Hi Gill

Gill you should never feel like that,this is when you need this site the most,because it,s hard to talk to family about it,and most of us carers have earned are stripes with DEX.:-/

I am able to say to Slim is it the DEX talking or Slim and he does calm down,its a bit harder in public ,when he makes a remark that,s uncalled fore. I…[Read more]

Dear Chrissie I am so sorry David lost the fight against this wretched illness , he fought hard with you by his side Dont have regrets savour the lovely memories you have David will always be with love Bridget x

Hi Clara its good to hear from you and brilliant to hear your dad got such a good result after his treatment. Now you can all get back some normality in your lives and relax , after all the stress of last year you certainly deserve some fun.Happy new year to your dad and all your family love Bridget x

Hi Eve not sure what your question is , Gary has qa sister who has just been diagnosed with mm. love Bridget x

hi Everyone
Can some one tell me what has Gary O Brien??????? Eve

Hello Dai, just can't believe your news kev went on Monday for his checkup and the way he's been feeling you do think the worst, but in the end we came out with a little smile and relief! And I'm sure you are in good hands at the nottm city.
Good luck with the new trial when it begins love to you and Janet thinking of you!

Love liz & kev…

Hi Helen
I don't know anything about Cardamon although i am doing some research on it. Going to ask consultant about it. There was a thing going round a couple of years ago – think it was Curcumin. Not sure if is same thing Myeloma Beacon is an organisation in America which gives information on Myeloma. Not sure what other members of forum…[Read more]

Hi Helen and John

Gosh what a job they made of the BMB, I have been very Lucky with the Nurses and Dr that did mine, ye I knew I had it but could drive home and even went to work the morning after my first one :-0 yep it hurt but hey ho it has to be done 😀

And gong back to the shaver I had to get one when I had my Transplant so I did not…[Read more]

Hi Chrissie

So sorry to hear that David finally lost the battle to live. He certainly gave it his best shot.

Of course you feel realy broken up and wondering how you will cope. It is such early days the pain of your loss will be really acute, and it is almost worse when you have been a very close couple. It is good that David was able…[Read more]

Hi Helen

Just caught up with your posts. So sorry John has had such a bad time these past few days – just when you would have liked plain sailing to his SCT. I do hope he bounces back soon.

I expect that trying to work out the connection between MM and other cancers, and how we got MM, is something a lot of us on here do. I had uterine…[Read more]

Hi Clare

Sorry to hear that you are feeling down. My husband has MM and when diagnosed I went to pieces. It was organised for me to see a counsellor through Action Cancer. I went and it was a disaster. Although I just met the counsellor, there was nothing between us. I got the impression that she would rather be elsewhere. I never went back.…[Read more]

Hi Mari and Steve

You are more than welcome and am pleased Steve is better.

I know how Steve feels liking the beer but it does bloat you up with the treatment and I found Vodka was better for me or the odd bottle 😀 of red workes for me also.

I do my Vodka with Lemonade but only a little bot of lemonade 😀 and a good glas of vodka…[Read more]

Hi Heather

Great to read you are More positive again.

As for exersice I love a walk and bought myself a new Bike (i know i spoil myself:-D ) and my Dr said it was Ok as long as I dint do mountain climbing with it lol.

Take care and Keep fit

Love Tom "Onwards and Upwards" xxx

Hi Eve and Slim

Well as you know I am in remission and only have Zometa every four weeks, but thats not to say I am back to my normal self (even if i knew what normal is/was)

Had SCT in Dec 09 Back to work May 2010 and still working (well clocking on lol)

I had to get some sleepy Tabs to help me to have a half decent nights sleep and…[Read more]

Hi Chrissie

Iam so sorry to hear about David its such a shame to lose some one to this Bloody MM.

Please dont beat yourself up over wether you should or should not have started the treatment as you know David was a fighter and wanted to do his best to beat it.

Love and Hugs

Tom xxxx

Hi Chrissie
I am so sorry for your loss,I am also awake in the early hours wondering what the future holds,we never know what to do for the best, you just try to do your best and try to remain positive.

People who have been through the same thing will reply to you,and try to help you get through this awful time,just try to remain positive,and…[Read more]

Thank you everyone for your good wishers and advice on SCT.

Still waiting on letter from Kings.!!!

Slim stopped Chemo a week before Christmas and has not been well since,it started on Christmas day,and has gradually got worst,on his last blood test on the 28th his kidney level functions were just starting to rise,so more blood test this…[Read more]

Hi Kay

Aww Bless If its not one thing its another 🙁 Gout is pretty painful or so am told? heres me thinking you could only get gout in your Big Toe :-S yep am a numpty of the first order:-/

Hope The Tabs work untill all bloods are checked.

Love and cyber hugs

Tom xxxx

Hi Sarah and Henry

Sorry but I have never suffered headaches, I hope Henry soon gets them sorted.

Tom "Onwards and Upwards" xxxx

Hi Mari and Steve

Well am pleased that Steve could drink on the combination of drugs and to be honest I never asked if I could :-0 Just thought if I shouldn't then they would have told me he he so it was out with the Vodka and red wine 😎 and here I sit in remission so it dint do me any harm 😎

Hope Steve's ear is soon better and back on…[Read more]