Hi Tony
My husband Slim is on the Myeloma X1, he got the CTD side,because of his fitness he was on the intensive pathway.
I can only tell you to listen to your body,if you do not feel well, do not think you can cope with it,make sure you phone the hospital for advice,its a very hard call and you do not want to bother anyone,but it is very…[Read more]

Hello Eve

I have the all clear this month to go on holiday so we have booked up an 11 night holiday on Skiathos we go on the 4th of may really looking forward to it
Regards Jo x

Hi Dai

We bought are first van an old vw,because we had two old smelly jack russels, and having a guest house myself,did not fancy staying in one.First major trip was 6 weeks to Spain,wish we had done 3 months,that must be over 20 years ago. We now have a Concorde Charisma,will be living in it,when Slims in hospital for a month.
Have been to…[Read more]

Hi Susie

Ye its a daunting thing this MM, but I said that now i have it I will do my best to keep it at bay untill they find [u][b]"The Cure"[/b][/u] and am sure they will 😀 take one day at a time and to be honest I found it better tocry in the shower that way no one seen my tears8-) as am sure you will shed some BUT we have some great folk…[Read more]

Hi Dai

Well you have had some good thinking out loud time my Friend as for my treatment I think it was a great shock and i told him "You dont want me to decide what treatment I want are you?" when he gave me lots of leaflets/books :-/ where i was told that he and his team would decide the best road for me so I followed his lead and have to say…[Read more]

Hi Jorge

A warm welcome to you.

As for a Carer? my young bride say's she has been my carer long before I got MM Lol, as for you returning to your Native Ireland for your "Final Days" am sure it will be years before that happens 😎

Keep fit and stay strong

Tom "Onwards and Upwards"

Hi Tony

Welcome to[u][b] your [/b][/u]new group

I am same as David nowt special just MM 😀 CTD front line leading to SCT Dec 09 now fit (ish) and well 😀

Keep strong and this is the place when it gets a bit too much to have a moan and groan we all know what its like

Tom "Onwards and Upwards"

Dai

We know there is not any choice,
One because at the start no one tells you your options,it is only after a sharp learning curve,it becomes apparent there just might have been better options,but when the word Cancer is mentioned ,with no cure,your just grateful for any treatment.:-/

Most of the European Countries start on Velcade,Looking…[Read more]

Hi Jo
Must admit would give a lot,just to be in a warm place in the Motor Home,but have been told no travelling abroad for 6 months, as they are spending so much money trying to help Slim,I feel we must obey there rules.

Have you any nice trips planned??
Lets just hope that England has a glorious summer,just this second had a small hail stone…[Read more]

Hello Eve

how are things progressing for slim will his SCT be soon and are you ok its been a long long year for you both perhaps now you can look forward to more holidays in the camper hope the sun keeps shineing for you regards to Slim
Love JO X

Hi Jorge
You are correct,not bad going for a man who considers he is old at 66 years LOL.Eve

Hello Mavis
so glad you are home at last that will make you feel a bit better both my daughters are doing the race for life in Bedford they are walking it, both of them have done it for the last couple of years
Well CDT i had four lots of CDT which put me into a good part remission or plateau stage when I finished that I took thalidomide 100mg…[Read more]

Hi Andy
53 is young enough to consider a back to back SCT,So in some ways you are a lucky guy,it is surppose to be very effective at keeping the dreaded MM at bay.I mean lucky in MM and age terms if that makes sense.
Not many people go through 3 treatments in such a short time,at this rate,you will be having SCT in no time.I think why they like…[Read more]

Hi Dai
I can only comment on Zometa,and reading up on it,as Mavis says it,s suppose to help with Myeloma,although I have to say a dentist told us,it is more effective in the first few months!!!:-P
I am not like you Dai,I know I should have confidence in the experts,but it,s not there life,and there views differ so much,,so I will go on…[Read more]

Hi Mari
The long post just makes up for you not posting for awhile:-)

We all have are ups and downs on this rocky journey,some times I feel only the world of myeloma exsit,and then I have to remind myself there are lots of people struggling with different things,so I tell myself to snap out of it and be grateful.(:-) 🙂 🙂 smiley face comes…[Read more]

Hi Jo and Mavis
|Glad to hear,the new Cancer Centre at UCH is good,as both of you say,so much time spent in hospitals!!!
Mavis also glad to see you have escaped,must feel great to be home,the summer will not be long coming,and should help to get you back on your pins.
SS Bradford have come up to scratch,nice to see someone pulling out all the…[Read more]

Hi Ian

I have had swollen ankles while on my first dose of CDT. Partly, because I haven't been moving much. I have found if I work my feet, while sitting down, they aren't as bad. The consultant says nothing to worry about and don't need water pills at the moment. Must say, they are very unsightly though!

Hope things go well with…[Read more]

Hi Jo

Tahnk yu for your support and prayers over the past three weeks.

Glad there was something to make the hospital visit more pleasant. It does make a difference doesn't it. We spend so long in these places. Great that some folk are able to raise money to support these intitiatives.

My daugher has just signed on to do the "Race for…[Read more]

Hi Helen

So sorry you have this to deal with on top of everything else. Thing to remember on all these interviews/questionnaires is, you must answer as to how you feel on "bad" days not "good". You do yourself no favours by being brave.

After all, what's a OH interview upto ALL you hve been through recently.

I would have thought the best…[Read more]

Hi Susie

So sorry you have had to join our "merry" band! We all know what it is to be waiting for results and dreading the outcome. I do hope that you have some time without having to procede to chemo. I was very fortunate and had 17 months between my operation to remove a tumour and progression. Thing was though, it did come as a shock…[Read more]