Hi Teresa

My thought are with you,do not bother replying individually unless it helps you,we all have some idea what you are going through at this time.

This is a very sad time for you and your family,enjoy ever day as much as you can,and any time you feel like unburdening yourself,if you do not want to do it through the site,lots of us have…[Read more]

Hi Bridget

Seen some posts on Face Book from you but not too many here. Hope you are doing ok. Going through the posts and came across yours. Here in Norn Ireland (as the locals say) we are renowned for "ulster isms ". My English daughter in law was home with son Robert and granddaughter Maddy at Easter. We hadn't seen Maddy since Christmas…[Read more]

Sarah

I started counselling shortly after Frank was diagnosed with SMM in Sept 2006. The first one I had there was no connection and I never went back to her after the first visit. Macmillan put me in touch with Robin who was fantastic. It was so good to talk to someone who did not know Frank and was not judgemental. I was with him for about…[Read more]

Thank you all for your informative replies. Frank contacted hospital about antibiotics and was told that if he got an infection – temperature he would have to contact them as the antibiotic would have to be given introveniously. What I really don't understand is that Frank has never had any treatment. He is SMM. he is going to contact the…[Read more]

Hi All

Now settled back at home. Not without its problems but I am getting lots of help, if very fragmented. I am now getting more mobile, if somewhat slowly. The pain is much better with the oxycontin.

I started on my second round of chemo on Wednesday, It would have been Monday if the ambulance had been booked! They have doubled the…[Read more]

Hi Jean
It looks if hubby has a bit of man flue bugs,if you feel worried about them before having a good holiday,for your own peace of mind,go to the doctor,s

Jean if you have an infection your pp go hay wire,
I would press for an early scan,I still find it hard to understand why a PET scan in not used in Myeloma,that shows any activity…[Read more]

Hi Carol
Were have you been??? not heard from you for awhile .Hope it was sunny were ever you were.8-)

Hi Jean

Like others have said, try not to worry too much. But they are totally right that Frank should just be careful who he is around over the next week or so, especially if he wants to go to Spain! He needs to be as fit as possible if he is going to insist on going. I'd also ask his consultant what he thinks. I'm off to Beijing in August but…[Read more]

Hi Mari
Have nothing to add about Velcade.
Did Steve only get enough stem cells for one chance,from what I can see for allo SCT,you would have to convince them its viable.They like a back to back ,your own sc then a few months later a donor .Eve

Hi Kirsty

Sorry that I am only just catching up on the latest news on the site and so didn´t welcome you earlier. Anyway, hope things are sinking in a bit now and that you are being well looked after.
Keep calm about the transplant (easier said than done I know). As others have said not pleasant but mostly it´s just tiring and you will be v…[Read more]

Hi Jean

I know how worrying this can be but can only hope that they are sorting things out for you about the scan.

I don´t have much else to add but just wanted to know I wish you well and hope things improve soon.

Love Carol xxx

Hi David
Just read your good news and am so pleased for you – phew what a relief! I bet you feel like a new lease of life has begun.
Thank you for letting us all know and so good to hear that you are not in pain. Long may it continue!
Best wishes
Carol xxxx

Hi Tony
Just wanted to send a word of welcome although so sorry we have to meet here.
You must feel pretty rattled at present so hope this helps. I was diagnosed many years ago (2005) and after chemo and stem transplant last year I am now doing really really well.
Keep calm, keep your chin up – I was on the myeloma trial too and it does ensure…[Read more]

Hello Mari

glad Stephen is doing well I know my hospital Lister in Stevenage is not licenced but I have regular visits to UCH and they do so lets hope its soon run out all over the country
Regards Jo x

Hi Helen its a mine field and it should be made simple for those of us that have a Terminal Illness 🙁 I mean how bad do you have to be to get good Money of the state, money that we have paid in :-S

Good Luck with it all 😎

Love
Tom "Onwards and Upwards" xx

Hi Sue

Yes Bridget has been fighting a chest Infection and does not feel like getting on computer as often, I leave Bridget messages on Face Book and when she feels up to it I get an answer 😎

I will send one and tell her you were asking about her. failing that come on over to face book we have a few from here on it 😀

Love Tom…[Read more]

Hi Jean

Sorry to hear Frank's blood's are not right :-/ as for me I aint a clue to be honest just wanted to wish you and Frank well.

Love
Tom "Onwards and Upwards" xxx

Hello Sue

I have been in touch with Bridget and she is not well with a bad chest infection I am sure we all wish that she will be better soon
Love Jo x

hello Jean

sorry Frank is having trouble white cells and neutrophils are all to do with fighting infection it looks like Franks white cells are to low so the doctor is worried about infection he may be brewing a cold. I think 8 weeks is much to long to wait for a scan that needs hurrying up, when you go to spain you will have to try and keep…[Read more]