Hi Gina.
So sorry to hear about your mum,you and your sister must be very worried,I can understand you not telling your mum until you know if its new cancer.
It does not sound good if its hit main organs,try to keep positive there is so much they can do these days,have they tested for this before,because she has been having lung problems for…[Read more]

Hi John
Good news for you both,Our hospital is still talking about it,do not know if Slim will have it as on MYeloma trials,have to wait and see.:-P

We asked about it sometime ago,its going to be a tummy job,we asked could it be done like clexane,so we could self administer no such luck.

Glad to know you are both fine,look forward to…[Read more]

Hi Sarah and Jenny
Just popped in to say welcome to the club.As you can see there are lots of people and carers who are ahead of you on this journey.

My advice to you is take it a day at a time,it,s a long journey both of you are on as patient and carer,so my advice to you both,is it,s a journey were some people do well and get of the bus…[Read more]

Hi Cally and welcome to the forum . I feel for you with the itchiness it must drive you mad! I havent got any tips as I have not had this problem but it sounds as if you have got some reassurance already Good luck and I hope it clears up very soon Best wishes Bridget

Hi John thats brilliant news I am so pleased life will be more comfortable for Cecilia now Even more amazing is her medical team listened and acted on the info you gave them !! I wish hospitals here would do the same especially on this issue with Velcade ut unfortunately they are being very slow . I hope Cecilias treatment continues to go well.…[Read more]

Hi Jenny

Am sure you will sail through the SCT, wont lie to you though its not a walk in the park (but pretty close) we are all different in our response to the different treatments for the MM, But as I had a SCT in Dec 2009 and am now still in remission I would go through it all again if need be:-)

Am Pleased you have good family support…[Read more]

Good thoughts on your next visit Ted 😀

I know how you feel am same everytime I give bloods and am in remission 😎

As for the thread Ted have never counted the posts but am sure it could be a winner He he

Tom "Onwards and Upwards" 😀

91 posts Ted am sure its the winner He he

I am looking forward to the definition of Dais word too!! Its a cracker! My contribution is too easy , sorry –AARDVARK Next is ARK love Bridget x

Hi Jenny

Welcome from me too! In view of the fact that you haven't had any support you seem to be be doing very well and keeping in good spirits. As Bridget say, keep your eyes on the goal of a long full remission. You will get there.

I am interested as to how you got diagnosed. Were there health complications and what was your para…[Read more]

Hi Ted

All best wishes for your appointment next week. I got an extension to three months thids time, but I know how it feels when appointment looms. One good thing is that now I am having Zometa injections I have a blood test each month so can keep an eye on blood results apart from PP.

By the way, yours must be about the longest thread…[Read more]

Hi Min
And you enjoy yourself on your Holls have a good time with Tony, and am sure your computer thing :-S work well when you are on your Holls.

Have a good Time
Love and Hugs ((()))

Tom "Onwards and Upwards" xxx

Hi Jenny

Welcome to our (now your) site and social club?

Good Luck on your treatment and forthcomming Transplant:-D I had mine December 2009 😀 and doing great8-)

Its a challenge each day trying to fight what you used to do? to now what you can do, listen to your body and when it tells you to rest (and it will) then rest.

Love…[Read more]

Hi Min

I hope you have a fantastic time. Try and enjoy every minute.

Love jean xx

I will follow yours with TITILATION which leaves ION for the next go love Bridget x

Hi Jenny welcome to the club!! Iam glad you are coping with treatment so far, just remember to be kind to yourself and take it easy when your body needs it any chores will wait for another day Whereabouts do you live? You say there is not much support did you mean there are no support groups? Hopefully there will be one you can get to so you dont…[Read more]

Hi Mal and Bruce brilliant news I am so glad Bruce is feeling a bit better Fingers crossed you get to go home before the weekend , no place like it is there! love Bridget x

Hi Mari am pleased you are both calmer and hope you are still same as its been a few days since I have been on here:-S

Love

Tom "Onwards and Upwards" xx

Well done Peter, I have never been to a Info day either ? will I get to one?? Lord knows too much on My agenda but I will try to get to one, you never know I might enjoy it he he.

Tom "Onwards and Upwards"

Hi Jim
I was diagnosed with Myeloma in August this year and I will turn 40 in December.Like you it came as a hell of a shock as i eat healthy and physically active to.I live on the Yorks/lancs border and receive treatment in Halifax and will have SCT at St James Leeds.My consultant acted very quickly with my diagnosis and spoke about the…[Read more]

Hi Sandy

Am pleased you are avin the spots sorted 😎 I had a Rash after my SCT but no one seemed to worried about it and it went away on its own :-D.

After My SCT I never stayed away from people just made sre they had no Illness and I sailed through the Post sc bit.

Love to you all

Tom "Onwards and Upwards" xx