Hi Gina

Great to hear from you 😀 and am very pleased you are all doing OK 😎 yes am sure the "Crying Days" will get less and less over time, but thats not to say your memory of your Mum will get less you will just remember the good days 😎

Keep going strong, you are doing a great Job

Love and Hugs Tom xxxx

Hi Ozzey

I was type 2 diabetic before I was diagnosed with MM I was very well managed but since all the steriods during CDT and now a small dose because of the renal failure they have put me on insulin as steriods raise the sugar levels so much this could be what has happened in your case I'm manageing quite well but its not ideal but all these…[Read more]

Hi Eve and Dai thought I would join your conversation about morphine! Like you Dai I have been on it constantly for 5 years now The dose has increased from the early days as my pain has increased I have always worried about being so reliant on it but Iknow I cannot manage without it . I take 165mg of slow release Oxycontin twice a day, no need…[Read more]

hi Kay

Wow you are a wonder woman I am so glad you can go to work it must be a real milestone for you Steriod are good for pain killing but can play havac with you in other ways I havnt had joint pain but take predisilone for my chronic renal trouble I am diabetic and it puts my sugars up a lot which is a real problem but its better than DEX. I…[Read more]

Hi Sarah and Henry

A well done to you both, keep it up and Henry will soon be (near) back to his old self.

Love and Hugs

Tom "Onwards and Upwards" xxxx

Hi Kay

Well am afraid Dai is correct and he keeps his money am sorry to say.

I had my SCT in Dec 2009 and I still get tired and I mean Real Tired.
so a sleep when your body tels you to and not think am all done its been X number of months, take your time an no rush

Good luck with the hair Lol xxx

Love Tom "Onwards and Upwards" xxx

Hi Nicola

I am pleased that your dad had a great send off, over 300 folk now that a big gathering as you say your Dad was a great man and having 300 plus at the wake is a tribute to your Dad.
Keep strong and Good luck with your Fundraising
And Its Ok to carry on through the nite 😀

Love Tom xxxx

Hi Nicola
Thank you for your kind words on the passing of my brother. I am so sorry that your dad has passed away. It sounds as if he was a very well loved and respected man. You will have great memories of him and it is good to know how much he was loved by others. I wish you the very best of luck with your find raising. My best wishes to…[Read more]

Hi Sarah I am so pleased to hear Henry has done so well You must be relieved he got through it so quickly The hard bit is having patience now and learning to rest when your body tells you to Hope Henry gets a verry long remission love Bridget x

Hi Sarah
Always good to hear great news like that…Henry well done that man!!:-)
Cheers paul

Hi Susie

A Warm welcome to this great site, hey am the (one of them) man for the giggles if you need them as for the para thingie bob I aint a clue :-/ if My Doc is smiling then am happy 😎 so al leave all the techie stuff to the others.

Take it one day at a time and as has been said dont do too much rest when your body tells you, and…[Read more]

Hi NeelieAnd Dad

First of all That aint no rant trust me lol, and next a warm welcome into the site that now part belongs to you 😀 pull up a chair and have a seat as its gonna be a long ride am afraid.

Now your dad is confirmed as an MM sufferer am sure it wont be long before they stop his pain and get Dad sorted and into…[Read more]

HI Neelie
What terrible time your dad has had but it does not surprise me I went to my docter because I could barely stand up and could not breath she said just a virus take two paracetamols my husband took me into A&E NEXT MORNING WITH DOUBLE PNUEMONIA AND KIDNEY FAILURE I nearly died while in hospital I had 7 units of blood and after test…[Read more]

Yes I agree Dai

Slim never had pn when on Chemo ,but he has it now,people have recommended drinking a glass of milk,plus another thing from boots coco ??????,if the gentleman who recommended it is looking in.I would be grateful for the name again.he said it helps him.

Dai I think its because it,s an anti depressant,Slim was of the same…[Read more]

Hi Neeli as I read your post I found myself getting angrier by the minute There are several people who have had to wait over a year as has already been said gps are unlikely to see a case of myeloma Thankfully M.M.U.K is working very hard to make gps and other professionals aware of myeloma. I also had to wait over a year for diagnosis , many…[Read more]

Hi Neelie

Well I thought my husband was treated badly by his doctor,but I think your dad,s case beats it.the surgery will now bed over backwards and everything will be by the book from now on,you will have to take my word for that.I was lucky I found a young Canadian gp in the practice that listened to me.She is now are designated doctor,plus I…[Read more]

Hi Gill
It does come home to you when you realise children are fighting Cancers as well,My daughter spends an awful lot of time in different hospitals,in and around London,the conditions for care for very sick children needs improving plus it get worst the older you get 14 to 18 year olds are treated on a childrens ward or adult wards. They…[Read more]

Hi Susie
Welcome to the site,by the sounds of it,you are going to find more information from here,than your own doctor told you,did you doctor mention the word Myeloma??????
If you went to the hospital,without any knowledge,it must have felt like a boxers punch knock out!!!!!,its a wonder you managed to take any thing in.

Susie there is a…[Read more]

Hi Dai
As you can see,its early hours of the morning,enjoying a cuppa and watching a program on the Royal Navy,in ST Lucia,if Slims awake so am I:-P

I do not know if this will be of any help,but Slim takes a mild ant depression Amitriptyline 10 mg,it worked wonders for him for a few months,then he had high dose Cyclophosphamide prep for…[Read more]

Good on you Andy. Mine was a disaster. Not sure what I did wrong!

Jean