Hi Tina

Sure you will have found all contributions helpful. Aren't they a lovely bunch on here!

Hi Carol

So glad your good phase continues, I found your comments about wigs really helpful because it is something I have worred about, even though it is, hopefully, a long way down the line.

Enjoy your riding and hope you get that door…[Read more]

Haha sorry me too I should have read your post properly sorry Good luck with the harvest Bridget

Hi

Thanks for the replies, it means so much. I realise that we arent alone with this unfortunately and that others are suffering too, life can be so cruel. Thankyou to the both of you for your positivity. I'm so sorry to hear about how MM is affecting you both. Dans skull has started to strink and we are finding craters all over his head now, I…[Read more]

Hi Graham

Well its a start and getting on with the NHS for you is another first, good luck with your MRI and all the best for April (wont be long now)

Tom "Onwards and Upwards"

Hi Terry, First of all Good Luck with it all, and now for the movement? do you know what you are having fitted? I had a Femerol Line inserted (groin area) and that had if I remember four other tubes coming out of it and with those they gave took and did everything, Harvested My Stem Cells, returned them and gave me a blood transfusion and two lots…[Read more]

Hi Tina
Glad your going on the trial as you will be monitored really well and the medications used seem to be having a good impact on the MM for most people.
Regarding the side effects of the treatment and SCT – well, like you I was really worried about the hair loss all the time up until the SCT – my poor husband spent a BOMB on having a wig…[Read more]

Dear Sue thank you for thinking of me when you and Michael have so much on your plate too. I know how Michael feels about not knowing being the worst it is making me nervous too Today is the third day my dex pulse 40 mg a day for 4 days to try and stop the tumour from getting any bigger and crushing the spinal nerves Trouble is dex is just awful…[Read more]

Hi Liz thankyou I feel very lucky to have the support from you and all my cyber friends on here its what makes this site so special Take care and hope you have a good weekend love Bridget x

Dear Mavis thankyou for your kind words you always put things so well from the heart. I am lucky in being mobile still but that causes the medics to panic as I dont react the way they expect me to!! When I was diagnosed they couldnt work out how I was able to walk when 3 vertebrae had been destroyed and this time they are really anxious as the…[Read more]

Hi Nikki
Your Auntie maggie seems to be one tough cookie to not realise she had a broken jaw, lesions are often there in advanced myeloma they should respond to treatment sounds if Maggie is on CTD which which is first line treatment.

The issue seems more to do with your aunties lung situation,swelling when people are bed ridden is usually…[Read more]

Hi Terry good luck for Monday it wont be a walk in the park butit doesnt last for ever and to be drug free and have a long remission makes it worthwhile. I agree with David a laptop and phone are essential to stop boredom and you wont feel so isolated Perhaps you could ask if you can take your own pillow in hospital pillows are horrible npoisy…[Read more]

Hi Pilgrim
Well lets start as we mean to go on,plasma cells,every person has up to 5% in there bone marrow,this is normal,I wish that my husband had that.
Who needs a left arm,any person that does not have the use of one.
I hope you are breaking open the champagne as I type,or may I suggest walking a mile in some ones shoes who has a disability…[Read more]

Dear Sue I can only imagine how tough the last few months have been for you both , it really seems so bloody unfair after all you have been through . I hope that radiotherapy does the trick , as you say its been caught early and from what I have read the success rate is pretty high. I can understand how poerless you must feel when there is no…[Read more]

Hi Geri

Yes I found you On F/B and am pleased you will be gentle 😀

Yes am doing great its been well worth the bad bits and bobs to be in Remission and have NO ongoing treatment needed nor needing to be planned 😎

I wouldn't shove the books or mags to the back of the wardrobe I had mine on table in living room and would use them if I…[Read more]

Hi and welcome
I think everyone has said it all at present but just wanted to add my very best wishes to you.
This is such a frightening time and my heart goes out to you having been through the mill myself since 2005. I have had the chimo and SCT and at the moment am enjoying a period of relative good health so hang in there! There is so much…[Read more]

Hi Tina
So sorry that we are meeting because of your bad news you must be reeling at the moment. At least you have come to the right place for some support – ask anything at all as anything that worries you is important.
I had my SCT in Feb of 2011 and although my recovery has been slower than I would have liked I am sure that is because I am a…[Read more]

Hello Kerry
Sorry you have both had to join us and that your having such a rotten time at present. I think everyone has said just about everything – thats the big thing about this site, having lovely people share their knowledge and practical advice is such a support.
Hope that the pain is now getting sorted out and that things are a bit calmer…[Read more]

Hi Kerry and Melvin

A warm welcome to the site and sorry it seems to have hit fast and hard, take it in that when they find what helps Melvyn everything will fall in place, keep srtong its an uphill fight.

Tom "Onwards and Upwards" xx