Hi mari

Last we heard,Stephen was going on Velcade I do not know if I have missed any post,but did the Velcade work,it has worked for Slim and he goes for SCTend of month. If I am correct Stephen did not get a lot of remission last time.!!!!

Hope things are good with you both.Eve

Hi Jorge
Nice to here from you old man,if I called my hubby that he would read me the riot act. LOL
You seem to have God in your life ,so may be he is the only carer you need,you seem to be doing very well on it.Do not right yourself off to soon,people are getting past a 10 year remission and with new drugs in the pipe line,you might live to be…[Read more]

Welcopme Jorge

Sorry you are having to cope with the devastating diagnosis of MM on your own. I am sure you will find this site very supportive as you settle back in Ireland.

All good wishes.

Mavis

Hi Dai

Sorry that the pain in your shoulder is still as bad. Interestingly, I have had a lot ofpain in my left shoulder and can't take any weight on it. They have provided me with a riser to get in and poutof bed with. Mt Consultant did have an xray done on mine and it turns out it isn't broken, but is probably arthritic. If yours is, maybe…[Read more]

Hi Helen
The "right of the ostrich" love it….!:-D I may use that right at some stage myself.
keep us up dated
cheers Paul

Best of luck Helen lets hope you find your way though all this paper work and it will all go smoothly for you I cannot advise you about benefits as I am retired and on a pension
Regards Jo x

Good luck Helen. I have no experience of OT but hope things go well.

Love Jean x

Hi Teresa
Yes Slim goes 23 of this month,after a year on treatment,and septic pneumonia in the middle,been a hard slog to get here.|They say he is fit enough,and he can not be any worst than when he was in ITU for 9 Days and 11 days in general ward,with months after recovering while on treatment.

They will keep him in for at least4 weeks,and…[Read more]

Hi Helen
🙁 I do envy you I know its wrong but it will be at least 7 months from now before we can go out,to the land of the long white cloud,It will be 3 years I have not seen 2 of my grandchildren and when there young they grow up so fast
We talk on Skype,and have kisses and hugs,my computer has never had such affection before.:-)

Helen…[Read more]

Thanks Ellen,
Just need to stay in remission for a good 4 or 5 years or more and hopefully there'll be some trials in the UK by then…..or maybe we'll be even further along the line 🙂
Always good to have some hope in the pipeline!!!
Look forward to reading MUK's work on this next week
Debs x

Hi Ted
How are you doing its a long time since I have seen post from you,one minute you are going on holiday,then no Ted about.:-)

I hope you remain in smouldering for many years,Love Eve

Great News David 😎 and am sure when you are all worked up at your Home you could visit mine am sure we have lots of stuff that needs fixing Lol

"Onwards and Upwards" My Friend 😀

Hi Helen

My mind is just trying to get round the fact that your Dad must have been a older Dad with a young heart,if your the eldest 🙂

I can see were you are coming from ,specially when you finish chemo and you do not have to go to the hospital as much,you become normal and no one wishes to go backward,but if you were the carer!!!.
Think…[Read more]

Hi David,

Yes I think they could well be part of life. I had my SCT in July and have only really had 3 weeks since the beginning of December where I've been without any sort of illness (wish I'd been on the antibiotics you were on!!!)

Paracetamol and lemsip cold and flu are my lifeline these days!!! I keep them in business I think.

But…[Read more]

Does anyone from MUK have any news on whether this is a drug we should be excited about or whether it is too good to be true….first time in ages I have been positively optimistic about what could be ahead of us, but I am wary as nothing was mentioned about this sort of vaccine at the info day.

Thanks Jet
have been reading up on this for a few weeks sounds very promising,talking about world trials.

Slims managed to get to SCT stage after CTD then Velcade so fingers crossed.
Going to Kings 23 April told 4 to 6 weeks in hospital.

Good luck for the future with your Allo SCT.Eve

Hi Jet

how are you not heard from you for a while, thanks for the link

Regards Jo x

Hi Jet
Sorry cannot get the link,are you talking about this new one just coming out of Israel!!!
Cannot get the Dailmail link.
How is life treating you !! Eve

Hi Jet

Great link and I for one would be up for that if I ever need it 😀

Tom "Onwards and Upwards" xxx