Hi Gilly,
You don't say how long you have worked for them or what your contract says? BUT you are covered by the disability discrimination act and they should be prepared to make 'reasonable adjustments'.
I would suggest you or your union rep should go to Acas and ask for some guidance as you might have a strong case. Your local CAB might be…[Read more]

Hi Min so sorry for getting mixed up its what happens when I answer posts late at night when my poor old brain has gone to sleep. You will have a great time with your son let alone all the other stuff like sun etc! Great to hear you are feeling better and probably worth stiking with those little wonder tablets ! Min I think you are amazing with…[Read more]

Hi Peggy
just noticed your unfinished post,not that i can help you with side effect as Slim has very little,but can offer you some sympathy as its not very nice when these things are happening,
hope thing are a little bit better Eve

Hello Mal and Bruce

Sorry Bruce is not feeling so good I hope he picks up soon he must be feeling rotten I think fever goes with the STC so lets hope you can go home soon
Love Jo x

Hello Dia

so sorry you are not well why is it that the hospitals do not expect you to get ill over the weekend they must know as well as any body you get sick at any time of the week day or night We were supposed to go to the London info day but Geoff has a really bad stomach bug I didnt want to leave him as he is quite poorly:-(
Love Jo

Oh Dai sorry to hear S—s Law has struck again and you are feeling rotten too! I hate it if I have to go to hospital on a FAriday because the chances are very little will be done over the weekend and I end up stuck on a ward when I know home would be a much better place to get well Trouble is there are times when I have been proved wrong and…[Read more]

Haha good one Min ! My reply is GIGGLER that is just like me!! Bridget x

Hi Dai
It all ways seem to start at the weekend,horrible,feel you cannot trouble people,and know you are going to end up in A&E fighting your corner,Slim had bloods taken as par usual,but from getting up knows he is not himself,hospital says he is ok,but cancelled any plans for weekend.doubling fluid intake,ankles BIG,and just not himself.cannot…[Read more]

Hi Jet
Dr Feyler s name is Silvia and she is a consultant Hematologist and you are right, she is German and she is an excellent consultant, very caring with a very good insight into procedures.I see Dr fayler in Halifax but she also works in Huddersfield and I guess Leeds to.Sorry about late post just been busy recently.Glad to hear that SCT…[Read more]

Hi Everyone
David how about Nosology,meaning the branch of medicine that deals with
classification of diseases

How about for OIL

OLIGARCH

love Eve

Hi Dai and Everyone else
I was not sure were to put this post ,and as this topic is included I thought you might like some % of are problems with meds.

As you know Slim did CDt 6 cycles now Velcade on 4 Cycle.=10 Cycles altogether to date.
Out of 10 cycles we have only had the tablets ON TIME twice making that 20% of the time,on the bad days…[Read more]

Hi Debs
We will not be making it tomorrow,left it till last minute,because it means a stay up there or 160 mile around trip,from the coast in Kent and Slim on first week of 4 cycle Velcade.
Been to the hospital this morning,for bloods,and he is just not himself,so tomorrow is out,was looking forward to meeting everybody,but either way with a dog…[Read more]

Hi Mal and Bruce

Pleased his temp has dropped, I used to hate it when I got them 🙁
and sleep is good cant wait til I get into my bed tonight 😀

Love to you Both

Tom "Onwards and Upwards" xx

Hi Dai

Sorry for the delay :-S not sure how I missed this post?? But a Well Done 😀

Am sure the Amoxicillin will throw that dreaded infection out 😉 so it will be an "Onwards and Upwards"

Tom "Onwards and Upwards"

Hi Elaine
Just popped in to say welcome,I am a carer and do not know how i would have managed without this site and all my cyber friends they have helped me so much through some bad times,so its all been worth while.and you also gain so much knowledge,and helps you to know what is going on in other hospitals.
Also what treatments are…[Read more]

Hi Deedee
Its all a bit mind blowing at the moment for you,but things will settle down,Its hard when they have been so fit,and now they seem so ill.
Thing will get better,and you will find that inner strength that you need.

I find it helps to find out all I can about MM it works for me,when things seem to be heading in the wrong direction,I…[Read more]

Hi Caz
Just to say welcome,envy your trip to nz,we should have being going this year have a daughter in Mapua.We will get there again was my husband gets remission.8-)

Once you know how much damage to bones there is,you will soon learn to adjust your strength will come back just takes a long time,some people sail through treatment other people…[Read more]

Gill, you made me laugh! 🙂

Don't be put to shame….we all deal with stuff differently and for me it is the best way of forgetting what is going on….I find it hard to do that if I am not running round like a headless chicken!!! And I also find it a challenge to raise BIG money – I hope the ball next year will do that – would like to raise…[Read more]

Hi Scott
Have a good party on Saturday!!
Will try to pass on best, but you know what these consultants can be like….very elusive!!
Take care
Debs x

THanks Gill – not sure if it's good or bad that I'd be recognised anywhere!!
Someone the other day said they wouldn't want to bump into me on the street – maybe I wasn't smiling then!!
Doing ok thanks….waiting for 3 month post-SCT results on Tuesday so a bit nervous in case of relapse, but keeping busy organising my tabletop sale, and have…[Read more]