Bridget

You are marvellous I am sure no one will worry about hats so long as you start to feel better get all the sleep you can for I expect when you start your new treatment next week I guess DEX will be involved so no sleep there then, I am at UCH next week on thursday what day are you there
tRY and keep well
Love and big ((((hugs))))

Jo:-)

So well done Nettie you are so brave where did you find the courage
I like Tom said my prayers for you to come though safely
HURRAH FOR NETTIE

lOVE jO XXX

Hi Peggy wow you had a lucky escape! It just shows we cant afford to ignore our symptoms for too long , which I am guilty of ! Hopefully you will never have to be in that position again though so take care and look after yourself love Bridget x

Hi Christine its good to hear from you and great to hear Velcade is doing a good job getting your dads pps down . I remember being very frustrated when on Velcade because I felt so awful for the first part of my week off and others have said the same As its worked so well has anyone suggested a lowerd dose? It might be possible to lower the dose…[Read more]

Hi Elaine

glad you have found us you will find this site so supportive full of kind words and advise you are not alone we all care here. When I had CDT they gave me an anti B which gave me a rash so they had to stop it the rash looked like German measles it was called ciprofloxin perhaps it is something like that causing your rash
Keep in…[Read more]

Hi Mal and Bruce
HAPPY ANNIVERSERY TO YOU BOTH AND MANY MORE TO COME

LOVE Jo

Hello Caz

welcome to the group sorry you have had to join but you will find so many new friends here ready to give you help and advise and dont forget Myeloma uk's help line they are so good. The eating bit is difficult I ate only what I fancied that way I at least ate something as a child when not well it was always lemonade and Hienz tomato…[Read more]

Thanks for all the lovely replies. We're not sure of the progression-whether the breaking my leg caused my free light chains to double or vica versa. I was told that with my initial diagnosis of the plasmacytoms at T4 that I had probably had it for 2 years before it had started causing symptoms-I was threatened with the scaffolding but luckily…[Read more]

Hi Elaine,
Welcome to the site and I hope it is as helpful for you as I find it. I think it is full of lovely, caring people!
I hope you cope with your treatment. It seems that each treatment is different for everyone so it is hard to say about side effects, but just make sure you mention everything to your consultant/ nurse specialist. They…[Read more]

Hi Helen

Tabletop sale is on the 6th November but we've made £150 already on a gym membership that was donated….am hoping to get over £500 in total. Then on to organising the ball I want to do next year!!

Tracey, that is very kind of you but VERY misguided. I could only wish to look like Kate. Sadly neither my face, nor my body looks l…[Read more]

Thanks for thinking of me Keith…..funnily someone else I know forwarded on this article to me.
I'm not sure I'm bad enough at the moment (fingers crossed) and I'm not sure how they'd do it for me anyway, as my pain is in the whole of my lower legs and my feet. However, they had said that patches/ creams were around if the drugs didn't…[Read more]

Hi Mal and Bruce I hope Bruce isnt feeling too awful Happy anniversary , sorry its late didnt see your post . I am sure you will be able to celebrate in style once all this is behind you and life can be fun again love to you both Bridget x

Hi Deedee and welcome now that you have found this site and all the lovely people on here you need never feel you are alone in living with myeloma At first its so hard to come to terms with myeloma and everything it means , let alone all the medical terms and treatments but in a short while it will all start to make sense Just take it a day at a…[Read more]

Hi Caz and welcometo club none of us wanted to join. I was diagnosed 5 years ago and I have had the full range of treatment so far! On being diagnosed I had to have spinal reconstruction as 3 vertebrae were destroyed This was followed by CDT and SCT , which gave me 18 months partial remissionWhen I relapsed with a new tumour on my spine I went on…[Read more]

Hi Jo,
Great….will look out for you too!!
Debs x

Hello Elaine

I'm glad you have decided to join this site. I am sure you will fimd it very helpful. You haven't said which treatment you are on. If you share this I am sure there will be folks who can compare notes about side effects with you.

Do be kind to yourself and don't try to do too much while youa re on the chemo.

All best…[Read more]

Hi Caz

Sorry you have had to join this "merry" band. I was interested to hear of your journey thus far as I also was diagnosed following a plasmacytoma and RT. Was the break the thing that heralded your MM progression? Had your paraprotein levels jumped up? I am currently having zometa monthly (starting last month) before that I was on…[Read more]

Hi Only me
Think Susan has covered most of it (if not all) its amazing how much you forget about what and when after a few months down the line? or is that just me:-S

Good Luck with the transplant.

Love and Hugs

Tom "Onwards and Upwards" xxx

Hi Gina

Pleased your Mom is getting on better:-D and dont go doing stunts with that wheelchair, but if your Mom wants to get it on you tube he he.

Love to you all and (((Hugs)))

Tom "Onwards and Upwards" with one or two wheelie's xxxx