Hi Steph and Andy

I am sorry you have had to join our "club". I am a carer to (hate that word). My husband Frank has MM diagnosed in 2006. They are truly a great bunch here, you will get friendship, support, advice comfort and hugs. It has been my lifeline and I know you will get a lot out of it. Ask anything and I'm sure someone will have…[Read more]

Hi Steph

A Warm Welcome to the group, am sure you know by now that this "Mob" will help you get out of any Low Ebb that the MM has and will cause you and Andy to have we tell them to keep chin up (chins in my case)

As you know we tell people carers and MM'ers to take it one day at a time.

Not forgetting to rant and rave on here if the…[Read more]

Hello Steph and Andy
Glad you finding the site both informative and supportive,your right its a whole new ball game but there's lots of people on here who can give good advice.:-D

Now Mavis look what you have gone and done? I leave you for a few days and you go and throw yourself in the Hospital :-0.

But seriously I am so sory to hear that you have done a decline, but trust me Girl you are one that will throw that rope up high and drag yourself back up to top form (well mm top form) again.

You are in the correct place…[Read more]

Gill you certainly arent the only one !! We all have our way of handling things . I know that if Jeff ever said that I would freak out , yet its ok for me to say it !! love Bridfget x

Dear Mavis

I am sorry to hear that you have had a really hard week and such a bad time. My thoughts are with you, keep positive. God bless
Love Jean xx

Thank you Dai your words, they are beautiful and I'm so glad you you shared them. Thanks Tom you are always there with hugs and there is nothing as comforting than a hug.
Love Jean x

Hi Terry

I also have been sat at a window when the sun has been throwing itself and its heat straight at me an had a "Snugglr Blanket" "other brands are aslo available lol) wrapped around me. yes i have (and still do) used a thermal vest in cold days (works a treat) as i cant see any point of feeling cold when you can buy borrow or nick( please…[Read more]

Dear Dai

AS you say in another post, it isn't a walk in the park, but if this maintainance regime keeps MM at bay while you waith fornthe next best thing, it must be good. More time with your lovely family.

Lots of love.

Mavis

Hi Ian

Glad this exceptional procedure seems to be doing the job for you. I am so proud of those of yo who try these new ideas out.

Very best wishes.

Mavis

Hi terry

I think it is marvellous that you felt able to text so soon with the additional problems you have had to deal with. It feels so terrible when folk seem to ignore you because of their defficiencies, not yours. They should know better.

Glad others were ablt to give you advice about the coldness. One thing I'd say is, if yopu start…[Read more]

Hi Kirsty

Soory I missed welcomimg you earlier, for reasons I will be writing about in a minute. Still, as always, everyone else has done a good job of saying hello from the site none of us wanted to join! I find it so helpful and supportive and learn so much.

Of course you will be finding all this hard to take on boeard – who wouldn't!…[Read more]

Jean

I am so pleased that the day went well and the service was what Derick would have wanted.

Take Care and am sending (((Hugs))))

Love and Hugs

Tom xxx

Hi Kirsty

Welcome! Not that you want to be here. There are lots of us here to support you….I don't come on too often as I'm just post transplant and need a bit of a break occasionally whilst in remission.

I was 34 when I was diagnosed with smouldering myeloma, and then started treatment in 2010, just over a year after initial diagnosis. I…[Read more]

Hi all

Thank you all for your lovely words. Derek was buried yesterday and if a funeral can be described as "nice" – it was nice. Derek's neighbour is a lay preacher and they had been friends since Derek moved in 14 years ago. Billy knew Derek very well and he conducted the proceedings. It was nice to listen to someone who really knew him.…[Read more]

Hi Kirsty
I was diagnosed last Aug at 39 and it was abit of a bomb shell as well,but the people on this site a great and always happy to support where can.I turned 40 in December and currently on valcade injections and awaiting stem cell transplant.You will come across medical jargon….if unsure just ask we are all on a learning…[Read more]

Hi Paul well we all need to claim what we are entitled to these days, I am still looking for the letter with the name of the scheme on it though!! So pleased you got sorted at least thats one less worry for you and Rachel Scotland sounds good have a great time and post some pics to make us jealous love to you both Bridget x

Hi Kirsty a big welcome to you although this site must be the last place you thought you would need. I am glad you found it though as it will help you get your head around being diagnosed with myeloma Try not to look elsewhere on the internet as a lot of the info is out of date and some of it is just plain scaremongering You must still feel…[Read more]

Hi Ian

Well done M8 am pleased that all is going well for you 🙂 and am sure the side effects will get better as time moves on.

I never (touching wood) never suffered with GVHD? and if i did then I didn't know about it 🙂 you do right keeping fit and away from the hospital, Long may it continue 🙂
Thanks for the Good News Ian it's…[Read more]