mhnevill replied to the topic Thaldomide/Allopurinol Reaction in the forum Side-effects 14 years, 1 month ago
Hi Tina
Sorry you have had such a horrible complication. It's not easy this journey, is it. I'm glad you got such a sympathetic nurse to answer your call because you do feel alone don't you. Have they adjusted your doses? I believe you are on the 28 day cycle (I am on 21 day one).
I went to the consultant yesterday, for what should…[Read more]
mhnevill replied to the topic More later but… in the forum General 14 years, 1 month ago
Hi Dai
What is it about these infections that they can come on completely unexpectedly. I have every sympathy with you trying to deal with it with paracetamol although it is a complete no, no! If my experieince is anything to go by, being in a general ward will have not been a bundle of laughs.
Glad you are back home, if weakened, and…[Read more]
OutdoorsPaul replied to the topic New to the site in the forum Newcomers 14 years, 1 month ago
Hi Vicki
I was diagnosed in Aug 11 with MM the Bence jones type,if you have any questions i will try to help.
cheers paul
eve replied to the topic Another 3 months in the forum General 14 years, 1 month ago
Hi Everyone
Just Looking in,This is what we need,good news,Wendy and David,lets hope we hear lots more.love Eve
tom replied to the topic New – but feel I know you already! in the forum Newcomers 14 years, 1 month ago
Hi Rosie
Shy ? you erm well I will wait for a few more posts before I answer that Lol.
And I think you are going to do a great job with advice and help just by looking at the few posts you have made so far 🙂
Keep up the good work Rosie
Love
Tom "Onwards and Upwards"
Ps am also Shy 😀 xx
tom replied to the topic Penny Lane in the forum End of Life and Grief 14 years, 1 month ago
And RIP Dear Penny x
tom replied to the topic 2nd bone marrow biopsy today in the forum General 14 years, 1 month ago
Hi Peggy
Al Say Ouch re the BMB but if you had a little snore then good on you girl 🙂
I know all about the trepidation after having tests done am sure we all do.
Hope all is well with the Snooze BMB 😀
Love
Tom "Onwards and Upwards" xxx
Debs replied to the topic Penny Lane in the forum End of Life and Grief 14 years, 1 month ago
Hi all,
Penny's sister in law has let me know the following details for Penny's funeral.
Thursday 17th May. At 4.45pm.
It will be held at Emstrey crematorium, London Road, Shrewsbury.
Please donate in lieu of flowers to Myeloma UK, thank you.
Penny, you won't be forgotten xx
OutdoorsPaul replied to the topic More later but… in the forum General 14 years, 1 month ago
Hi Dai
Glad to read you are back home and building your strength back up.
cheers Paul
tom replied to the topic More later but… in the forum General 14 years, 1 month ago
Hey Dai am sure you didn't expect anything different, keep on keeping strong 🙂
Tom "Onwards and Upwards"
CarolBradley1 replied to the topic New – but feel I know you already! in the forum Newcomers 14 years, 1 month ago
Welcome Rosie
Wow! you sound as if you are a real seasoned campaigner – after going through so much I can understand how you might not want to go through another STC – not much fun I do agree.
Glad to hear your coping with everything in such a brave and positive way – you must have picked up lots of information and experience along the…[Read more]
tom replied to the topic Newbie in the forum Newcomers 14 years, 1 month ago
Hi Gail
Well I thought I had replied to this one?? might have gone into cyberspace?
So A Warm welcome to you and Howard, you have got the good group and you will find the folk on here very good for info and a cyber hug as and when (well even when you feel you dont need it) you need it.
Love
Tom "Onwards and Upwards" xxx
CarolBradley1 replied to the topic New to the site in the forum Newcomers 14 years, 1 month ago
Hi Vicky – that´s the very question I would like to know the answer to.
I have decided that because the cancer didn´t develop fully until I was 52 after my stem cell transplant in February it might take another 52 years to come back again!!!! (Well one can dream).
Please let us know if you do get an answer.
Cheers
Carolxx
CarolBradley1 replied to the topic Newbie in the forum Newcomers 14 years, 1 month ago
No Problem Gail I think your very brave to be coping so well.
Take care of yourself too and try and have a little treat every couple of days – even if it´s only a chat with a girlfriend or doing your nails!
Love Carol
xxx
tom replied to the topic Busy Week in the forum Treatment 14 years, 1 month ago
Hey Eve and Slim
Thoughts are with you and fingers are crossed for Slim's SCT
Love and Hugs to you all
Tom "Onwards and Upwards" xxxx
tom replied to the topic New – but feel I know you already! in the forum Newcomers 14 years, 1 month ago
Hi Rosie
Welcome to the Group, am sure you will be pleased you have made the "Plung" and wonder why you didn't do it before.
Keep strong and keep us posted in the treatment you are offered:-D
Love
Tom "Onwards and Upwards" xx
tom replied to the topic More later but… in the forum General 14 years, 1 month ago
Well we have been through the wars Dai 🙁 and may I say you cope with it realy well take in your stride and dont blame anybody (ang on am gonna read it again) erm read it again and ye am sure we are guilty of throwing in the "Its Ok it will get better" and "Biotics will soon sorth that one out" ye av done it Lol.
But seriously Dai I am…[Read more]
tom replied to the topic New to the site in the forum Newcomers 14 years, 1 month ago
Hi Vicky and Colin
Yes My Young Bride (Elaine) and I are doing great thanks, just waiting for the warmer weather to arrive 😎
Ps I think I might have something wrong with me :-0 :::::::::::::::::::::::::::::::: I dont like Golf Lol
Love
Tom "Onwards (and golf free) And Upwards" xxxxx:-D
CarolBradley1 replied to the topic Newbie in the forum Newcomers 14 years, 1 month ago
Hi G
So sorry you had to join us but there are lots of good people on this site who have lots of experience of just about every emotional and practical aspect of coping with MM.
It´s nice to know that you can always come on here and ask/say the things that maybe arn´t quite so easy with family and friends. I really have found it a real s…[Read more]
CarolBradley1 replied to the topic New to the site in the forum Newcomers 14 years, 1 month ago
Hi and a warm welcome to you both, although I´m really sorry that you had to join us.
Your quite right to be positive there are lots and lots of new and exciting things coming on line and much more developing.
I had my sct last February 2011 and I won´t say that recovery has been quick I am certainly improving all the time. Today I have b…[Read more]