Good one David. I like this one – not sure if they will post it. Hope it doesn't offend anyone.

     The  Priest's Ass
The Priest entered his donkey in a race  and it  won.
The Priest was so pleased with the donkey that he entered it  in another race and it won again.

The local paper  read:
PRIEST'S
ASS  OUT FRONT.

The Bishop wa…[Read more]

Hi Peggy
Ouch ouch ouch I hate having the bone marrows had four so far and hate it every time I also have renal failure they say I will have to start on EPO not had it yet but my ferritin is very high now so its not good to keep giving me blood my blood pressure seems to go up and down I call it white coat sindrome keep well
Love Jo x

hello Sarah
so glad to hear Henry is feeling much better its good to know you are able to get out
Regards Jo x

Hi Sarah and Henry

So glad you are now beginning a new chapter in your lives. I do hope that your remission goes on and on.

Very best wishes.

Mavis

Hi Carol

Yep Gremlins me thinks :-0 Plzd you feel better today and I hope the Nebz sorts you out better? saying that I have had a cough for years?? its the only way the young Bride can find me in a shop with the Cough Cough every now and then Lol.

Tina I think all of us that have had the "Dex" :-0 there av wrote it Dex feel the same but it…[Read more]

Thanks Tom
I don't know what happened and how my post got to the middle-gremlins in the system?
Today feels better than yesterday even though I have to do the nebulizer at the Hosp this afternoon.Perhaps my cough might go as a result– we can only hope!
Carpe Diem
Carol x

Hi Carol

First I dont know how your post has got hidden in the middle of here Lol.

And Second Welcome Home and I bet it feels strange? I know I did.
You know now that your strenth will recover it might just take a Month or two.

Keep strong and stay Fit.And long may the transplant work

Love and Hugs

Tom "Onwards and Upwards"…

Hi all,
Just catching up with everyone! It's now 3 weeks since my Transplant. On Friday it will be my birthday and also my 1st month birthday! I've been at home just over a week and am feeling very weak – husband doing all the caring ( bit of a shock for him how much I need at present ) -however I can feel a slight improvement each day and the…[Read more]

Hi Sarah and Henry

Well its great to hear AND see you are doing great. Keep it up Henry

Love to you Both

Tom "Onwards and Upwards" xxx

Hi Vicki/Colin
Yes i still feel tired but once up and about with exercise you feel much better.If i am tired i just have a snooze.I have been off work since last Aug and my employers are very supportive.
cheers Paul

Hi Vicki
AS regards managing on a day to day basis my experience has been it depends at what point in the cycle you are and what meds you are on.You and Colin should start to notice a pattern of how Colin feels taking certain meds.
I.E When I take Dexamethasone over 4 days,day 1 is ok no problems..but days 2-4 my sense of taste goes out…[Read more]

Hi Vicki and Colin
I was diagnosed in Aug 2011 after my wife and I returned from one of our regular trips to Northen Scotland,cycling,camping,hill walking sort of stuff,I am 40 years old so one of the younger end on the site.
I cant remember what my initial counts were as my head was all over the place after the diagnosis.(I…[Read more]

Hi Eve

You have really had a bad time recently. It was so sad about Matty and now your friend. I sincerely hope that things do get better for you. On the forum you sound so strong and are a friend to us all, but life has a a nasty habit of kicking us in the bum now and again. I pray that Slim's SCT goes well and the sun shines on you every…[Read more]

Hi Ann and Pete

Well I strated My CTD in Feb 2009, all went well Except I got Out of breath that I had to go on sick in the may, I was that Bad that one of our neighbors came round to see me and lent me his shooting stick ( a walking stick with a seat on it) so I could still walk the dog but when I felt weary (and i did) I just popped open the…[Read more]

Hi Min
Lovely to hear from you,glad to see you back,you were missed:-(

I have watched Reiki being done,and for the life of me i do not understand what they do,but it did work for Matty,plus a friend of my daughter who,s husband died age 38 years,it has a very calming effect,so I think bring it on,if it helps.
Stress has a terrible effect on…[Read more]

Hi Mari
Did Steve have enough stem cells or will they do another harvest!!!
Rosie my husband Slim is 68 this year and is having his first SCT starting Sunday,i think it,s not so much age,it,s how fit you are,because Slim had pneumonia which left scaring on his lungs,we thought they would say no,but they have said he is fit enough.They did decide…[Read more]

Hi Gail
I think the 3 cycle was the hardest for Slim,mainly because he was ill and we just thought it was the effect of the chemo,because he did not have a temperature, it was not picked up by our doctor or A&E,he had pneumonia and the steroids masked the infection.
So this is were you have to be firm if you think he is ill make sure they listen…[Read more]

Hi Peggy
BMB are not the nicest thing to have,but they will show what is going on with your bone marrow,because some times the kappa light chain readings do not reflect what is going on in the bone marrow.

Your BP reacts to your condition,it can go up and down if your nerves or upset,so take deep breaths and keep calm,:-P
Myeloma does take…[Read more]

The Great Lady has returned 😀

Hi Min what a thoughtful Lady you are, posting how you have and are getting through your bereavment, am sure you would make a great Couinceler for those that have lost loved ones:-D, and am sure this thread is the start and will help those that are and will go through it.

Love and Hugs

Tom xxx