H i Stephen I am so sorry for your loss Dawn must be missed by all who loved her but for you it must be like losing the other half of you As Eve said hang on to the good times and talk with the children about Dawn a lot it will help you all. How very generous of all your friends and family to have raised all that money for M.M.U.K I for one am…[Read more]

Hi Stephen

My heart goes out to you,mainly selfish because I know one day I am going to be in the same position as you,I hope that does not seem unkind,why has it taken you so long to find this site,people on hear understand exactly what you are going through,some have already been there,and others are preparing themselves,but hoping there is a…[Read more]

Hi Ian

Swollen ankles,sounds like water retention ,Slims ankles became very swollen on Velcade,had to buy socks with loose fitting at the top.only just managed to fit into his boots,I use to massage his feet and legs which gave him some relieve.
He did not have PN until he finished Velcade,he only has it sometime,s I think it is just a…[Read more]

Hi Teresa

I would say lots of deep breaths are needed,you do not say if you have any support from children or friends,this is a time for some help.even if you can just have a few hours break ,to recharge your batteries.If you just need to chat come on here,someone will all ways reply:-)

Lets hope for some new treatment soon.Love Eve

Morning Mavis

My we are going through the wars 🙁 but going the correct way 😎

I wont be In Chapel today But I will say a prayer for us [u]all[/u] Today and hope that it helps us all am sure today is the day he will listen 🙂

Tell Gordon that you are correct its a temporary loan you are having with the stuff.

Mavis I was on CDT…[Read more]

Hi Dai

I think you have said what a lot of people feel,you see so many people coming on here for advise help or just to explain how they feel,some never to be heard from again,and some just can not cope with the whole process,and as we have both said some who cope for years and then just post. I would not pretend to know why they post and we…[Read more]

Hi Dai,
I don't tend to post regularly anymore because I find it all a bit tough at times.
Post transplant, I have been pretty much constantly ill with coughs, colds and illnesses. That alongside trying to run my family in some sort of normality,and organise my ball just takes it out of me, so I suppose that is perhaps the same for others.
I…[Read more]

Hi Mavis

I must have missed some of your posts as I did not realise that you were having such a rough time of it. Glad that things are heading the right way. I will keep you in my prayers. Hope you have a great Easter.

Love Jean xx

Hello Mavis

so glad things are going in the right direction at least they seem to have got on top of your pain the wheel chair might well be a temporary measure at least I hope so My prayers will be with you this Easter time
A BIG (((HUG)) From Jox

Dear Gina

Good to hear from you that you are all gradually coming to terms with your big loss. Don't forget, too, that you have also had all the sad hard MM journey to walk with your Mum before this. Coming to terms with loss takes lots and lots of time. Be kind to yourselves and dwell on those good memories. Think often, "what would mum…[Read more]

Hi Stephen

I am so sorry for the pain that you are going through. It was good that you were able to spend a lot of time with Dawn. I am sure that you have lovely memories that will give you comfort. My husband Frank, was diagnosed with smouldering Myeloma in September 2006. Only treatment he has had is Zometa. He has good days and bad ones.…[Read more]

Dear Michelle and Stephen

I am so sorry to hear of the passing of your loved ones. I am a career for mtyhusband who has this horrible illness. My thoughts are with you both at this terrible time and hope that your good memories will see you through the hard times

My love to you both
Jean x

Hello Dia
I will be keeping my fingers crossed for you on tuesday I really hope the pain in your shoulder is not MM related it sounds good that paracetamols help as they are not the best for severe pain lots of luck
Love Jo x

Morning Dai

I have had same over the months and told my Consultant and he checked me over and put it down to 1)Old age ((ish)) and 2) just doing too much and he tells me its not MM related so I will go with that. same symptoms as you Dai that bad toothache but in shoulder (right one) and down the arm, if I stretch the arm I get a sharp pain…[Read more]

Hi Nicola lovely to hear from you Wow what a wonderful turnout for your dad you must have felt so proud of him. When I was very young I was scandalised at people smiling and laughing after a funeral its only as I got older I realised its such a necessary part of the grief process Those laughs and stories told at your dads wake are more precious…[Read more]

Morning Dai no wonder you have been losing sleep there is nothing worse than having a pain you dont know the cause of . I must admit I am very surprised your doctor dismissed your concern without even doing an x-ray . I think you are right to insist on examination of your shoulder as soon as !If it is mm then it does not necessarily mean your…[Read more]

Hi Kay I agree with whats already been said , you need to be kinder to your body !! Your determination is incredible but you have been through the most challenging treament and your body does need time to recover If you push yourself too hard now you could delay you recovery rather than speed it up so please listen to your body and rest when you…[Read more]

HI Gina its so good to hear from you although I think we would all have understood if you felt unable to post again. You and your family are doing brilliantly as you have all the way through your mums battle with myeloma The memories will get easier with time and there will be more smiles than tears just hang in there. I thought of your mum last…[Read more]

Hi
Just wanted to welcome you to the site although sad for you and your Dad that you have to be here.
Hope things improve soon.
Thinking of you and hoping for the very best.
Love Carol