KerryDowell

  • Hi Helen and John

    I have never heard of the link between them both, just popped in to wish you both well.

    Tom "Onwards and Upwards" xxxx

  • tom replied to the topic The Holiday Is Over in the forum Treatment 14 years, 5 months ago

    Hi Bridget

    And al tell you you done more than me i am not sure where our washing machine is lol.

    I know that whatever this MM throws at you you will thrash it

    Lost of hugs and Love ((())

    Tom "Onwards and Upwards" xxxxxx

  • tom replied to the topic Velacade in the forum Treatment 14 years, 5 months ago

    Hi Nicola,Micky and the "Dick Head"

    Love the name your Dad gave it lol, and am pleased you Micky are having a bit of a treatment rest we all need one or two of those in the fight of the "Dick Head" (could be a film name that lmao)

    Wish I lived near you all as that bowl of trifle sounds great (aint had that for years and years)…[Read more]

  • tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 14 years, 5 months ago

    Hi Kay

    What a roller coaster for you πŸ™ and isn't it great to be told you have rheumatoid arthritis πŸ˜€ well it is better than bloomin MM in our bones 😎 and Kay if your pleased am pleased good luck πŸ˜€

    Love Tom "Onwards and Upwards" xxx

  • Hi Dai and Janet

    Sorry to read about your loss of remission (just a temporarily loss am sure)and Dont worry Janet we all know that Dai can do it:-D

    If anyone can do it your the man 😎 I know how you feel when you see your consultant looking at the screen and you notice the odd twitching.

    I hope you get the treatment you like and am…[Read more]

  • Hi Everyone

    Its now 2012,time goes so slowly when your young,but as the years pass they seem to fly,so my word has to be

    YEARLY I know it leaves RLY

    But it seemed to fit into the new year. Eve

  • CarolBradley1 replied to the topic WORST DAY YET in the forum Newcomers 14 years, 5 months ago

    Hi Nicola

    Glad to hear your dad is improving. You are a super daughter and he must be so proud of you. Please try and look after yourself too although I know itΒ΄s really hard when life is so difficult and busy.
    Best Wishes
    Carol

  • jmsmyth replied to the topic Myeloma beacon info in the forum General 14 years, 5 months ago

    Hi Amelia

    What is cardamom and where do you get it? I have never heard of it before. Any info would be appreiated.

    Jean

  • Hi all

    Received email from Myeloma Beacon. Interesting reading. Anyone heard of this – Cardamonin. Here's the link

    http://www.myelomabeacon.com/news/2012/01/12/beacon-newsflashes-january-12-2012/

    Love jean. xx

  • Hi Dai

    Just been looking at a site about the trials,sounds very interesting you better hurry up with that 24 hr bottle,as I got the impression that it,s only 700 per country.
    Those big bottles get heavy,cannot tell you how many Slim has filled plus they are heavy to carry any distance,so as well as the brown bag it pays to use a couple of…[Read more]

  • Hi Dai

    Sorry you have this bereavement to deal with along with everything else. It's so hard to make sense of it.

    Hang in there and value each day you are given without feeling guilty as you have so much to cope with.

    Mavis x

  • Hi David,

    Just know you will get to your 50th Anniversary and much beyond. Let's face it, in the scale of things, even though your PP is measurable, the figures are still very low. Mine is now 13 and still no treatment apart from zometa.

    Onward and upwards as always!

    Mavis

  • Hi Dai

    I just can't understand why you should be having such a difficult time – one d–m thing after another. I do feel for you and Janet. Will keep everything crossed that you get on the active arm of the trial.

    Good job you are both the sort who won't give up. I will also keep you in my prayers.

    Lots of love.

    Mavis x

  • eve replied to the topic Nicole Sweet in the forum Off topic 14 years, 5 months ago

    Hi David

    Just watched the video,it does bring home about lack of wards for seriously ill teenagers,as you know,my grandson who has CP spends a lot of time in hospitals,last time because he is now 16,he was put on an adult ward,one side an old man coughing phlegm all night,and on the other side,a man making the most fowl smells,with my daughter…[Read more]

  • eve replied to the topic headaches in the forum Side-effects 14 years, 5 months ago

    Hi Sarah

    Just looking in ,could not help with headaches ,but hope the consultant helped on the last visit.Eve

  • tom replied to the topic Is it back? in the forum General 14 years, 5 months ago

    Hi Amelie

    Am sure you know I had a successfull sct in December 2009 and am still in remission πŸ˜€

    But yes I have pain right ribs and Hips bu I have put that down to "Old age" and hard work over the years putting a strain on iccle ole me :-/ and My Dr has confirmed that the MM is not back 😎 and I might be wrong but dont levels go up and…[Read more]

  • Dai My Condolences to you and Yvonne's family at this sad Time.

    I also have seen friends pass away with Cancer that was diagnosed after I was its such a sad time.

    Hope you are keeping well and Take care.

    Tom x

  • Debs replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 14 years, 5 months ago

    HI Kay,

    I am so sorry that you're having to think about all of this so soon after transplant. I feel terrible that I haven't emailed you recently. I hope that your results on Monday went ok …have you been put on Revlimid…I'm on that and so far things are ok (although I may ask to come off it as I seem to get permanently ill….not how most…[Read more]

  • Debs replied to the topic WORST DAY YET in the forum Newcomers 14 years, 5 months ago

    Hi Nicola,

    I'm sorry to hear about your dad being in so much pain and feeling so down about it. But it sounds like you're doing an amazing job in helping him to stay positive.

    I haven't been on here much recently as I haven't been too well, and now I am busy….trying to organise my first charity ball!! I'm no expert on it and if you speak…[Read more]

  • Hi Gina
    What is a fright night ????

    Glad to see you are getting on with your lives,it,s hard but it is what your mum would have wished,remember you have good memories there,and that is important,i found the worst thing in the early years was wanting to pick up the phone to tell my mum some news,that,s what I found hard.

    But life goes on,and…[Read more]

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