Helen
You just go and have a wonderful time,if you have not seen your sister for a long time you are going to find it very emotional too.Love Eve

Hi Helen
Looking at Elaine,s reply,I cannot help but think she has it just about right,we would all like to think that people will get a good run of collecting there pension,but it does not work that way.!!
As for the fact they are more concerned about your blue badge,well every company has to fill there disabled quota,you will then tick one of…[Read more]

Hi there Tony

Nice to hear from you. I am on the Myeloma XI trial too..I got picked for revlimid and had 4 cycles of this before I plateaud and moved onto velcade for 4 cycles. Between the 2 they brought my pp levels from 50 down to 8 and I had my SCT in July last year. 9 months on and doing fairly well bar a few more coughs and colds than…[Read more]

Hi Lynda
I am on PADS induction which includes Valcade this "mixture" has brought down my PP from 2300 down to 37 after only 3 cycles so it works. (I got the myeloma bounce when I came out of remission i.e it came back during Myeloma 11 trail).So pass onto Pete to stay optimistic.
I am now lined up for stem cell harvest 23/24/25 may…[Read more]

Hi Tony
I was diagnosed in Aug 11 with light chains myeloma (Bence Jones)type,started off on the myeloma 11 trial which worked well and got me into remission but unfortunately my myeloma came back.Now on PADS induction and its working as my levels have come right down.I am due for Stem cell transplant (SCT) early June and allo graph…[Read more]

Hi Michele
How are things going,did your husband make any decisions concerning whether to go for SCT??
How are things going in general.Eve

Hi Andy
I have the same problem,and I am not the patient,cannot blame the Dex:-P
Wake up, and just cannot get back to sleep,usually play scrabble with my daughter in NZ but she is not always available as its 3pm over there.

How did the visit to the hospital go,??? Eve

Hi Susie

Thats Good News for you then, the four month check is good.

Keep strong and well.

Great Job 😀

Love Tom "Onwards and Upwards" xxx

Hi Eve

I have an iPad and I downloaded Kindle free from the App store. I set up an account with Amazon and get my books within seconds. They are usually cheaper than hard copy.

Jo hope things are good with you.
Best wishes
Jean x

hi Teds
sounds interesting I hav'nt got a kindle I wonder if it could be down loaded on line
Hope you are keeping well:-)
Regards JO

Hello Tony
sorry you have had to join but welcome You will find much help and advice here as well as moral support the myeloma help line is invaaluable they are able to answer most of your questions good luck with your journey
Regards Jo x

Hi Tom
Thanks for info,do not have a kindle but do have an i pad ,so will look on there.
Good to see you are doing well,try not to worry about smm.why worry about it if you cannot do any thing about it,Ask for an I pad for next Christmas they are amazing. Love Eve

Hi Wendy
I thought the Myeloma X1 trials were world wide with all data being combined and results published world wide,to come up with results that will eventually be accepted as given results of CTD against RCD.May be I am wrong.Eve

Hi Teresa
I had problems posting that picture,I tried one of Slim and me sitting together,and just got his ear and mine,resorted to dog as only picture i could fit in,there are instructions on how to do it at the start,the web team will help you,you can contact them by E Mail,or someone reading this might come on board with a solution.
I get…[Read more]

Hi Andy
my local hospital is Canterbury which is 15 miles away,but the nearest hospital for SCT is kings in London. That is were the problem lies for most people on the SE Coast,but as I said my daughter lives nr Sevenoaks,so Camping on her drive,I wonder how much she will charge me:-/

I do not know if its any help,Slim had low potassium ,and…[Read more]

Hi Lynda

Good to hear things are OK with Pete,I think we all feel the same,just want a result and an ending,but it is early days for Pete.

I know he will have to go the hospital more,but if it works!!!!is Pete having sub cut or infusion???,Slim had to go,for blood test morning then infusion afternoon,the actual injection takes all of 3…[Read more]

Hi Jo
Do not know Skaithos is it mainland or a Greek island,only been to the mainland once,we have always said we would do Cyprus with Motor Home,alas one of the many things on are list:-(
Just so pleased for you,after the scare of you might be needing treatment again,make the most of it.8-)Love Eve

Hi Ted
Frank has been nearly 6 years SMM. going on Thursday to see consultant on Thursday and I'm dreading it. Feel like "we have got away wiih it for such a long time". Just pray God is good and Frank is still stable. My best wishes to you Ted and a welcome to you Tony you are in the best pace for support

Love Jean xx

Hi Wendy

Yep when you get MM you are never the same but you look like your Immune system is fighting it so thats good, as for me mine has been a cough and chest infections by the bucket load :-S but I fight it so am happy 😎

Hope your soon better Wenday

Love
Tom "OInwards and Upwards" xx

Hi Lynn and pete

Ye its a bugger when the MM tells us what to do or not to do :-/ am sure Pete's "Bring it On" tude is going to stand you both in good stead 😎 I hope the iccl beggers are soon moved and SCT is sooner than you think 😀

Love and Hugs

Tom "Onwards and Upwards" (hope it made you smile again 😎 ) xxx