tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 3 months ago
Hey Andy
Good luck on this journey and I see by your post you aint counting Lol.
Hope you have a good un
Tom "Onwards and upwards"
OutdoorsPaul replied to the topic Benefits Fog -Outdoors Paul in the forum Under 50s 14 years, 3 months ago
Hi Eve
Thanks for the post-I have just been entitled to ESA which is helpful.I have applied for others so we will see.I to have never claimed and always find myself saying i,ll manage.But I now tend to agree that I am entitled to claim where able.Hope you and Slim well and thank you for the support.
cheers Paul
brocho replied to the topic Sudden sickness in the forum Side-effects 14 years, 3 months ago
Hi David hope you start to feel better very soon love Bridget x
brocho replied to the topic Relapse after 5 years in the forum Newcomers 14 years, 3 months ago
Hi Janet no wonder you are devastated five years is a long time to be in remission As Nettie said though there are so many new treatments available now and more in the pipeline which look promising Remember your doctors can suggest a treatment but the choice is yours! If you really dont want to go through an sct again they will suggest other…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 3 months ago
Hi Dai I second that the world is definitely a nicer place for all of us if the sun shines!! Like you I dont miss alcohol To be honest I only drank on rare occasions , mainly because it acted like poison and caused 2 day hangovers from hell !! No problem when I was young and out all the time but my consumption dropped when I had children and it…[Read more]
eve replied to the topic Moving at last in the forum General 14 years, 3 months ago
Thank you everyone for your good wishes,
Slims shattered gone to bed and I am going to follow him,left home at 9am got back just before 8pm.It leaves us a bit dumb foundered, spent a long time for test that could have been done in Canterbury,Ex ray and Heart Monitor.The rest could have been explained in a booklet.!!
Next appointment next…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 3 months ago
Hi Tom I am not too bad thanks You are so right about the warmer weather nothing makes me more miserable than being cold!! A little sunshine makes everyone happier , even getting served in a shop is nicer cos the staff smile back at you on a sunny day!! Unfortunately wine is a no-go for me , I havent had a drink since I was diagnosed 5 years ago ,…[Read more]
mhnevill replied to the topic New Need to talk in the forum Carers 14 years, 3 months ago
Hi Bridget
You sound as if you have had more fun and games. As if you don't spend enough time at Hospitals! Glad to hear your grandson seems to have saved his teeth. It is a big thing.
Glad it sounds as if you are keeping the pain at bay. I know it would be a bit uncomfortable but couldn't they give you some modern version of a back…[Read more]
BADGER replied to the topic Sudden sickness in the forum Side-effects 14 years, 3 months ago
HI DAVID
Sorry to hear you have not been well just to say quite a few people I know have had this 24/48 hour bug perhaps thats what you have had
Regards Jo x
mhnevill replied to the topic New Need to talk in the forum Carers 14 years, 3 months ago
Hello Teresa
Glad Stuart clarified problem with Posts. I thought Moderator had taken against everyone's photo!!! Anyway, welcome to the site.
Don't know if I have got this right? You use "we" so do you and Peter both have MM? It seems very unlucky to have so much of it in your wider family. I guess most of us on here hadn't heard of it…[Read more]
mhnevill replied to the topic Sudden sickness in the forum Side-effects 14 years, 3 months ago
Hi David
Hope these unpleasant side effects soon wear off.
Best wishes.
Mavis
mhnevill replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 3 months ago
Hi Andy
All the best for tomorrow – give it to them!
All best wishes.
Mavis
tom replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 3 months ago
Hi Bridget
Hows you doing ?, hope your doing good and this now warmer weather is helping you 😎
Am sure you are like me and love the warm weather 😎
I also hope you are drinking the Wine still 😀
Love and ((((hugs)))) sent for you Tom xxxx
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 3 months ago
Hi Andy
All the best for Tomorrow M8 am sure you will sail through it 😎
I have attached a couple of my files to show you what I was taking when on CDT and what each was for?
Ps Hope the links work Lol
Tom "Onwards and Upwards"
tom replied to the topic Sudden sickness in the forum Side-effects 14 years, 3 months ago
Hi David
I hope this Email doesn't wake you from your well deserved afternoon Nap :-0
I have suffered a regular sore throat and intolerance to hot drinks and food since my SCT 🙁 as for the sickness well I was still taking Anti Sickness Pills for nearly a year after SCT but a lot of sickness is going around near where I live :-/ might be…[Read more]
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 14 years, 3 months ago
Hi Nicola
Am sure it helps a little bit knowing that they have got to grips with your dad's Pain, Stay strong and I an sending my Prayers.
Love and Hugs to you and your Family
Tom xxxxx
tom replied to the topic Delay in Chemo in the forum Treatment 14 years, 3 months ago
Aww Bless Tina I know how you feel, I was like that when I was missed (forgot about) for my stem cell transplant they sent some one else instead it put me back by 5 weeks 🙁 I wasn't Happy, but as David say's it all worked out in the end 😎
Love
Tom "Onwards and Upwards" xxx
brocho replied to the topic New Need to talk in the forum Carers 14 years, 3 months ago
Hi Helen I know what you mean about facebook I dont think I could handle tweeting just cant get my head around it somehow!! I hope you shake off the pneumonia very soon it makes you feel wretched doesnt it Like you I was never ill till myeloma reared its ugly head but I have had pneumonia twice in the last few years I suppose chemo is as much to…[Read more]
brocho replied to the topic New Need to talk in the forum Carers 14 years, 3 months ago
Hi Helen this week has certainly been better than last !! I am coming to terms with the situationbut at the same time there are some questions I need to ask my doctors about possible treatments. I was thinking tonight that it would actually be easier , in some ways, if I were less aware about mm and the implications of various treatments , we…[Read more]
brocho replied to the topic New Need to talk in the forum Carers 14 years, 3 months ago
Hi tmc? as Helen said you are not burdening anyone we are all here for each other and most of us will need to let it out sometimes . I can understand a little of how you feel as since my diagnosis 5 and a half years ago I have been on every possible treatment since my sct All have failed to work for more than the shortest time and now I have no…[Read more]