Hi Ali and Mum

A warm welcome to [u][b]YOUR[/b][/u] group, its your group now so please use it, if you want advise or if you want to moan, have a winge or just shout and (nearly) Cuss about this darn MM :'-(

As for me I am 56 and had my SCT in December 2009 so this is the place to ask and ask away.

Sending you and Mom strength to travel…[Read more]

Hi Kay

I know what you mean that "The Body Kicks" when you have done too much 🙁 as ytou know am back at work (light dutie's) 5 days 6/2 every day, am just about done by the friday so 4 days sounds good as we have had a couple of 4 day weeks and that was great 🙂 money still comming in and not as weary 🙁 but hey ho its a job and its money…[Read more]

Please please don't feel like that. They are a great bunch here. I was going shopping and just popped in and when I came back you were gone!! Please post again with any worries or you need to ask anything. My hubby has smouldering myeloma and I have been a member of the new site and the old one for about – I think 3 years and have tremendous…[Read more]

What happened to the post. Was there a couple of hours ago!!!!????
Jean

Thanks Dai for your reassurance. They told Frank that if he got an infection he was to go to hospital straight away. I feel sorry for the poor man as I am watching him like a hawk. I'm waiting for him to tell me where to go!!!;-)

Love Jean x

Hi Mavis

Well I will try and find you on F/B

Words of wisdom? from me erm erm lol OK I know its scary so a few tips DONT accept any friends req that you dont know who they are 😀 NEVER EVER click on a link that they ask you to click unless its your friend and you know that its due or they have told you about and Have fun.

From One…[Read more]

Hello Mavis

I really glad you are feeling a bit better and more mobile lets hope this continues
God bless
Love Jo x

Hi Kay

Well done for taking on the challenge of the return to work.

I worry about your continuted pain. Have you asked to see the Pallitative Care Team? I know it sounds drastic when we want to think of ourselves as as normal as we can be, but they will treat us because we do have a life threatening illness. I have found it really helpful…[Read more]

Hi Tina

So glad you are last moving onto the Trial. All best wishes for that. I hope the drugs well and truly kick the MM into touch. Hope your shoulder is functioning well now and pain is bearable.

Love Mavis xxx

Hi Tom

Please could you send Bridget my good wishes and love too.

Dear Tom and others,

I have joined Face Book but am frightened to use it because of security worries. Have you any words of wisdom? Are there ways of using it without exposing yourself to too much risk?? Folk are always asking to be my "friend" and at the moment I just…[Read more]

Belated welcome from me too Tony.

Sorry you have had to join us, but at least you got diagnosed reasonably early which does help.

Glad you've been admitted to the Trial. Do hope it works really well for you. Is it with a view to have a Stem Cell Transplant later? Or maybe they are leaving that because of your age.

I am 67yrs and have…[Read more]

Lol Dai you might get me a bad name with the drink Lol, but its nearly true Lol

No drink in hand (at the moment) Tom "Onwards and Uowards" x

And your Hairdresser has done a great Job you did and still do look very pretty 😀

As for the dry skin I still have that every now and then 🙁 bath in oillatem or wot ever its called the have to get young bride (elaine) to put the cream on me 🙂 so its good 🙂

Love
Tom "Onwards and Upwards" xx

Hi
Only just catching up with posts but wanted to say a belated welcome.
Hope you are both coping and coming to terms with everything (and there is such a lot isn´t there?).
It has been such a relief to be able to talk to people in the same boat – they are so supportive and sensible that it makes even the most difficult times seem much…[Read more]

Hi Ted
All bloods except white cells an neurophils were good. (had never heard of neurophils) Both were low but neutrophils were ,8 which I think are not too good. Weird as he is not on any treatment. He has to go back on wednesday for bloods again. He says he is going to Spain but these counts makes it easy to pick up infection. Was told if he…[Read more]

Hi David
You know what they say "love is blind" LOL Eve

Hi Helen

Re the "Blue Badge" am sure all people that have A terminal Cancer get it.
Trust me am fit (ish) and got it when I was fit (ish) just took a few weeks longer as I didn't have a Mac Nurse so it was a letter to my own GP who then told them that No he aint lying he has MM and walla Blue badge got 😀

So off you go and fill in the…[Read more]

you know you can never miss the boat Lynda 😎 no soone said than done 🙂 xx

Hi Tina

Yes its a long haul I know and it seems to take ages BUT you will get it done soon so keep fit and keep strong

Love

Tom "Onwards and Upwards" xxx

Hi You all yes I will send your Best wishes on to Bridget as you know there is "Strenth In Numbers" 😀
Hi Tom Thanks for that, I am on facebook but dont go on there very often either, will give it a go

Love
Suex
I would be grateful if you would pass on my very best wishes to Bridget. John

Hi – this is Eva. I don't go on Facebook but…[Read more]