Oh Sue

I am so sorry to read about your Cancer its a bloody bugger. I hope you soon get that one sorted out and the treatment you have is not as evasive as MM treatment is.

I know its not much of a help but we also have Double Cancer in our Home 🙁 Eliane (the young bride) was diagnosed with Breast Cancer In Jan 2008 and I was told I had…[Read more]

Hello Kerry
So sorry to hear about Melvin it must have been such a shock as it is for us all I have been lucky not had bone damage but my kidneys have been badly damaged. This is such a good site for support help and advise and the myeloma help line can be invaluable they are so kind and informed
love to Melvin
Rgards Jo x

Dear Ros

Sorry for the loss of your friend on top of everything else. You were very brave to be going on your own today. I do hope you coped well and thast the service brought some comfort. At least your friend, like Michael is now free from pain.

I'm sure your counsellor is right – you it is as if you have lost three people. I can't…[Read more]

Hello Bridget
Just thought I'd look in on the forum and the first one I saw was your post so sorry to hear your news and I do hope whatever of the options they try is successful! You always send positive and kind words and you are a smashing lady, keep thinking positive and me and kev send you cyberhugs .

Love liz & kev…[Read more]

Hi Dai

It really does seem one step forward, one back for you. Oh the frustration of not having enough pp! Sounds crazy doesn't it. Do hope you make the Trial. Something must work out for you soon. As you say, at least you respond well while on the therepy – trouble is the limitations it places on your life.

Sending all good wishes and…[Read more]

Dear Bridget

My dear cyber friend, I could have wept when I read your post which I have just caught up with. I have been thinking about you and thinking I might post to see how you are. Now I know – what a downer. I shall put you on our daily prayer list so I send you positive thoughts each day! We all love your positive attitude on here.…[Read more]

Hi Bridget
Sorry to hear your news,lets hope they can treat the area with Radiotherapy again,lets hope you can go on one of the new trials coming out.

Hope you are enjoying your new computer,and enjoying your days .Eve

Hi Tina
As Mavis says there are lots of trials and treatments.
my husband is on MX1 trial,but trial or no trial some were along the treatment you will get the offer of SCT if you are fit,but that is usually way down the line.

You need to find out all the information about the trial offered and if you need some answers from the patient or…[Read more]

Hi Kerry
Welcome to this site,i will not even try to tell you not to worry,but advise you to learn all you can and things will not seem so scary,ask for booklets at the hospital or phone Ellen who will send you some.

Blood clots not very nice but once treated and on going treatment for them during Chemo solves the problem.they can be part of…[Read more]

Hi Geri

Not a problem Girl ask away and you will have answeres 🙂

As for me (56 years young) was told in Jan 2009 that I have MM since then I have had CDT and a stem cell transplant in December 2009, and am still in remission and having NO treatment nowt zilch nothing, and that Geri Feels Great.
Anymore Q's feel free to ask

Love and…[Read more]

Hi Sue

So sorry to hear that you and Michael are having such a hard time. Do hope you both turn the corner soon.

Lots of love.

Mavis x

Hi Tina

Welcome to you too! Sorry you've had to join us. Do hope your shoulder is healing well and you are getting movement back. Was this because of MM or because of arthritis? I have both!

I haven't had a SCT but there are lots of folk on here who can give you advice.

All best wishes.

Mavis x

Hi Geri

Welcome to the Site. Sorry you have had to join us after evading it for four years. You have a lot to cope with with Crohns and your impending operation. You need all your positive thinking to help you thorugh. I know it does make a difference.

Sorry you are having all this bone involvement. Have you been on Zometa infusions? I…[Read more]

Hi Tina

A welcome to the Site from me too – sorry you have had to join us. Perhaps you could give us a bit more information on how you got to the point of diagnosis: there are so many routes, as you will find out!

Lots of folk on here have has SCT and can give advice. Also, Trials give access to the latest thinking and very close…[Read more]

Hi Kerry no wonder you are scaredits so bewildering and frightening at first but it will get better The plasmacytoma can be treated with steroids initially to reduce it and then radiotherapy is amazing at getting rid of tumours , I dont know if thats appropriate for your partner but I am sure his doctors will be looking at the best and quickest…[Read more]

Hi Kerry

Sorry to have to welcome you to this special Site where we are all fighting the dreaded MM. You will find lots of support here.

No wonder you feel phased – you both have so much to handle at the moment.
First things first. If Melvin is still in lots of pain tell him to ask to see the Hospital's Pain Team, if he hasn't already.…[Read more]

Hi Tina

A Warm Welcome to the site and I hope your road to remission is a good one.

I had my SCT in December 2009 and am still in remission and doing pretty good.

Keep us posted and ask away

Love Tom "Onwards and Upwards" xxx

Evening all I have now ordered the laptop from PC World who say I am saving £220 , well dont believe that but I am saving a £100 so very chuffed !! And it will arrive on Thursday yippee !What a difference a day makes love Bridget x

Hi Roberta lovely to hear from you and thankyou for your kind words. Sorry you have been unwell I hopethings start to get better for you very soonStay in touch when you are up to it love Bridget x

Hello Dia

glad you can stay positive although it must be hard. The rev and dex can be a regime its only low dex as i understand it there is a lady in my support group who has been on this regime for over four year and is still in plateau she could not take other meds thalidomide or velcade,fingers crossed for the 5%
Love and (((hugs)):-)
Jo x