Hello Jean

what lovely girls you have I have a cheeky monkey of a grandson but have not yet managed to uplaod a piccy hope easter went well for you it was wet and freezing cold here:-(
Love Jo x

Blimey Dai you dont do things by half!!Thank goodness you have Janet watching out for you she must have been so worried . I think the sweats are likely to be Revlimid , when I was on it I would pour with sweat at the least exertion and I still have the same problem now I am on Thalidomide. It does get very embarassing but I suppose there are worse…[Read more]

Thanks Helen and Bridget. I agree but of course of course I'm biased

Hope you both are doing well
Love jean x

Hi Jean well thats a coincidence , they probably wouldnt be too chuffed if it happened in ten years time ! They are both so beautiful such lovely eyes Hope you are having a lovely Easter love Bridget x

Hi Everyone

I put IMMUCINE vaccine and got all the gen from the net,it does sound promising, they were talking about it going on world trials,so uk may be in with a chance.At the moment it is on trial 3,in the main hospital.

Lets hope there is a good response love Eve

Dia

Jo has voiced my thoughts as well about the Forum. Would be lost without it. Hope the pain has eased.

Love Jean x

Di
I always enjoy the closeness of friends:-) I really appreciate this site I dont always have loads to say but I have felt so much care from strangers
I have needed the support on many times so I feel I will always add my thoughts if they can help others when I was diagnose I nowhere else to turn to it saved my sanity 😉
Love Jo

Hi Kieth
lets hope its not 6 years and they accelerate the trail so many new things
coming on stream much more hope theses days I hope you are still well after your SCT
regards jO X

Well Dia
Its a good job you have nurse Janet at your side I bet she knows as much about these drugs side effects and what effect have on you as anybody does
Stay well and good luck for tomorrow
Love Jox

Hi Stephen

I am so sorry to read about your Wife I send My Condolences to you and your Family.

And well done to you all for raising that ammount of money for us all.

Stay Strong and remember the good days

Regards

Tom x

Bloomin heck Dai I bet that was scary :-0 I am pleased Janet was on the ball 😎

I have always been told if I feel Unwell then I should phone the ward up and talk to them and they will make the decision whether to pop up or stay at home, I have used that adout three times so far and it works for us 😎

Hope all goes well for Tomorrow Dai…[Read more]

Hi Eve yes my eldest daughter is fast becoming just like me but she cant see it ! I realised years ago that I sounded more and more like my mum, although Idont want to end up saying the strange things she does since her stroke!! Still thats what makes the world go round and keeps history alive which I am glad to be part of love Bridgetx

Hi Bridget
I come out with things all the time,and my kids think I am daft as a brush,I put it down to me being a Liverpudlian ,and my children are Southeners.

They do say I am sounding more like my late mother every day,having three girls I get the last laugh as slowly they are all sounding like me,specially my oldest Ruth who has two…[Read more]

Hi Gina and sister
Lovely to hear from you,and to see you are moving on with your lives,that,s what your mum would have wanted,lets hope this less crying days as as this is also what your mum would want.
I think you feel it more on days like mothers Day and birthdays,the knowledge you can no longer pick up the phone and have a chat.

As you…[Read more]

Hi Stephen I relied on the newcomers page Bridget

Dear Mavis I have not been up to speed on here lately as I have been a bit unwell so sorry I havent sent you a message. You have really been through the mill yetr your "smile" shines through still . I am glad you are getting your pain sorted even if the juggling does take a bit of time. It sounds as if the hospital is good at getting you the…[Read more]

Hi Keith thankyou that does sound very promising, hope it gets the green light even if it takes 6 years. As you say if it came to it whats a flight to Israel compared to a good result. I knew I should buy a Proper Newspaper on Sundays then I wouldnt miss gems like that But those Sunday Trashies are hard to resist !!!! Take care and hope you are…[Read more]

Hi Ian swollen ankles does sound like water retention , worth getting it checked out. I always get swollen ankles and calves when on Dex or Prednisalone . Ferusamide tablets are used to get rid of excess water and you should put your feet up as high as possible when sitting, doesnt mean you get to bew fed peeled grapes though!! Keep drinking lots…[Read more]