brocho replied to the topic NO BLUE PETER BADGE !! in the forum General 14 years, 8 months ago
Hi Helen thankyou for making me feel less alone , I wont breathe a word!! I dont think I could ever inject someone else though , that has to be worse! My youngest daughter has Cystic Fibrosis and for years I did her IVs but only after someone else put the port-a- cath needle in, she always said she didnt trust me anyway!! Stay well love Bridget x
brocho replied to the topic Not New to the Forum in the forum General 14 years, 8 months ago
Hi Ted its good to hear you can relax for another few months without worrying about your results ! I hope that it stays the same for a very long time It used to be said that you knew you were getting old when policemen looked young but I find its doctors , nurses , teachers ( the list is endless!) so I guess I must be ancient Teehee love Bridget
brocho started the topic NO BLUE PETER BADGE !!. in the forum General 14 years, 8 months ago
Hi everyone I hope you are all ok , I havent been able to post much lately mainly due to having trouble staying awake for any length of time . I started on Bendamustine with Dex and Thalidomide last Friday , Saturday was awful as I was sick for most of the day but not been too bad since Because of the risk of DVT I have to have Fragmin injections…[Read more]
jmsmyth replied to the topic Not New to the Forum in the forum General 14 years, 8 months ago
Hi Ted
Great news. So glad to hear it. Frank is same. Consultant says everything is stable and does not need treatment. I am just so thankful. The A & E of the hospital has closed so if any Myeloma patient feeks ill they have to go to another hospital. Consultant hoping mad as she says patient in one place and notes and staff to deal with…[Read more]
brocho replied to the topic 3 Months Post SCT in the forum Related conditions 14 years, 8 months ago
Hi Keith great to hear you are doing so well Long may it last !! I hope you get your itchy rash sorted soon it must be so annoying love Bridget x
mhnevill replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi Dai
Like everyone else I am grateful you have taken this on.
I agree that getting results is very important to how in control we feel. Yesterday I got them from a nurse on s napkin!! She took them off the computer because I asked her. I nromally have to wait two weeks to get my para protein results and this is after my Consultation.…[Read more]
eve replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi Sue
just to tell you about point 2 of your questions?
Slim has Velcade twice a week dose has always been 2.3
We had appointments at 9 for bloods and 1 o clock for Velcade.
leaving at 8 in morning bloods taken then stayed in city,went back for Velcade by 3 o clock often no velcade getting treatment at 4.30,if we are lucky home by 6.We…[Read more]
tom replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi Jo
Sorry you have been poorly 🙁 BUT you also know how to make a young man "Blush" or is it cos my Commie is too close to the heater 🙂 and as for the Next to you am sure you wont need me nor anyone else for many a year to come 😀 al keep on keeping you all cheered up if you keep on keeping fit 🙂 love and Bigger Hugs ((((())))
Tom…[Read more]
BADGER replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 14 years, 8 months ago
Hi Mal and Bruce
Sounds Hilarious I wish someone videod it, would make good viewing
Keep well
Love Jo x
BADGER replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Oh Dear Tom
you are such a cheery person I would like you to be next to me if things go wrong I am sure we would end up laughing keep us cheered up Tom
big ((hugs))
Love Jo x
BADGER replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
HI Eve
thanks for asking about me I have not been too well last couple of weeks we both picked up food poioning I was so so ill it was affecting my kidneys it all happened just before info day so we couldnt go shame I was really looking forward to it my support group leader is hoping to get me a CD of the day if she does when I have finished…[Read more]
tom replied to the topic Holidays in the forum End of Life and Grief 14 years, 8 months ago
Hi Roz
I know you are correct it will be (well it dunt help) this time of the year Dark mornings and dark nights 🙁 aint good and the thought of another bereavement isn't too good either 🙁 Min is correct the loved one has passed away but am sure is still listening to you talk 😀 cant answer back but am sure they listen 😀
The Pills am…[Read more]
tom replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Oh Eve My you know how to make a man blush. "Tom walks away blushing":-) well I would if I knew how to Ha ha.
Yes Eve it has worked for me but I used to ask Q when I was on treatment but as am in Remission I have nothing to ask:-D and My Dr and I are very happy with that 😎
As most of you know I "worry about not worrying" he he Na my Dr's…[Read more]
eve replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi David
I know you are in remission,was it the same through treatment!!
I agree completely with you, in terms of getting results,and agree,you can almost see the reactions on the professionals faces(patients who think they know best).
I feel they have failed to keep up with the times,I do accept many people do not want to know!!! fair enough…[Read more]
brocho replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi Dai thankyou so much for representing us, you are a star! Sorry I couldnt add to suggestions my little brain is not working lately!! love Bridget x
brocho replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 14 years, 8 months ago
My offering is GERANIUM leaving IUM Min we have sunshine here too but there is a gale force wind with it!! love Bridget x
eve replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi David
I have no problem getting blood results I ask for them at the beginning of each cycle the nurses print them off,and I can see straight away if there are any problems.I find the chemo nurses are willing to expain anything I do not understand,and since Slim has been on Velcade take more of an active roll,concerning his general…[Read more]
jmsmyth replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 8 months ago
Hi all
REHERSAL. which life isn't.
SAL next
Jean x
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 8 months ago
Hi Everyone
how about a small one but still important RICHER
For having loved and lived giving HER,ans I am not talking about money.Eve
eve replied to the topic New and need advice on Myeloma XI in the forum Newcomers 14 years, 8 months ago
Hi Jim
What is going on!!!!has something happened ,have you all these e mails on your computer,going into trash can,or are you to ill to reply.
Hope it,s just the trash can eating them up rather than the latter.LOL Eve