Way to Go Slim, thats great news, I also done all mine in one day 🙂

And its about time they sorted the appoitments out to run all in one day, yes Eve its an early start and it will be a long day but worth it:-)

Keep Strong you two and hope it aint long now.

Love and (((hugs)))

Tom "Onwards and Upwards" xxxx

Hi David

All good news,must admit was getting a bit worried as you seem to be putting your house in order,I suppose this Myeloma lives with us all the time,and its presents is felt when the time comes to see the consultants.!!!

So what have you planned another cruise,or just a good summer in good old blighty.???
What ever is just enjoy.love Eve

Hi Steph

Welcome as a carer you will have different concerns so i hope this site gives you some in sight,any time your worried or just need a bit of a boost it is worth coming on,so do not be a stranger,this myeloma affects people in different ways this is why they say its such an individual illness.

It is hard at first because you are…[Read more]

Drum Roll :::::: A Well Done That Man 😎

Well Done David am pleased you have sailed through it, keep it up M8 and you can lay off that box for a bit aint no rush to finish it 😀

Tom "Onwards and Upwards" x

Hi Andy

Well you have some stubborn pp's aint you?

I hope you soon get the pesky things sorted asapget in and get that SCT underway, you know amsending you great vibes for it all to happen, hang in there Andy its an uphill struggle but you will do it:-)

Tom "Onwards and Upwards" x

Hi Mavis
The things you do,to land your self in hospital,I hope they are waiting on you hand and foot,LOL only joking it,s a scary time for you,but the good news no compression on the spine,that must be a huge relief for you,you are in the best place as the main thing is to get you a good pain relieve,plus get you on your pins.

It amazes me…[Read more]

Hi Andy
Sorry to here your news,this just might be some help to you!!!!

In the under fifty ,s there is a chap called Mike Barker who,if i am correct has SCT when his PP were high,again if i read about it correctly,he decided with his consultant to go ahead with SCT.
It might be worth checking his post!!! I do not think he has posted for some…[Read more]

Hi Dai

The River Rose was really lovely. It must be very difficult to write a song with someone so far away! I really enjoyed it. The first link would not work said it had expired.

Best wishes
Jean x

Dear Dai, Jean, Gill, Helen, Tom, Jo and Paul,

I knew, once I could get on line I would get some nice re-assuring feed-back from "them that know!" Getting over the shock of a;ll this bone damage and trying to put the threat of stress factors to the back of my mind. Like you Dai, I have problems with my shoulders, but they are keeping me in…[Read more]

Dear Jill and Stephen

Can't tell you how much it cheered me up to come in on the end of these postings to hear that you are off to France and it was bu__er all! Scary days some are, aren't they.

Go and have some really chill out times, but hopefully not chilly!

Lots of love.

Mavis

Hi Andy

Sorry things aren't going as hoped with treatment. I can understand just how frustrated you must have been to have spent all that time in Hospitasl hooked up on infusion for it not to have the desired result. Might it have a delayed efffect? I am sending many positive thoughts and prayers that things can move towards a SCT soon.…[Read more]

So pleased for you David.

Keep on being positive – I'm sure you can have lots of years of remission.

Much love.

Mavis

Hi Steve and Andy.

Welcome from me too. It is good that you are now both on site as I am sure that both of you, with your differering support needs will find the help and information you need.

Wonder what treatment Andy is having? Hope things are moving in a good direction.

Very best wishes.

Mavis

It is so great David reading posts like this. Im sure it gives everyone a lift. Good on you – long may it continue.

Love Jean x

Hi Jo

Good to hear from you. How are you doing? Hope all is going well for you. As usual Frank is driving me nuts – but love him dearly. Waiting for appointment for CAT scan. Still has pain is side. Some days he's good and others – bad form. Must be feeling good today as we are going out for dinner. We have had fantastic weather all week…[Read more]

Hello Steph and Andy

this is not a place most people think they would have to join but welcome
everyone here is so supportive and helpful there is usually an answer to any questions you might have and Myeloma help line is priceless
Keep well
Regards Jo x

Hi Jean

how are you and Frank is he behaving himself like most men I suspect not
looks like you have had a bit of good weather in NI lets hope it lasts have you booked a get away yet for this year
Love Jo x

Hi Mavis
My consultant told me last week after my PET scan that my left ribs and sternum were were weaker(lesions).My consultant is great and she knows that I ride a mountain bike (when meds allow me!) which inst often enough.She now tells me "stay off the bike till after SCT"
All these things can come out of the blue abit and change…[Read more]

Hi Mavis

so sorry you are having such a bad time I managed quite well with cdt and my kidney function improved they thought it was all the extra steriods which helped the kidneys I do hope they can manage your pain when they do that you will be able to think more clearly. There are lots of new treatments down the line I read about something new…[Read more]