Hi Claudette

You are right it is a very individual disease. Frank trusts his consultant – what she says is law. I suppose that is a good thing to have trust. I can never remember what she tells us so I take a recorder in with me and the listen again when I am relaxed and write down what I need to ask at next visit.

I hope things go well…[Read more]

Hi Vicky

Hang on in there for your Dad. At least he is the right side of SCT and, we hope and pray, looking towards a long remission. Let's hope he is over the worse by Christmas and can get a bit of an appitite for his Christmas dinner.

Best wishes to all the family at this very difficult time.

Mavis

Hi Shirley

I share others' disappointment at your breathing complications. Do hope things improve as time passes and that you can really enjoy the Christmas period.

I admire your determination it is sure to pay off in a general improvement.

Love

Mavis

Hi Carol

So glad to read your good news that CDT is having such a good response. What a good thought to take into the Christmas period. Do have a wonderful time with your NZ daughter and the rest of the family. SCT is for another day!

Love.

Mavis

Hi Claudette
I am so glad you posted to Chrissie,and I am so glad I read your post,one because I hope your post gives Chrissie some strength,and two you have made me realise once Slims not on the trials any more we will be able to travel again in our campervan,go back to are way of life.I know I should just be grateful that he is still here ,but…[Read more]

Hi Bridget
Glad the treatment is not to harsh on you,how many cycles will you do before you have test to see if its working????
I agree with you about the blood test,the only thing that convincers us now is BMB,Slims blood results have always been good,and kappa lightchains do not show true readings. Slim does not mind BMB just finds it a little…[Read more]

Hi Shirley
Glad to hear you are managing to get out,have they given you a portable one,it makes all the difference being able to move about,out of the 4 walls.I have seen people on planes with the portable tanks,so there will be no stopping you soon.8-)

You sounded if you enjoyed your Christmas outing,turkey and all the trimmings?????.We do…[Read more]

Hi Shirley sorry I must have missed your post till now Your christmas dinner sounds great and its always nice to forget about mm for a while. I am so glad you are starting to feel better but as Roz says dont overdo things , mind you it sounds as though Stephen will make sure you dont Will you need oxygen permanently now ? Or will your lungs…[Read more]

Hi Helen yes it was a bit confusing and spooky but later I saw the funny side ! It will be a while before I know if it is working, I have to rely on bmb and mri scans together with any physical symptoms such as pain because I am now a non-secretorBecause of my own experience ( initially my pp results were accurate) I am always a little uneasy…[Read more]

Hi Amelie

Frank was diagnosed early. He was being tested for other things when they found out it was MM. they did the BM and had the MRI. at that time I did not know anything about MM so didnt know what questions to ask. The MRI showed a crushed vertebrae but the consultant said that it was an old injury and not related to MM. His kidney…[Read more]

Hi Amelie sorry if I was over generalising I did remember John is your friend but I was just giving the patients perspective. He certainly is a very active man and his mum too , obviously good genes in their family ! I am glad you can come on here for answers to some of your questions but it is hard to be specific when we each have our own myeloma…[Read more]

Hi only me I really feel for you its horrible watching our parents go through it It is not really a case of someone being able to give you a time table as to when your dad will feel better as everyone is different but in a couple of weeks time you will look back and be surprised how much better he is Just take it one day at a time, I know you…[Read more]

Hi Jean what I didnt say is I could not have got through the last five years without Jeffs support The thing about not telling you everything might be male pride but come to think of it there are times I dont mention little niggles. I really feel for you Jean as now my mum is very frail I feel totally useless but even with her I try and let her…[Read more]

Hi Meera great to hear life is getting better for you now. I admire your strength especially having a toddler to look after as well , but its a lovely age though everything is new Heres hoping you get your energy back up quickly just remember to allow your body time to rest when you need to Good luxk love Bridget x

Dear Gina and Linda

I am so sorry to read that your Lovely Mum has passed away my thoughts and prayers are with you all at this sad time.

From the posts that you both put on I know your Mom was loved and cared for and also you all were loved.

Please keep in touch.

Love and Hugs

Tom xxxxx

Dear Bridget

You are a very wise woman. I understand what you say and I know you are right. it's just I'm scared that he might hurt himself. We have a massive tree in our garden and all the leaves where on the road. Frank went out to brush and bin them and I was out like a shot to take over from him. It makes a lot of sense what you say but…[Read more]

Thanks folks and Grandson is a cutie also 😉

Yep Xmas is a great time and I also know we have more fun with the second round as it is all fun and not much hassle as it was the first time round.
The Kids love the Granddad cuddle chair more so when they are not well, even had one of them phone me to ask if they could come and have a cuddle in…[Read more]

Hi Carol
Well thats one stamp that was worth using I know 😎 its great to hear GREAT news and it wont be just a blip 😀

Well Done to you and your Team 😎

Love from another "Onwards and Upwards" Tom xxxxx

Hi Amelie and Jean and also Bridget

Well I concur with you Bridget I also feel well shall I say Close to useless when My young bride has done things that I was going to do at "The Week end" and when our three sons and daughter in laws seem to spend too much time looking watching over me I aint glass I wont break??? but if I do we will get it…[Read more]

Hi Amelie and Jean I was just thinking how hard it must be worrying about someone you care about but I thought it might help to hear the other side, the patients side It is a tricky one but I would not want Jeff to be hovering over me all the time .I already feel pretty useless because of all the things I can no longer do so I would feel even…[Read more]