Hi Everyone
Once more in to the breach,and hoping to clarify and expand this discussion.

The hospital i go to has a specialised haematology dept that is taking part in Myeloma Trials which Slim is on.
When on trials you have to follow the pathway,but you can come off trials any time,and you can be removed of trials if they think you are no…[Read more]

Dear Briget

Thinking of you. Hope all goes well and you get the OK for the drugs soon.
Do hope that pain is still under control and that your holiday lited your spirits as much as mine did.

Love.

Mavis x

Hi david

You raise an interesting question. In another post I point out that I have just been moved from Bonefos to Zometa this month – first infusion this Tuesday (and had shivering and a temperature yesterday! but gather that can happen in the first month).

I had read that it was now NICE's recommendation as first line treatment because…[Read more]

Dear Gina

Do hope your Mum is feeling better soon and the transfusion works a miracle.

Much love to you both.

Mavis

Hi Mari

Sorry that Steve's PP levels are rising, but as the Consultant says, no need to panic – in the scale of things they are still very low. What were they at their highest? More worrying, at this point would be if he was having lots of other complications like infections or kidney damage. Tell him to keep drinking the water!!!

Love…[Read more]

Hi Dai

Agsin you rsise a very important point and one which is very worth our debating – and maybe an article in "Myeloma News". I read an interesting post this morning from Pat – Myeloma Beacon blog, where he poses the first part of a discussion on individualised treatment plans, something very dear to my heart.

You are so right though…[Read more]

Hi Nettie

Having seen the photos I realise you really were mad! What a height for someone scared of them!!!
CONGRATULATIONS! a REAL CASE OF "feel the fear and do it snyway".

Thank you so much for your great fundrasing effort.

Love

Mavis

Nettie

That was brilliant. In that one photo you looked so relaxed. Congratulations you. Wish I has your courage.

Love Jean x

well done dia
u
I know you would do it and not give up I will be praying for you to have reaaaaaalllyy!!! long remmission

Big ((((HuGS))))));-)

lOVE jO XX

Hi
Good to know you are ok,hope everything goes well on the last cycle.Let us know how you get on 🙂
My beautiful white carpet did not enjoy Slim being sick on it,have used bleach but still looks iffy,helped make my mind up,so hall and lounge will be replaced with laminated looking like oak.
Could do without this,but when you are stuck in…[Read more]

Nettie can't get the link to work.

Jean

Dear Mari I am so sorry to hear Steves pp have risen But as Gill said hang in there they may yet go back down It sounds as if your doctor is quite laid back about it too Mari you are so good at supporting others on here please dont ever feel you are a burden , it couldnt be further from the truth and we are all here for you and Steve whenever you…[Read more]

Hi Gill

Daily mail Wednesday Money Mail you look for Page 55
E mail asktony@dailymail.co.uk
daytime phone number postal address and separate not addressed to the .offending organisation:-)
Hope this helps. Eve

Hi Gill I cannot believe the arrogance of these banks!! No wonder you are spitting feathers how dare they treat you like that after years of being loyal customers! If I remember rightly HSBC are runnning a tv ad campaign based on meeting local needs Perhaps you could start with your local paer and radio station stressing the local angle They may…[Read more]

Hi Sandra

A warm welcome home I have to say you done well out on day 13 😀 If i remember correctly i was out on day 16:-/ I think lol.

Good Luck with your forthcomming recovery, and dont forget one day at a time and when you need to sleep sleep 😎

Love
Tom "Onwards and Upwards" xx

Hi Dai
Have done it again haven,t I,Dai i am not talking about your ignorance far from it i look to you for advice support and anything else you can throw my way to help me understand this dreadful MM,and what is available, so very very sorry,its my ignorance of every thing,that,s in front of us.
So accept my apology .Eve

Ooh! Let's go for the racy one!

OUS= OUSTED

Leaving – TED

Love liz xx

That's great news Dai, long may your remission continue! It's a lovely word REMISSION !! Enjoy Dai and Janet

Love liz & kev xx 🙂 🙂

Hi Gill

Just found the post were you ignored me!!!!,how dare you 😛 LOL, some one forgot to tell you scousers are thick skinned but are softies in side 🙂
Seem to be missing post these days,but what I have noticed is that you are taking Stephen,s results very calmly.
Gill you must be worried,I have noticed those early morning post when you…[Read more]

HI Sharon
You have not been on site for a while is ever thing ok i know you do not post much,but you must have finished Velcade now.How are things going:-S?

Slim on 3 cycle and a bit in Limbo as,no results coming through as decided bone marrow to be taken after 4 cycle.

Slim has not got the pain in his chest any more,and except for the odd…[Read more]