treatment 14 years, 1 month ago
hi Andy
that sounds like good news you can put up the the terrible BM if it proves your treatment is working keep us posted
Love Jo xx
BADGER started the topic Just back from Skiathos. in the forum General 14 years, 1 month ago
Hi everyone I have just got back from a great holiday in Skiathos it was lovely and warm but not too hot 23degs most days we had a nice hotel the food was excellent so i have put on weight as if I need it but as My good friend Tom says onward and upward had a consultant app today and what a relief all readings are stable so I have got another two…[Read more]
BADGER replied to the topic More later but… in the forum General 14 years, 1 month ago
Well Dia
you never semm to do things by halfs all or nothing a!!! glad you now seem to be on the mend and with the care of nurse Janet will pull though ok its a shame really as you seemed to be doing ever so well upto now
Love and a big (((hug)) Jo x
eve replied to the topic The next step in the forum Treatment 14 years, 1 month ago
Hi Mari
Slims on Waddington,had to change wards as beds have to be seen to be filled with bodies all about filling beds these days,after 3 hour journey made him sit round for 2hours,as you can imagine I lost the plot a little bit,it worked,next day was moved to have chemo,only given half does as kidney function not good,after not having much…[Read more]
eve replied to the topic Revlimid Failed in the forum Treatment 14 years, 1 month ago
Hi Gill So sorry about the news,can understand how angry you must both feel, Slim says if this SCT does not work he will not have any more as 6 months not being able to travel abroad and no guarantees it will work is a lot out of life,We are travelling to NZ once this is…[Read more]
jmsmyth replied to the topic 18months later in the forum End of Life and Grief 14 years, 1 month ago
Good to hear from you Roz. As Gill says it does sound that you are moving on. Glad about that. See some of your posts on FB. take. care
Jean x