Hi Nicola good to hear your dad is home again and having a break from treatment Sometimes a short break is just the thing to get your strength back ready to fight the next round . I laughed out loud at your dads name for myeloma so tell him thanks from me for making my day ! Enjoy the time doing ordinary things together, the eating sounds good,…[Read more]

Hi Graham

good Luck for Thursdayay 😀

As for symptoms well I went to my GP for what I described as if somebody had rolled up a towel and pushed it under my Lower rib(left side) I was told it was either a pulled muscle or a bruised rib? and that as they say is the start 😎 Once again Graham all the best for thursday

Tom "Onwards and…[Read more]

Well Dia
lifes a bitch:-( I am so sorry about the short remmission I will be praying for you in the hope your results are right In America they are using carfilzomid a lot I have been reading James Berensons blog and he has great hopes for this drug.:-) It will be a long haul but I would definately go for it you have nothing to lose
A GREAT…[Read more]

Hi Glenn
I turned 40 this year,when I got brought into hospital last year i had compression on my spine which could of stopped me using my legs.(I had just been mountain biking and walking in north west Scotland)Had radiotherapy and now on RCD pathway (Myeloma 11 trial).Upper back still aches but Thats about it and went into remission in…[Read more]

Hello Dai
Sorry to read about the short remission but you are a positive bloke hopefully this new combo will turn things around.
I two had a blip over Xmas & new year not related to Myeloma directly.I went for a gentle cycle along the canal near home just to keep things moving after the Xmas glut. Anyway came to a arch bridge going over…[Read more]

Hi Dai

So sorry to hear your news.All your hopes built up then crashing down again,this is what we felt when Slim was on CTD one minute on are way to remission with kappa light chains at 10,bone marrow taken for trials only to be told when we saw consultant,that he was shocked to find it had gone up to 80% in bones although kappa light chains…[Read more]

Oh Dai it really does seem unfair that your hard won remission was so short! It sounds as if your excellent doctors are really on the ball thoughwhich helps to take the sting out of it a bit though . I will cross everything for you to get the Carfilmozib on the trial Hang in there Dai your strength and wonderfully positive nature will get you…[Read more]

Hi Michelle

Just thought I would post and see how you are both doing? I hope Hubby is still staying strong.

Sending Hugs and Love

Tom ((())) xxxx

Hi Gina

I for one am doing great Thank you for asking 😀 I hope you and your lovely Family are doing good? and hope the new hubby is doing as he is told (like me lol)

I know you will still miss your Mum as I do mine, My Mum "Mary Doll" was not aware I had MM before she passed away I/we did not feel the need to cause her more…[Read more]

Hi Micky and Nicola

Its Good to have a name for your Dad 😀

I hope you remember that you need to have some space to yourself rather than all MM problems that way you can help Micky better 😎

As for the Fund-Raising I myself have never tried it :-S and admire those that can do it 😎

Catcha Lata say Hi to Micky for me 😀

Love…[Read more]

Hi Eve & Slim
Great to hear the good news and a positive 2012.
Paul

Hi Nicola

Am pleased your Dad (am sure he has a name lol) is feeling Perky as Perky is Good 🙂

Tell your Dad from me Work aint all that you know 🙂 But I know how he feels I needed to get back to work to prove to Myself that am fit and healthy (now i should be so lucky he he) and now I feel as if I am near ready for packing it all in…[Read more]

Thankyou all for your replies and kind words I really dont know what I would do without all my lovely cyber friends lots of love Bridget xx

Hi Helen and welcome I am glad you felt able to post on here to get some support , there are so many lovely people on here who may be able to help. Sorry I am not aware of links between myeloma and prostrate cancer though. Your fiance has certainly been through the mill and I am sure the future must seem very bleak at the moment but hopefully he…[Read more]

Hi Nicola it must be a reief for you that your dad has managed to go to the loo Hopefully as the build up clears his depression will ease Its hard to imagine how awful constipation can make you feel , my bowels stopped working for several weeks before I was diagnosed although I was lucky not to have a painful blockage With you by his side I am…[Read more]

Well done those Tabs thats great news Nicola am sure in a few days your Dad will feel much better:-D

What your Dad said during his extreme discomfort and pain am sure when all has settled he will want to fight it all the way, your dad sounds like a fighter that was just a little punch drunk, now soon he will be putting on his gloves to fight…[Read more]

Hi May

And a warm welcome to the group. Sorry to hear about your Mum.

Its a worry when the treatment fails But there is a lot out their that will work its trying to find out what and when it will work. I tell Elaine (my young bride) when its time to sort things out the Dr will tell us just let them sort out all hiccups as we travel the road…[Read more]

Dear eve & slim, what great news go get on that cruise!

You deserve it love liz & kev xx

Hello Bridget, you absolutely amaze me going through your treatment and still doing the washing and putting away the shopping, my fingers and toes are crossed for you! Hope this treatment works for you.
Sending you hugs and thinking about you:-)

Love liz &kev xx

Hi David how right you are when you say it puts things in perspective people are just amazing in giving to others when no-one would blame them for concentrating on themselves. A huge loss not only to her family but to so many others love Bridget x