brocho replied to the topic Pain of trapped wind in the forum Side-effects 14 years, 2 months ago
Hi Tina trapped wind is awful so painful!! Try peppermint cordial with freshly boiled water and rink it as hot as you can You might have to look in the drinks department at supermarket or an off-licence as its not so popular as it was Good luck hope it works it does for me love Bridgetxx
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 14 years, 2 months ago
Hi Pete
Well am sorry you had to start your treatment 🙁 to start with I will say listen to your body? yes it was only a couple of days ago you could run burn the candle at both ends and lift more than the other bloke at work BUT to be honest your treatment will take it out of you (but you will get through it) rest when your body tells you…[Read more]
brocho replied to the topic POSTBONED in the forum End of Life and Grief 14 years, 2 months ago
Dear Eve and Slim my thoughts and wishes are with you and all of your family To lose someone so special to you all must be devastating , stay strong together and remember the love you gave and were given Lots of love Bridget xx
OutdoorsPaul replied to the topic I'm back. in the forum General 14 years, 2 months ago
Andy glad to see you back on track again.
cheers Paul
tom replied to the topic Pain of trapped wind in the forum Side-effects 14 years, 2 months ago
Aww Bless Tina
Am sure that its not nice? But as My young bride can tell you I just suffer wind and its not trapped ha ha, but on a serious note I dont know what you would need to take to solve it.
Good Luck on the Burp side and burp away
Love Tom windy But "Onwards and Upwards" xxx
Debs replied to the topic POSTBONED in the forum End of Life and Grief 14 years, 2 months ago
Dear Eve and Slim
I am so so sorry to hear your really sad news.
Wishing you all lots of love
Thoughts are with you
Debs xx
Debs replied to the topic Hello to All in the forum Newcomers 14 years, 2 months ago
Welcome Jacqui
Love
Debs x
tom replied to the topic Latest results 🙁 in the forum Treatment 14 years, 2 months ago
Hi Andy
Am sure its a worry but I like Dai hope its just a blip. Its a worry at times like this but am hoping it soon settles.
Keep Strong
Tom "Onwards and Upwards"
tom replied to the topic Hello to All in the forum Newcomers 14 years, 2 months ago
Hi Jacqui
A warm welcome, I know we all will understand that its all new to you and you have gone through some of the post on here? then am sure you know we have great Folk on here that have and are going through treatment and am sure that what ever treatment you get/having some of us will have had it or be just in front of you, so when your…[Read more]
BADGER replied to the topic I'm back. in the forum General 14 years, 2 months ago
Hi Andy
sorry you have been unwell glad you are back now good luck with the rev /dex Keep well:-D
Regards Jo
BADGER replied to the topic Hello to All in the forum Newcomers 14 years, 2 months ago
hi welcome to the forum not something you would want to do but welcome have you started chemo yet or are they just monitoring you. You will get so much help and support here and a solution to a lot of your questions dont forget Myeloma uk help line they are so good and will give you good advice
Keep well:-)
Regards Jo x
tom replied to the topic itchy rash in the forum Side-effects 14 years, 2 months ago
Well what can I say my skin aint been the best I have dry skin (always have) so cant comment on it but I did have more of a body rash after sct?
Hope Henry is soon sorted.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic I'm back. in the forum General 14 years, 2 months ago
Hi Andy
Welcome Back M8 I have had that twice Infection but nothing ever found?? strange thing this MM.
Kepp strong and away from the hight temps
Tom "Onwards and Upwards"
tom replied to the topic relapse first time in the forum General 14 years, 2 months ago
Hey Sally you aint alone now you have joined our motley crew. and am sure we all know how it feels too many Q and too many forgot to ask its? put it all down on paper as the days go on and add as you come up with something you feel you need to know.
And Trust me That "Old Sal" will soon be back with a vengeance.
Love
Tom "Onwards and…[Read more]
tom replied to the topic The Big Picture… in the forum General 14 years, 2 months ago
Well mine looks Ok ? BUT is it ? Thanks Dai.
Hope ur doing OK 🙂
Debs replied to the topic Revlimid and Velcade in the forum Treatment 14 years, 2 months ago
Hi Stephen
Just to say, I think it is TOTALLY normal to be preoccupied with your pp levels pre transplant. I definitely was, and used to phone the hospital as soon as I thought the results would be in! It is only post transplant that I have now trained myself to wait until the next appointment! The reality is that pre-transplant, you know that…[Read more]
Debs replied to the topic Revlimid and Velcade in the forum Treatment 14 years, 2 months ago
Hi Stephen,
Just a quick one as I have to dash out, but I am on the Myeloma XI trial and started on revlimid. After 4 cycles I also plateau'd and was randomised to Velcade. (My pp had dropped from 55 to 28 by this point). The velcade did a similar thing…dropped quite quickly in the first couple of cycles and then slowed down. I had to stop…[Read more]
Debs replied to the topic Glitz and Glamour Ball in the forum Off topic 14 years, 2 months ago
Thanks Helen,
That's really kind of you!!! It's really lovely that people are prepared to go out of their way to help raise some money for the charity that supports us all so much!!
I look forward to getting the package!! It's like Christmas come early!
Debs xx
tom replied to the topic Relapsed and starting VCD – keen to hear from others on same journey! in the forum Treatment 14 years, 2 months ago
Hi Vanessa and Philip
A warm welcome to the group.
Cant give advice on VCD as all I have had is CDT then SCT all done in 2009 and now am drug free.
Just wanted to say Hi 🙂
Love Tom "Onwards and Upwards" xx
eve replied to the topic Related Conditions. in the forum Related conditions 14 years, 2 months ago
Hi Duncan
Sorry for not replying.
You have a lovely dog,it will be a great help to you in your recovery,as you have to take the dog for a walk and this helps.
We are based in Deal Kent,but Slim knows Bovi Sands well based in Torpoint, in 40 and 42 commando units once upon a time
I have some problems not connected with myeloma,so will be…[Read more]