Hi Dave
Tom said it you have been through the wars,and with the determination to walk again,I would say you are doing great,its a big thing,my hubby was lucky he had no compression of the spine,but a fair amount of bone damage.
if you have a look at under fifties there is someone on there who has eye problems ,I think that,s how Myeloma was…[Read more]

Hi Helen,
I felt the same way as you when Slim was in hospital and thought wait until he came home,but I was so busy,bathing and looking after him day and night,the complaint never got done,and my verbal complaint never was dealt with,he will never go on that particular ward again,and now I stand my ground I take the view I know when he is…[Read more]

Hi Dave

Well a warm welcome to this site am sure you will get a warmer welcome on here than you seem to be getting from the professionals 🙁

My you have been through the wars and done Bloomin well with it 😀 I can see this MM thing has got its hands full with you giving it a great fight8-)

As for the SCT after reading your past…[Read more]

Hi Benede, Passed I think? not sure what you were testing??

Tom x

Hi Gill
Well at least you are getting there,I know you said there was a good local doctor,who new about Myeloma,so that must be helpful if any thing goes wrong!!
How will travelling affect being on RCD????

We did have a week in Canterbury site as we had so many hospital appointments between us,it was cheaper and easier than travelling for…[Read more]

Thanks again for all your wishers,yes I did over do it a teeny bit!!!,i had Slims share as he does not enjoy a drink!!!.
He over did it by not resting enough,found all this energy,and paid the price on Sunday after the walk,has been sleeping most of the day and night,making up for not sleeping well on Velcade.
2 week of 5 cycle this week.
On…[Read more]

Hi Gill
RCD is the other side of myeloma X1 trials,Slim got CDT side,but we wanted the RCD,if that makes sense !!!
This is the one JET had and had such good results.As you know people are affected in different ways,but they can alter the dose,It looks if it will become one of the front line drugs for MYeloma but at the moment still a trial…[Read more]

Hows about YELLOW

LOW next

Jean x

Dear Gill

Sorry that Stephen is having to go down this new road. Let's hope and pray it isn't as bad as you fear. Lets hope the reduced Dex isn't as difficult on the nerves – yours as well as his!!!

Hope this will lead to a good long remission and make it all worth while as you have both coped with so much already.

Best…[Read more]

Dear Bridget

Thank you for your kind words. I feel much more cheerful now Kate and the boys have arrived, even if I did have to collect them from Leeds in thick fog!

Sorry about your rash. Hope it soon disappears. These drugs are so powerful aren't they, that they always seem to came with a price (side efects). Still my prayer is that…[Read more]

Hi Dai thanks for the tip working from the outside in sounds a good idea I will try that If Susannah or Tina reads this perhaps you can help me with some info I have developed an angry red rash on my feet and lower legs , ending just below the knees. Did Patrick ever have this ? Has Michael had anything similiar Susannah? How is Michael? I am…[Read more]

Short and sweet in a NUTSHELL —- ELL next love Bridget x

Hi Min

A Warm Welcome Home 😀

I am very pleased you slept well both at nite and by the pool in the sunshine, its Good to chat to Peter and am sure we dont know of any Man that dare to answer back ha ha.

I know your guardian Angels as well as Peter are still looking down on you.

Love and Hugs (()))

Tom xxx

Just bumping this up for newcomers who may not be aware of the under 50s site Bridget

Hi Penny
Sorry to hear about the diagnosis but from your post you sound up for getting your running shoes back on again! being positive is the thing to be.But you must listen to your body and when it says "rest" or "slow down" then you should.I did a 12 mile cycle ride around Derwent reservoir yesterday and really enjoyed it but today took…[Read more]

Hi Roz
You are coming up to your own 1 year soon!!,so my thoughts are with you,I have to confess when people say it gets easier!! I have my doubts the loss just becomes more acceptable,but it,s always there,but in time the good memories remain.
I hope you have planned to do something,even if it just opening a bottle of wine and enjoying that…[Read more]

Hi Everybody
I am on a bit of a high at the moment,slept well for the first time in ages.mind you G&T wine an d baileys helped.LOL but feel wonderful this morning and its such a lovely day the sun shining,and everyone seem to be out walking this morning.8-)
Min you were right about not giving up,and with out your support,i think i might…[Read more]

Hi Dad and Abi
Welcome to the site,It is no use telling you not to worry because your world has just been invaded by Myeloma,and your thinking this cannot be happening to your dad.
There is so much to take in,so just try to take it one day at a time,I found it useful to ask friends and relatives to stop phoning all the time,because I was just…[Read more]

Hello Abi and your Dad

A warm welcome to this warm band of MM'ers its a great site as you probably know by now 😀

Your first session with your Dad's Consultant will be scary and might get too much info at the start but fortunatly it will all fall into place as the months flow along.

Good Luck to your Dad on his forthcomming road to…[Read more]

Hi Eve and of course Slim

Congratulations to you Both, Slims Dr's and all the Nurses that has crossed you and Slim's Path a well done to you all.

Keep up the great work and you know that Slim and yourgoodself are an Inspiration to others.

Please see the attached Photo its your own Smily face for you Hope you like it.

Tom "Onwards and…[Read more]