eve replied to the topic Will anything work? in the forum Treatment 14 years, 3 months ago
Hi Everyone
Slim had not had a drink for 17 months as it all taste awful and he was a drinking man,tried on a number of occasions but no go.
Then he tried some port with his cheese and biscuits,loved it.Now an occasional white wine,but still does not like his bitter any more or red wine so all the more for me. lol Eve
jmsmyth replied to the topic Another newbie in the forum Newcomers 14 years, 3 months ago
Hi Jo
So glad that thIngs are good for you. Frank these past couple of days has been in brilliant form. He caught me a cracker this morning for "April fool". We are still expecting snow. Can't go anywhere as Franks appointment is on 19th April and I don't like to be too far from home. Jo it is so great to hear that things are going well for…[Read more]
Debs replied to the topic The Under 50s Group in the forum Under 50s 14 years, 3 months ago
Bumping this post up again so that people know how to get hold of Scotty if they want to join the extra Under 50 site….as she says, the language is a bit riper but it is another type of support. x
Debs replied to the topic Will anything work? in the forum Treatment 14 years, 3 months ago
Hi there.
Just couldn't help but come in on the alcohol question 🙂
My consultant said when I was on revlimid that I could have a couple of drinks but that I probably wouldn't want to!! Boy was she right…couldn't even face champagne! Then when the revlimid stopped working (my pp had come down from over 50 to 28), I went onto revlimid….I…[Read more]
BADGER replied to the topic Will anything work? in the forum Treatment 14 years, 3 months ago
hi Andy
I am not a big drinker but I drank real ale and red wine in moderation all though my CDT i SEEMED TO BE OK
GO FOR IT;-)
lOVE jO
BADGER replied to the topic Another newbie in the forum Newcomers 14 years, 3 months ago
hi Jean
nice to hear from you so Frank is being a naughty boy again Geoff is the same the worlds worst patient I am ok at the moment fingers crossed last PEP test was fine so another two months now which is a relief the weather here is still sunny but not as warm I really do hope we dont get snow
Hope you had a nice weekend
love Jo x
jmsmyth replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 14 years, 3 months ago
Dai Mine didnt work either. Eliz has something that we don't!!!
Jean
[img]http://www.gizoo.co.uk/Products/PCGaming/PCGadgets/USBDigitalVoiceRecorder.htm?spmc=TGSGZEMAo100[/img]
tom replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 14 years, 3 months ago
Hi Dai
Great Photo's, am sure i started one of those up years ago I now cant remember any names nor password that I might have used Lol (thick or what)
here is your link http://www.flickr.com/photos/43084913@N02/7034899025/in/set-72157629715206275
OutdoorsPaul replied to the topic Will anything work? in the forum Treatment 14 years, 3 months ago
Hi Andy
I asked my consultant about alcohol and she says 2 small glasses of red wine is allowed on a weekend.(or equivalent)
Personally i think your body will tell you whats right, and going out every so often is a good thing.
I am currently on valcade,Dex,Doxorubicin and on 1 week take all three and my sense taste goes completely out of…[Read more]
tom replied to the topic Will anything work? in the forum Treatment 14 years, 3 months ago
Hi Andy
Good Luck for this round and am sure Like Ali you will whup its Ass 🙂
As for the drink?? well you had to ask dint you lol. I drank all through My treatment didn't cut down was at it 6 nights a week and drunk a Litre bottle of Vodka per week (well I dint have to get up for work lol)
My Motto is get out and get some in you need…[Read more]
jmsmyth replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 14 years, 3 months ago
Hi Elizabeth I got one when you mentioned it before. I now have a little folder on my lap top with the files dated so I can listen again. They are great. Thanks
Jean x
eve replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 14 years, 3 months ago
Thanks Eliza
I have one,but I would like to know how you do the picture bit on here the smiley face was great and now the gadget????Love Eve
eve replied to the topic Just Made It in the forum Treatment 14 years, 3 months ago
Hi Everyone
Nice to see you all in a good spirited mood on this beautiful day 1 st of April,it always gives me the feeling that spring is here although its a bit cold outside.Should be a glorious month for the spring flowers.
Hi Jo nice to hear from you,have you been off on holidays again!! will not be long before Helen,s off to NZ should be…[Read more]
brocho replied to the topic Just Giving… in the forum Off topic 14 years, 3 months ago
Hi Dai I am not at all surprised that you and Janet have such a lovely kind ,caring daughter as your compassion and giving nature shine off theses pages You must be so proud . I have never had lofty materialistic ambitions for my children , I raised them to be good people and I am also very proud of their care for others If they had made a forune…[Read more]
brocho replied to the topic Just Made It in the forum Treatment 14 years, 3 months ago
WooHoo Well done Slim thats the way to do it !! Worth being shattered for . Like you we have quite a journey to the hospital . as you say its cost as well as time so the team at UCH always try and schedule as many tests in one day as they can Although you get home exhausted at least you havent got to face it all again the next day. Well not too…[Read more]
brocho replied to the topic Another 3 months in the forum General 14 years, 3 months ago
Hi David it always makes my day to read a post like yours. Heres to many more posts like it and hopefully they might give you a longer time between clinic appointments Go and enjoy yourselves lots of love Bridget x
BADGER replied to the topic Just Giving… in the forum Off topic 14 years, 3 months ago
Dia
she sounds a brilliant daughter I wish her good luck on the day:-)
Love Jo x
BADGER replied to the topic Just Made It in the forum Treatment 14 years, 3 months ago
Well done Slim
dear Eve
hope the other tests are fine very sensible to get all appoinments on the same day it may be tiring but it will be over in a day
Good luck
Love Jo x
BADGER replied to the topic Another 3 months in the forum General 14 years, 3 months ago
Great news David
you can now relax and enjoy the next three months you are doing so well long may it last:-)
Regards Jo x
eve replied to the topic Just Made It in the forum Treatment 14 years, 3 months ago
Thanks Tom Eliz and Dai
It did take 2 days Tom as the first bloods came in at only 19%,the man next to Slim came in with88%,the first day they got 1.9,so Slim injected him self at 7pm and 7am,that seem to do the trick.4.02 overall .They rang up the same night each time to let us know.which I though was very thoughtful of them.
I have been…[Read more]