Hello Alan and Dave
Welcome to the site.

Dave pp levels at 6,it just might be a blip,Jo on here had food poisoning and her levels went up,only to go down again when she was better,its going to be a hard 6 weeks waiting for next blood test.As to new treatments as Gill said lots in the pipe line,

Alan there are lots of people who had SCT on…[Read more]

Hi Dave
Sorry can´t help with your specific question but did just want to welcome you to the site as we haven´t met here before.
Sorry that your pp is on the rise but over the years prior to treatment (I have had one SCT) my pp fluctuated quite dramatically usually when I was under stress and as soon as things settled down at work etc. so did t…[Read more]

Thanks Elaine

Frank is convinced that it is muscular, As MRI and skeletal X-ray were ok. The dr gave him anti inflammatory tablets and he said they have helped a bit. Consultant won't be happy as she doesn't believe in those tablets. We see consultant in 10 days so as nothing else can be done he is going to wait.
Thanks again
Jean x

Hi Dai

I also have a poor right arm and am sure its not linked to my MM and as Eve says its the ammount of pint glasses I pick up lol, I understand your feelings about geting it checked out.

Good Luck on your "D" Day hope all goes well

And you also enjoy your Sunday 😎

Tom "Onwards and Upwards"

Ok Ok Ok Eve you know me as much as My Young Bride (Elaine) its a couple of pints these days dont drink as much as I used to ;-( but the Vodka is OK 🙂
Love iccle ole Me "Onwards and Upwards" xxx

Thanks Eliz, and am sure it will be "Onwards and Upwards" xxxx

Hi Jo

Still don't know. Frank and our doc say no. Consultant says yes. So waiting game till next visit to consultant. He is still in a lot of pain. We are supposed to be going to Spain on Monday but he says he will see how he's feeling on Monday. I would prefer to stay at home. Hey lucky you having sun. It is quite mild but windy and overcast.…[Read more]

Hello Jean

how is Frank ok did it turn out to be shinglesafter all how are your nerves coping its sunny here today whats it like in Belfast
Love Jo x

Hi Tina
No,no break,if your on intensive pathway,if you have bad side effects they can reduce dose,4 days of dex is very full on.If you have problems please mention them .At least you will only go to hospital for bloods,tablets and Zometa,if you hospital is well organised should be able to do it in 1 trip.

Try not to worry everything will fall…[Read more]

Hi Everyone

Come on Tom admit it right arm pain,how many pints do you have to lift until pain starts!!!LOL

Slims pain started in his back when x,ray came back had an old brake plus new brakes,told would heal in 3 months,6 months down the line diagnosed with MM.
Only went to doctor,s because I nagged him!!!!
My advice is go to your own…[Read more]

Hi All
Hope this finds you all as well as you can be.
Strange how chemo changes how our hair is. I ought to update my photo as this one is the "before" and it has now come back curly which makes me look as if I have had a perm if there is any damp at all in the air!
Anyway, I might keep this to encourage me not to chop it off when I am fed up…[Read more]

Hi Helen you and i also lol, thanks for your best wishes 😀

Hi Gill and that it is wonderful news I and my young Bride Family and Freinds Cant smile wide enough 😎

Hi Phil yep am up for that Long may it last and be trouble free 😀 and al do my best to stay safe 😀

Love to you all

Tom "Onwards and Upwards" xx

Hi Min
I feel like Gill,but I am also very proud of you,you have picked yourself up and started to find a new life,as David says we all know what the future has in store,but you are just showing it can be done.

I cannot find you on facebook Min,I would like to keep in touch,I will all ways be grateful for all your help with Slim,you kept me…[Read more]

Hi Dave welcome sorry but I havent got any useful information for you about second scts at your age It seems each hospital has its own protocol and cut off point. If your pps are rising slowly and there are no other symptoms then maybe the drugs available now would be a safer option Good luck in making your decision Bridget

Hi Dave

Welcome! It will be encouraging to folk reading your post that you have managed to dance with this dreaded MM successfully for so long.

As your PP levels are so low and you have no other symptoms, why would you be thinking of any treatment at the moment?

I haven't had a SCT. My current PP is 13 and I have no inclination to go…[Read more]

Hi Sylvia the gremlins manage to hide a few posts on here just like they hide things in my house!! I cant remember where I posted it either ! Its good to hear from you though Stay well love Bridget x

Hi Jean and frank
Well thats good then as I have a problem with my right arm and its nothing to do with MM its just that I have strained it too many times, I never learn when i need to just get that bit closer rather than trying to stretch my arm I should move closer or move the Table.

Good Luck when you see the consultant

Love
Tom…[Read more]

Hi Dave

Yes I try to go on and answer a newcomer as soon as poss as i know when I first found out I had MM and posted here and other places it was the waiting for a reply that I found frought :-S so even if I dont know the answer i feel beeter just to say Hi.

Good Luck on your road to Remission Dave.

Tom "Onwards and Upwards"

Hi Sylvia, Thanks for that and yes am sure we do want to hear about the Good results, and my treatment is not that new or strange, i was on CDT for about 5 months and during that time I was taking about 49 Pills a day :-/ then went on to Stem Cell Transplant and walla I found myself in Remission and now drug free, Sylvia dont ask me what my PP's…[Read more]

Hi Tom

Frank had a full skeletal X-ray and a MRI at last visit and consultant said there were no changes so he is back to thinking it is muscular. It has been going on so long. Seein consultant in 2 weeks so might get somewhere.

Love Jean x