CAZ1 replied to the topic WORST DAY YET in the forum Newcomers 14 years, 5 months ago
Hi Nicola,
I'm the other Carol (I think there are 2 of us), and I echo the other comments about the poo problems with your Dad, Micky -not nice for either party involved ( I say that as a patient and as a nurse) and I hope they are all resolved now.
On the fund raising side, my eldest son,Michael Jr ( cos his dad is Michael as well) decided off…[Read more]
CAZ1 replied to the topic New kid on the block! in the forum Newcomers 14 years, 5 months ago
Hi bikerchris,
I have been quiet for a while, but welcome you to this very supportive and exclusive band of people who dance with MM. This is not a text book disease and affects different people in different ways. The enormity of your diagnosis also cannot be taken in in one sitting- and can be very frightening if information is collated from…[Read more]
mhnevill replied to the topic Good News Good News in the forum Treatment 14 years, 5 months ago
Dear Gill
What great news. I am so pleased for you and Stephen. Do hope this phase lasts and lasts, and gets better and better.
Very best wishes.
Mavis
eve replied to the topic Good News Good News in the forum Treatment 14 years, 5 months ago
Hi Gill
Such good news you both must be very pleased,Stephen should be a little bit better on the lower dose of Dex,and this might be the time to have those conversations :-)I believe the kidneys can regenerate,so any damage can repair.One day at a time Gill and you will soon be in France again.8-)
Slim was trying to reduce his dose of pain…[Read more]
jmsmyth replied to the topic Good News Good News in the forum Treatment 14 years, 5 months ago
Hi Gill
Your wonderful news made me cry – with happiness. Stephen and you have both been throug so much and it was brilliant to read. I echo Jo = hope things get even better. You know yourself what posts like this do for us all.
My love and best wishes to you both.
Lov Jean xx
jmsmyth replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 14 years, 5 months ago
Hi Jo
Good to hear from you and have fingers crossed that you get the all clear in April. I am recovering from the dreaded tummy bug and staying away from Frank – don't want him to get it. Frank has his good and bad days. Still not on treatment. Mind you – on the Myeloma Beacon, their is reseach going on in Spain that suggests that patients…[Read more]
BADGER replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 14 years, 5 months ago
Hello Jean
I am so surprised that some of these good shows dont come to Belfast its a nice city and now the troubles are over I am sure they would be well attended some one should but in a suggestion .I hope you and Frank are keeping well
Love JO X
BADGER replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 14 years, 5 months ago
hello Eve
nice to hear from you we have a few days away this week in the New Forest I hope it stays dry.
I love the theatre but not in love with musicals but Geoff is so I treated him he does so much for me he deserved a treat, then I scratched the car and he didnt moan so another treat is due!!
I am still in Plateau only 5% mm cell in my…[Read more]
BADGER replied to the topic Good News Good News in the forum Treatment 14 years, 5 months ago
Gill
what wonderful news I cannot express how pleased I am for you and Stephen long may it last or even get better something to cheer us all up:-D
Big ((hugs))
Jo
brocho started the topic Laptops. in the forum Off topic 14 years, 5 months ago
Hi everyone I just need to pick your brains please My laptop gave up the ghost last week , apparently they are only expected to last between 3 and 5 years.As I am on benefits I cant afford a new one so I looked at sites offering reconditioned ones from as little as £150 Trouble is I am a bit nervous about buying usedelectrical goods as there is…[Read more]
brocho replied to the topic Good News Good News in the forum Treatment 14 years, 5 months ago
Hi Gill what wonderful news after all the stress you have had recently Guess you will be off to France soon? Go and have fun, relax and enjoy life, put mm to the back of your minds Love to you and Stephen Bridget x
brocho replied to the topic myeloma and osteoporosis/collapsed vertebra in the forum Newcomers 14 years, 5 months ago
Hi Christine and welcome I am sure you will find this site as invaluable as I do. Sorry I cant be much help re collapsed vertebrae though. In my case I had 3 vertebrae completely dstroyed before being diagnosed, the doctors used to shake their heads in amazement because I was walking around , mind you the year of absolute agony was no fun Before I…[Read more]
eve replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 14 years, 5 months ago
Hi Jo
Good to see you have got over your food poisoning,and back to your old self.
I get up to London occasionally ,last time to see Mama Mia with my daughters,unfortunately Slims has no interest in the theatre .
One of my Christmas presents are tickets to see Calender Girls locally in Canterbury in February,So a nice evening out for…[Read more]
eve replied to the topic REMISSION. in the forum General 14 years, 5 months ago
Thanks Dai
The penny has dropped.
Slims tried to come off his pain tablets a few times plus since not being on chemo he has forgotten to take his tablets going to bed a few times,specially when he was on ant-biotics ,because he had to take them on an empty stomach and his other tablets with food,he is the one that controls his tablets,as he…[Read more]
eve replied to the topic REMISSION. in the forum General 14 years, 5 months ago
Hi Phil
Thanks for the good wishers,cannot book a cruise yet,even though we were hoping for a last minute short cruise from Dover.Slim has not heard from Kings and we have a number of hospital appointments in line,if I could get some dates,we might be able to get away.we do need this break.
I am finding this remission is Like a new ball…[Read more]
eve replied to the topic Barry White Vs Lee Marvin in the forum Off topic 14 years, 5 months ago
Hi Dai
From the sounds of it i would agree with Janet,except Lee Marvin was tone deaf.
Think your self lucky you can sing,at family events after a few drinks,if I made any attempt to head for the stage to sing,it use to be a race to stop me getting to the mike,even singing in the bath is banned:-(
I think singing is an expression of happiness.…[Read more]
tom replied to the topic Grief in the forum End of Life and Grief 14 years, 5 months ago
Hi Dai
Yep I and manymore know how you feel, but I intend to live long enough to see my youngest Grandchild get married 😀 and am sure My Sons will be having Kids for years to come Lol 😎 so I will never say never and long may My sons be fertile he he.
Good Luck with it all Dai and keep strong.
Tom "Onwards and Upwards" and waiting…[Read more]
tom replied to the topic My mum was diagnosed with MM in December 2011 in the forum Newcomers 14 years, 5 months ago
Hi Mandy
A Warm welcome to the site and hope your Mum's Journy along the road is a good one and your Mum takes it one day at a time, dont expect great things as it takes time to find out what works.
Hope your Mum gets on the site as am sure it will be of a great help to her like it has and is to myself and all the others on here.
Love…[Read more]
tom replied to the topic REMISSION. in the forum General 14 years, 5 months ago
Hi Eve and Slim
I know all about the one forward and two back 🙁 but hey take it from me its worth it 😀
And I am sure you will both be very welcome into the "Onwards and upwards" Gang as we have an Open House 😎
After My SCT I was not too well and thought it would never get better as it Seemed ages before I felt half normal, as I…[Read more]
jmsmyth replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 14 years, 5 months ago
Hi Jo
Sounds brilliant. Always wanted to see Phantom of Opera but don't think it will ever come to Belfast. Enjoy your brekkie and hope the rest o the weekend is great. Keep well.
Love Jean xx