Hi Sharon hopefully you wont have to wait too long before you feel ok again Thats such a long wait for PET scan though, mind you I have never had one I dont think UCH has access to PET scanner I wish they did if reports about their accuracy are true! I know what you mean about having to wait for RT I used to despair after getting the district…[Read more]

hI Donna

thanks for letting us know please keep in touch and let us now how they are Regards to mum and Dad

Love Jo

Hello Bridget

I am so glad the RT treatment has got rid of that tumer and your pain I have been really worrying about you I am also glad you didnt need to go into the hospice I hope you are now feeling well
Keep well

Big ((((HUGS))))

lOVE jo x

Hi Tom

I can just picture you in a big nappy wet your pants indeed and your not that old either just a big spring chicken and a jolly one at that
Keep Well
Big (((((Hug)));-)
Lots of love Jox

Hi Mari

Trust me girl you are and never will be a "Burden" on here or anywhere else 😀

And I am pleased that the pp;s for Steve were looking glum? but hey we all have little blips and need to get them tweaked 😎

Love and Hugs ((()))

Tom "Onwards and Upwards" xx

Dear Julie

Our sincere condolences, to you and your Family at this sad time.

Am sure you will have plenty of great memories to cherish over the coming months.

Love and Hugs

Tom and Elaine xxxx

Hi Terry great Photo you have added and am pleased you are doing Ok

Tom "Onwards and Upwards"

Well you all am all jabbed up both arms :-S swine flu and a double mainstream type of flu thing in one jab and pneumonia in another 😀 but today I feel a ic:-/ cle bit washed out.

Hope you all get your in on time 😎

Tom "Onwards and Upwards" x

Hi Craig

Am Pleased Etta is over the flue symptoms re the Zometa 😀

I am like Bridget in saying Make time for yourself along this journey you will need it.

My Young Bride (Elaine) looked after me when I was going through the Mill with treatment and I insisted that she Made time for herself even on Xmas day Elaine went round Family and…[Read more]

Hi Craig I am glad Etta is over the worst You two will get through these times as you seem like a very strong partnership, I know I couldnt manage without my husband Just a word of caution though try and make some time for yourself that has nothing to do with myeloma or hospitals as it can take over your life , so try and have some fun too love Bridget x

Hi Ted

So glad to hear that things are going good for you. Frank is still not on treatment and he has what he calls "power failures". He will be sitting talking to me – go quiet – he's fast asleep!! After a couple of hours he's back to normal. Know what u mean about the the flu vaccination we went on Thursday and it was like a conveyor…[Read more]

Hi Sharon thankyou . Its such bliss to have got rid of that awful pain at last !! Now I dont have to feel pressured to go into the hospice for methadone trial either , I really did not want to do that. I hadnt realised until last year , when radiotherapy got rid of the last tumour on my spine, just how precise and effective it was these days ,…[Read more]

Dear Gill

Just read your post. It is unbelievable what these banks think they can get away with. I agree with Min, I would say get Anne Robinson from BBC Watchdog onto them. They appear to be quick and Anne would tear any Rep to shreds.

Hope you get it sorted.
Love Jean. xx

Please accept our sympathy and very best wishes at this very difficult time.
Carol Bradley

Dear Julie

I am so sorry your mum has lost her fight with this terrible disease she was a real inspiration to me

Much love Jo x

I am sad to hear your mum has passed away but at least she was with her family She will always be in your hearts and memories love Bridget x

Hi Gina what a relief for you to know its not her lungs causing the breathlessness Hopefully mum will be feeling a lot brighter today and you can all enjoy the weekend love Bridget x

Good morning everyone a very interesting topic this not sure I can add much except to relay my own experience . From the initial consultation at UCH I have felt they are at the forefront of any new treatments With referwence to their hands being tied by NICE guidelines I have never felt that was the case.When I asked about the Velcade rules on…[Read more]

Hi Gina
Nice to hear from you,sorry it is not better news with your mum,how are her lungs,are they any better after the treatment.
It does seem to be one thing after the other,hope she begins to feel better now she has had some blood ,do not know much about revimide except in trials as the other side of CTD.
Hope it works and you can keep your…[Read more]