Hi Izzie

Good Luck with the pencil in SCT but the sooner the ink is on the better lol,

I had a bit of PN  in 2009 whilst on CTD but not too much that it bothered me to be fair, just near got rid of it when the darned MM came back (was told December 5th) now on Velcade once per week subcutaneous and my iccle Dex, can just feel a slight change i…[Read more]

Hi Maureen and Ian

As if Lol, we had a great time in Chester its a great place, am sure we didn’t rest as much as we would have done abroad and it was nearly as expensive.

We would go back to Chester as we both loved it

Hope you two are doing OK

Love Tom Onwards and upwards xxx

Hi Stanley

Good Luck in your treatment, I was on CDT in 2009 prior to SCT same year.

I was four years clear and drug free after my sct  but as i knew it would come back it has, now on Velcade forth block first session go every Monday for it.

Back to the CDT I had to go on sick half way through my Third block and was off work for one year, that…[Read more]

Hi Keith

Sorry you have been unwell Keith, I went through that when I had mine in 2009, even post SCT i was near bedridden for about a month, the young bride used to make me a pack up and flask for me when she went to work (in case i wanted to eat ) it took its time Keith to be honest but one morning I just woke up and felt OK and i mean OK just…[Read more]

Hi Poppy

Fiona is right,take the time now,as time goes on your gran will not be able to enjoy your company.
People choose there own time to die,so no one can give you a time limit.
As long as your gran is comfortable and not in distress or pain,it will not matter if you are on holiday or not.
It’s a sad fact of life that many older people are not…[Read more]

Honest I will look at the link to see why my pistol get half left x

big hugs Jo xx

Hi Jo

yes am sorry about that

tom
how dare you party with out me How is the velcade treating you or is it those pesky steroids have they given you a date for the SCT is is still wait and see love to Elaine
Big hugs jo xx

Hello Andy EVE and david

my every sympathy to you all Andy you hospital sounds on top of things thank goodness cannot say the same of yours Eve and David its a big worry to me what sort of care I will get if I need the hospital again it was pretty good last time but who knows who you will
get another time it seems a bit of a lottery get well…[Read more]

Hi eaglesham

sorry to hear about your dizzy spells yes I had them when I had CDT in 2009, and to be fair I had to go on sick leave halfway through my third cycle, I was then off for a full year that took me through my SCT and recovery of that.

it put me into remission for four years so I feel it was worth it that so I am doing it again but this…[Read more]

Hi Ali

As Helen says ,it’s good that life has been normal for sometime and the Myeloma locked away!!

They usually pick up the Myeloma in the bloods,so the cat scan could be old damage,did mum have damage in the same area last time!!
If it is a new Plasmacytoma it can be dealt with on Chemo,Slims old damage and new damage showed on a MRI Scan,so…[Read more]

Hi Andy

We have been having whoops!!!!,so I thought I would tell you about it! So you have some idea about Whoops,s!! Lol

As you know Slim was in hospital discharged yesterday at 1 pm, home tired and looking forward to bed!! I was reading his discharge letter,because I had asked early about blood results,only to find his HB read 75,eventually I…[Read more]

Hi Stuart,

This is my test post from my blackberry.

Thanks,
Megan

Hello MM,

I agree with Rebecca, my understanding is VGPR is measured from diagnosis. My husband Phil took part in the PADIMAC trial which was looking at delaying the SCT if a VGPR (90% reduction) was achieved after treatment of velcade-dox-dex. In Phil’s case his pp was 32 at diagnosis and was down to 5 after the stem cell harvest, as this was…[Read more]

Hi Andy

Yes I am very tired,you would think with Slim being in hospital,that I would have some peace of mind???.
Any way he is coming home today,and will feel far more comfortable with that.

He has to go into A&E,you go through the whole routine,3 hours on A&E moved to back room,no beds,he was moved to a ward eventually, not specialised,they…[Read more]

Hi Andy

You are at the stage of the game were it’s important that every thing is under control,and you are making the right decision ,so all good,try to think back when you were a novice at this!!!!,now you go in and know more about your condition than most of the people you are dealing with!!!! Or do you go straight to unit and by pass…[Read more]

hi Mandy

Today I read another article from the Myeloma Beacon which again brought me back to you and your dilema and like our friend Eve who claims to be pleasantly plump lol said its a matter of attitude that will carry you a long way, and she is right , I consider this desease sly and deceitful and dos’nt care who you are, and so you’ must…[Read more]

Great news Jean. Hope Michael goes from strength to strength. Take care
Jean x

HI EVE
my home mail address is mamajo.russell3@gmail.com
love jox

That is good news with your love and care Michael should get better at home good luck and best wishes
regards Jo